What labels does the UK Government accept as part of Autism Spectrum?

Mr Richard Woods made this Freedom of Information request to Department of Health and Social Care

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

The request was successful.

Mr Richard Woods


Dear Department of Health,

Please can the Department of Health provide the following information under the a Freedom of Information Request:
1A) What labels do the UK Government accept to be part of the "Autism Spectrum"?
1B) Why does the UK Government accept the labels to the response to 1A to be on the "Autism Spectrum"?
1C) Do the labels to the response to 1A fall under the UK Government's obligations of the The Autism Strategy 2015 as part of the Autism Act 2009 and/ or Educational Care Health Plans?
2A) Are there any labels which the UK Government does NOT accept as being as part of the "Autism Spectrum", such as Pathological Demand Avoidance (PDA)?
2B) Why does the UK Government NOT accept the labels to response to 2A to be on the "Autism Spectrum"?
2C) Do the labels to the response to 2A fall under the UK Government's legal obligations?
3D) What happens to any labels mentioned to the response to 2A if they are stated in an active Educational Care Health Plan, if the label is not legally recognised by the UK Government?
3A) When does the UK Government next plan to review what labels it accepts to be on the "Autism Spectrum"?
4A) Is The Autism Strategy 2015 legally binding on the Local Authorities and NHS Trusts?

Please can you return the information electronically to the following email address:

Yours faithfully,

Mr Richard Woods.

Do Not Reply,

Our ref: DE-1076620  


Dear Mr Woods,
Thank you for your correspondence of 1 March about the autism spectrum.  I
have been asked to reply.


I appreciate your concerns.

In any publication or report that the Department of Health may issue, the
term autism is used to refer to all diagnoses on the autism spectrum,
including Asperger syndrome, high-functioning autism, Kanner syndrome or
classic autism.  Many people with autism will also have related hidden
impairments such as attention deficit hyperactivity disorder, dyspraxia,
dyslexia, dyscalculia and language impairments, as well as associated
mental health conditions and other linked impairments.


However, the Department of Health does not issue guidance on what autism
labels should be used by clinical professionals when diagnosing people for
autism.  Clinicians will diagnose in line with guidance such as the
Diagnostic and Statistical Manual of Mental Disorders (DSM-5), the
American Psychiatric Association's classification and diagnostic tool, or
the International Statistical Classification of Diseases and Related
Health Problems (ICD-10), a medical classification list by the World
Health Organization.


Updated statutory guidance for local authorities and NHS organisations to
support implementation of the Adult Autism Strategy was issued by the
Department of Health in 2015.  It relates to England only and includes
statutory guidance along with suggested actions that could be taken by
local authorities and NHS organisations.  A copy of the guidance can be
found at:




The Freedom of Information Act only applies to recorded information such
as paper or electronic archive material.  As your correspondence asked for
general information, rather than requesting recorded information or
documentation, it did not fall under the provisions of the Act.

I hope this reply is helpful.

Yours sincerely,
Ren Pounder
Ministerial Correspondence and Public Enquiries
Department of Health



Please do not reply to this email. To contact the Department of Health,
please visit the [2]Contact DH section on Gov.uk

To receive news about DH: [3]sign up to our monthly newsletter

show quoted sections

Incoming and outgoing e-mail messages are routinely monitored for
compliance with the Department of Health's policy on the use of electronic
communications. For more information on the Department of Health's e-mail
policy click here http://www.dh.gov.uk/terms


This email was scanned by the Symantec virus scanning service and was
certified virus free.
Communications may be automatically logged, monitored and/or recorded for
legal purposes.


Visible links
1. https://www.gov.uk/government/publicatio...
2. https://www.gov.uk/government/organisati...
3. http://r1.surveysandforms.com/4c3zqo08-a...