Treatment regime for known haemochromatosis patients .

The request was successful.

Dear Western Isles NHS Board,
I would like to obtain information regarding the treatment regime for known haemochromatosis patients in the care of your health authority.
Specifically

1) Between 1st March 2019 and 1st March 2020 how many known haemochromatosis patients were receiving venesection treatment ?

2) Between 1st March 2020 and 31st December 2021 how many known haemochromatosis patients, previously receiving venesection, have received no venesection treatment for their condition?

3) Between 1st March 2019 and 31st December 2021 how many known haemochromatosis patients, previously receiving venesection, have received 1-4 venesection treatments for their condition?

4) Before 1st March 2020 what criterion/criteria was used to triage haemochromatosis patients for venesection treatment ?

5) Between 1st March 2020 and 31st December 2021 what criterion/criteria was used to triage known haemochromatosis patients for venesection treatment ?

6) Between 1st March 2020 and 31st December 2021 what procedure/ methodology was used to ensure that any clinical database of haemochromatosis patients’ blood levels was accurately maintained and updated?

Yours faithfully,

Peter Murtagh

WI FOI-Requests, Western Isles NHS Board

Please accept this email as confirmation that NHS Western Isles has
received your FOI request below. 

NHS Western Isles will endeavour to respond to your email timeously, but
please be aware the current Covid-19 pandemic may impact on our ability to
respond to all requests within timescales. The priority at this time must
be managing the current outbreak and supporting frontline activities.  

As per the Freedom of Information (Scotland) Act 2002, we will aim to meet
your request within 20 days from receiving it.  In the eventuality of a
delay arising, I will contact you advising of this and the reason for it. 

Regards,

Tina

NHS Western Isles / 37 South Beach Street / Stornoway / Isle of Lewis
/ HS1 2BB

[NHS Western Isles request email]  / Tel: 01851 708031 / Fax: 01851 702036

--------------------------------------------------------------------------

From: Peter Murtagh <[FOI #825713 email]>
Sent: 25 January 2022 9:20 AM
To: WI FOI-Requests <[NHS Western Isles request email]>
Subject: Freedom of Information request - Treatment regime for known
haemochromatosis patients .
 
Dear Western Isles NHS Board,

I would like to obtain information regarding the treatment regime for
known haemochromatosis patients in the care of your health authority.

Specifically

1) Between 1st March 2019 and 1st March 2020 how many known
haemochromatosis patients were receiving venesection treatment ?

2) Between 1st March 2020 and 31st December 2021 how many known
haemochromatosis patients, previously receiving venesection, have received
no venesection treatment for their condition?

3) Between 1st March 2019 and 31st December 2021 how many known
haemochromatosis patients, previously receiving venesection, have received
1-4 venesection treatments for their condition?

4) Before 1st March 2020 what criterion/criteria was used to triage
haemochromatosis patients for venesection treatment ?

5) Between 1st March 2020 and 31st December 2021 what criterion/criteria
was used to triage known haemochromatosis patients for venesection
treatment ?

6) Between 1st March 2020 and 31st December 2021 what procedure/
methodology was used to ensure that any clinical database of
haemochromatosis patients’ blood levels was accurately maintained and
updated?

Yours faithfully,

Peter Murtagh

-------------------------------------------------------------------

Please use this email address for all replies to this request:

[FOI #825713 email]

Is [NHS Western Isles request email] the wrong address for Freedom of Information
requests to Western Isles NHS Board? If so, please contact us using this
form:

[1]https://www.whatdotheyknow.com/change_re...

Disclaimer: This message and any reply that you make will be published on
the internet. Our privacy and copyright policies:

[2]https://www.whatdotheyknow.com/help/offi...

For more detailed guidance on safely disclosing information, read the
latest advice from the ICO:

[3]https://www.whatdotheyknow.com/help/ico-...

Please note that in some cases publication of requests and responses will
be delayed.

If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.

-------------------------------------------------------------------

 

 

--------------------------------------------------------------------------------------------------------------------------------------------------------
This email is intended for the named recipient only. If you have received
it by mistake,
please (i) contact the sender by email reply; (ii) delete the email from
your system; .
and (iii) do not copy the email or disclose its contents to anyone.

--------------------------------------------------------------------------------------------------------------------------------------------------------

References

Visible links
1. https://www.whatdotheyknow.com/change_re...
2. https://www.whatdotheyknow.com/help/offi...
3. https://www.whatdotheyknow.com/help/ico-...

WI FOI-Requests, Western Isles NHS Board

1 Attachment

Please find attached NHS Western Isles response to your FOI request below.
Regards,
Abigail

NHS Western Isles / 37 South Beach Street / Stornoway / Isle of Lewis
/ HS1 2BB

[NHS Western Isles request email]  / Tel: 01851 708031 / Fax: 01851 702036

--------------------------------------------------------------------------

From: Peter Murtagh <[FOI #825713 email]>
Sent: 25 January 2022 9:20 AM
To: WI FOI-Requests <[NHS Western Isles request email]>
Subject: Freedom of Information request - Treatment regime for known
haemochromatosis patients .
 
Dear Western Isles NHS Board,

I would like to obtain information regarding the treatment regime for
known haemochromatosis patients in the care of your health authority.

Specifically

1) Between 1st March 2019 and 1st March 2020 how many known
haemochromatosis patients were receiving venesection treatment ?

2) Between 1st March 2020 and 31st December 2021 how many known
haemochromatosis patients, previously receiving venesection, have received
no venesection treatment for their condition?

3) Between 1st March 2019 and 31st December 2021 how many known
haemochromatosis patients, previously receiving venesection, have received
1-4 venesection treatments for their condition?

4) Before 1st March 2020 what criterion/criteria was used to triage
haemochromatosis patients for venesection treatment ?

5) Between 1st March 2020 and 31st December 2021 what criterion/criteria
was used to triage known haemochromatosis patients for venesection
treatment ?

6) Between 1st March 2020 and 31st December 2021 what procedure/
methodology was used to ensure that any clinical database of
haemochromatosis patients’ blood levels was accurately maintained and
updated?

Yours faithfully,

Peter Murtagh

-------------------------------------------------------------------

Please use this email address for all replies to this request:

[FOI #825713 email]

Is [NHS Western Isles request email] the wrong address for Freedom of Information
requests to Western Isles NHS Board? If so, please contact us using this
form:

[1]https://www.whatdotheyknow.com/change_re...

Disclaimer: This message and any reply that you make will be published on
the internet. Our privacy and copyright policies:

[2]https://www.whatdotheyknow.com/help/offi...

For more detailed guidance on safely disclosing information, read the
latest advice from the ICO:

[3]https://www.whatdotheyknow.com/help/ico-...

Please note that in some cases publication of requests and responses will
be delayed.

If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.

-------------------------------------------------------------------

 

 

--------------------------------------------------------------------------------------------------------------------------------------------------------
This email is intended for the named recipient only. If you have received
it by mistake,
please (i) contact the sender by email reply; (ii) delete the email from
your system; .
and (iii) do not copy the email or disclose its contents to anyone.

--------------------------------------------------------------------------------------------------------------------------------------------------------

References

Visible links
1. https://www.whatdotheyknow.com/change_re...
2. https://www.whatdotheyknow.com/help/offi...
3. https://www.whatdotheyknow.com/help/ico-...

Dear Western Isles NHS Board,

Please pass this on to the person who conducts Freedom of Information reviews.

I am writing to request an internal review of Western Isles NHS Board's handling of my FOI request 'Treatment regime for known haemochromatosis patients .'.

Thank you for the detailed response to my request which contains much useful information.

However, I may not have expressed Qu 4 and 5 properly. My apologies for that .

For question 4 and 5 , could you advise what blood level values ie Ferritin mg/l and or TSAT % would be considered as the trigger thresholds requiring venesection procedure .

A full history of my FOI request and all correspondence is available on the Internet at this address: https://www.whatdotheyknow.com/request/t...

with thanks ,
Yours faithfully,

Peter Murtagh

WI FOI-Requests, Western Isles NHS Board

1 Attachment

Dear Mr Murtagh
Please find attached amended response which includes the answer to your
clarification provided for Q4 and Q5.   Please advise if you wish for an
internal review o take place.
Regards,
Tina

NHS Western Isles / 37 South Beach Street / Stornoway / Isle of Lewis
/ HS1 2BB

[NHS Western Isles request email]  / Tel: 01851 708031 / Fax: 01851 702036

--------------------------------------------------------------------------

From: Peter Murtagh <[FOI #825713 email]>
Sent: 21 February 2022 3:50 PM
To: WI FOI-Requests <[NHS Western Isles request email]>
Subject: Internal review of Freedom of Information request - Treatment
regime for known haemochromatosis patients .
 
Dear Western Isles NHS Board,

Please pass this on to the person who conducts Freedom of Information
reviews.

I am writing to request an internal review of Western Isles NHS Board's
handling of my FOI request 'Treatment regime for known haemochromatosis
patients .'.

Thank you for the detailed response to my request which contains much
useful information.

However, I may not have expressed Qu 4 and 5 properly. My apologies for
that .

For question 4 and 5 , could you advise what blood level values ie
Ferritin  mg/l and or TSAT % would be considered as the trigger thresholds
requiring venesection procedure .

A full history of my FOI request and all correspondence is available on
the Internet at this address:
[1]https://www.whatdotheyknow.com/request/t...

with thanks ,
Yours faithfully,

Peter Murtagh

-------------------------------------------------------------------
Please use this email address for all replies to this request:
[FOI #825713 email]

Disclaimer: This message and any reply that you make will be published on
the internet. Our privacy and copyright policies:
[2]https://www.whatdotheyknow.com/help/offi...

For more detailed guidance on safely disclosing information, read the
latest advice from the ICO:
[3]https://www.whatdotheyknow.com/help/ico-...

Please note that in some cases publication of requests and responses will
be delayed.

If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.

-------------------------------------------------------------------

 

 

--------------------------------------------------------------------------------------------------------------------------------------------------------
This email is intended for the named recipient only. If you have received
it by mistake,
please (i) contact the sender by email reply; (ii) delete the email from
your system; .
and (iii) do not copy the email or disclose its contents to anyone.

--------------------------------------------------------------------------------------------------------------------------------------------------------

References

Visible links
1. https://www.whatdotheyknow.com/request/t...
2. https://www.whatdotheyknow.com/help/offi...
3. https://www.whatdotheyknow.com/help/ico-...