Surrey Care Record

The request was successful.

Dear NHS North West Surrey Clinical Commissioning Group,

Referenced in these questions are the FAQs, available here:-
http://surreyheartlands.uk/our-prioritie...

1) If a patient is already opted out of the Summary Care Record, I have read in documents available on the Internet that this means they will automatically be excluded either from the Surrey Care Record or their GP data will not be included, can you clarify this and confirm that this is indeed the case, and will you be informing people of this?
2) As in question 1 above, does your response include children under the age of 13?
3) If the answer to question 2 is affirmative, what happens when a child reaches the age of 13? Do they remain opted out, or does their opt-out become void, or do they get written to asking what their preference is?
4) If a person is automatically opted out, and they would like to have a Surrey Care Record, what should they do?
5) If child under 13 as per question 2 is automatically opted out, but a parent would like their child to have a Surrey Care Record, what should they do?
6) If a parent of a child under 13 opts-out of opting-out of not having a record as per question 5, but wishes to exclude certain organisation(s) of having access, is this possible, and how would they go about it?
7) Can a patient opt-out of having a Surrey Care Record by contacting the organisation in charge of the Surrey Care Record directly, without going through a GP?
8) Which organisation is in charge of the Surrey Care Record?
9) Would patient data be included in the Surrey Care Record if an NHS number in unknown - e.g. a patient who presents at A&E but whose NHS number cannot be identified (or who doesn't have an NHS number)?
10) Who can have a Surrey Care Record - is it people living in Surrey; people who have a GP in Surrey; people who receive treatment in Surrey but don't live or have a GP in Surrey (for example people who turn up in A&E on their way through the county)?
11) Would one organisation be permitted to obtain data from the Surrey Care Record to update their details about you - for example, would the School Nursing Service be allowed to check the record to see a child's immunisation records from a GP to update their own immunisation records?
12) If one particular organisation is 'blocked' from accessing the Surrey Care Record by a data subject, is that particular organisation able to override that block, or does it have to be done by a different organisation?
13) If a data subject has a particular organisation 'blocked' from accessing their Surrey Care Record, what happens when contracts are changed between providers? For example, First Community currently supply School Nursing services in East Surrey, but how would any restrictions be transferred between providers during contract changes, and how would data subject be advised of this?
14) If, as per question 13, a data subject's provider of care is transferred between providers, but that data subject also has a relationship with a provider in a different aspect (such as School Nursing in that question, but a child may also be under some other care with First Community that is not transferred between providers), how would any restrictions apply in that case?
15) I see in your FAQs a list of organisations which it is expected will participate in the Surrey Care Record in the future, but in the event of any organisations not listed participating in the future, what procedure is in place to ensure that data subjects will be made aware of the expansion of the Surrey Care Record?
16) Also, in the FAQs, it states that the will be a full consultation with the public in the event that data will be used for any purpose other than providing direct care - but what process is in place to advise data subjects of any potential consultation, and what process is in place to advise data subjects of any potential change of use of their data?
17) Under the question in the FAQs 'Can I Opt Out of this Altogether?', it states that I can contact any organisation to disable sharing. This implies a Surrey Care Record will still exist for a particular person, just that it won't share any information. Is it possible to prevent a Surrey Care Record being created in the first place?
18) How would a data subject who has a 'S-Flag' set up on the NHS's PDS database be affected by the Surrey Care Record? Would the S-Flag prevent any organisation from accessing, or uploading, data to the Surrey Care Record in the first place?
19) Can a data subject (or someone acting on their behalf) place a restriction on an organisation that will (or may) become a participant in the Surrey Care Record in the future from accessing a person's record, before that organisation is a participant? For example, could I place a restriction on First Community Health & Care now, so that when that organisation does have access to the Surrey Care Record, it will not have access - or does one have to wait until FCHC becomes a participant? If so, will data subjects be advised of when certain organisations will be becoming participants?
20) What would happen in the scenario that currently separate organisations become merged, and one has a restriction on data sharing, and one doesn't? Which setting becomes dominant?
21) With regards to consent to view - if you decline consent for someone to look at your Surrey Care Record, would any data collected by that member of staff or organisation still be uploaded to the Surrey Care Record?

Yours faithfully,

Mr Rawlins

Foi (NHS NEL CSU), NHS North West Surrey Clinical Commissioning Group

Dear Mr Rawlins

I am writing to formally acknowledge your request for information regarding data sharing which will be processed under the Freedom of Information Act 2000. I can confirm your request was received on 14 June 2018 by NHS NEL Commissioning Support Unit (NEL CSU) on behalf of the Clinical Commissioning Groups (CCGs) listed below. The references for your requests are shown alongside.

NHS North West Surrey CCGFOI.18.NWS048

An initial investigation is currently taking place into whether the information you have requested is held by the CCGs and if so, whether it can be released in accordance with the legislation.

Any fees applicable to this request will be detailed in writing as soon as they can be determined. Your request will then be placed on hold and you will have the choice of whether to proceed with your request. Should any clarification of your request be required we will advise you accordingly.

If you require any assistance, or would like to discuss your request, please do not hesitate to contact us quoting the reference number above.

Kind regards

Caroline E Old
FOI Officer  
NEL
[North West Surrey CCG request email] 
07867 140721 

1 Lower Marsh, 3rd Floor 
Lower Marsh, London SE1 7NT 
  
www.nelcsu.nhs.uk
@NELCSU 
LinkedIn 

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Dear Foi (NHS NEL CSU),

With regards to Question 1 of my FoI request:-

I notice, as of 20th June 2018 after being contacted by email, that the FAQs have been altered to now state: "If you have already opted out of the national Summary Care Record, you will automatically be opted out of the Surrey Care Record."

In recognition of this, I would like to modify Question 1 to now read:
1) The FAQs state "CAN I OPT OUT OF THIS ALTOGETHER Yes. If you want to opt-out of the Surrey Care Record you can contact any participating organisation who will ensure that the sharing of your Surrey Care Record is disabled. This will however mean that other professionals involved in your care will not be able to access shared information about you through the Surrey Care Record.
If you have already opted out of the national Summary Care Record, you will automatically be opted out of the Surrey Care Record."

Please could you clarify whether this means: a) you will not have a Surrey Care Record at all; b) you will have a Surrey Care Record but sharing will be disabled; c) whether it means only data from GPs will not be uploaded but data from other locations will; d) if any organisation can disable sharing, whether any organisation can then re-enable sharing, and what is to prevent an organisation re-enabling sharing without a patient's knowledge or consent, even if they lack capacity?

You probably realise that I've sent this same FoI request to all Clinical Commissioning Groups managing the Surrey Care Record. You may wish to collaborate or nominate one organisation to respond to me (as long as the answers would be the same from each organisation), as the only reason I have asked these questions via the FoI Act is because no acknowledgement or response was forthcoming from the email address provided to the public for such enquiries.

Yours sincerely,

Mr Rawlins

Foi (NHS NEL CSU), NHS North West Surrey Clinical Commissioning Group

1 Attachment

Dear Mr Rawlins

 

RE:          FOI.18.NWS048  on behalf of NHS North West Surrey Clinical
Commissioning Group

 

Please find attached a letter responding to your Freedom of Information
request. 

 

With regards

Sue

 

Sue Hiscock
FOI Officer
NEL

[email address]

 

1 Lower Marsh, 3^rd Floor 
Waterloo, London SE1 7NT

  

[1]www.nelcsu.nhs.uk

[2]@NELCSU 

[3]LinkedIn

 

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