UKHCDO Notifications

JJ Evans made this Freedom of Information request to Office for National Statistics This request has been closed to new correspondence. Contact us if you think it should be reopened.

Office for National Statistics did not have the information requested.

JJ Evans
Delivered

Dear Office for National Statistics,

Under the FOI act I would like to know how many notifications have been made to the National Haemophilia Database (UKHCDO) upon deaths of their registered patients. Ideally this would be supplied on a year-by-year basis.

The 2013 Information Governance Assessment of the UKHCDO (NHD - National Haemophilia Database) explains that there is an arrangement in place whereby the ONS notify the UKHCDO when one of their registered patients dies. That report can be found here (See page 2, point 3) - http://www.ukhcdo.org/wp-content/uploads...

Yours faithfully,

JJ Evans

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ONS FoI Team, Office for National Statistics

Thank you for your recent FoI request to the Office for National
Statistics. I can confirm that we have received your request and it is
currently being dealt with. We will aim to respond as soon as possible,
and in any event not later than 20 working days from today (or when we
received your request if that was earlier).

Should you have any further questions please do not hesitate to contact us
at [email address]
Yours Faithfully
Freedom of Information Team
Office for National Statistics

For information on the work of the UK Statistics Authority,
visit: [1]http://www.statisticsauthority.gov.uk

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FOI Team, Office for National Statistics

Our Reference: FOI 3376

Dear Mr Evans

Thank you for your email requesting data pertaining to National
Haemophilia Database notifications.

I am writing to confirm that the Office for National Statistics has now
completed its search for the information which you requested and the
response can be found here:
[1]https://www.ons.gov.uk/aboutus/transpare...

You have the right to have this response to your freedom of information
request reviewed internally by an internal review process and, if you
remain unhappy with the decision, by the Information Commissioner. If you
would like to have the decision reviewed please write to The FoI Team,
Room 1100, Office for National Statistics, Segensworth Road, Titchfield
PO15 5RR, and mark your correspondence "Internal Review".

If you have any queries about this email, please contact the Freedom of
Information Team ('[ONS request email]')

Please remember to quote the reference number above in any future
communications.

Freedom of Information Team
Office for National Statistics For information on the work of the UK
Statistics Authority, visit: http://www.statisticsauthority.gov.uk

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Legal Disclaimer: Any views expressed by the sender of this message are
not necessarily those of the UK Statistics Authority
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Link to this Report