Shared Care Records under the new ICS / ICB System

Dear London Central and West Unscheduled Care Collaborative,

I'm writing to you under the Freedom of Information Act (2000) to ask that you please disclose to me details of the shared care records created under your ICB (I'm aware that as this is a transitional process, that in some instances trusts or CCGs have been copied into this Email, as it's not entirely clear the status of establishment of all, hence my reason for doing so.

My questions:

1. how many of the ICS/ICBs are created already, and operational / is yours

2. How many / has yours created shared care records?

3. Who were the systems that these records sit on created by, as in which third party software provider (for instance, Graphnet)

4. Who creates the Shared Care Records themselves, ie GPs, Hospitals, Social Care Providers (if so, please name them for your area).

5. Who, outside of the NHS has access to them? For instance; DwP, Immigration, Local Councils, GPs, the local Police, Social Care, or private health providers (if so, this last question is in two parts - firstly a confirmation or denial that this is or is not the case - then a list of the private providers you work with please).

6. How do people opt out of this if they want to?

7. How have people been told they can opt out, as in, by Email, Phone, leaflet in local GP surgery. and what % of people that your ICB (or relevant body) covered have been informed directly about this restructuring or their records, and to stress, how have they been most importantly - please list any and all initiatives for this.

8. How many opt outs have their been?

9. Is awareness for the ShCRs being done at any point on a national level, or as stated above, purely through brochures inside local clinics - please explain any national drive there is to inform people of this new set of decisions, and what the response has been to it (ie both the methods people have responded by, and amount of people who have responded)

Yours faithfully,

Max Colbert
The Citizens

Dear London Central and West Unscheduled Care Collaborative,

Hello, as this request hasn't been responded to yet, I'd like to resubmit an updated version of it please:

I'm writing to you under the Freedom of Information Act (2000) to ask that you please disclose to me details of the shared care records created under your ICB.

My questions:

1. how many of the ICS/ICBs are created already, and operational / is yours

2. How many / has yours created shared care records? - what datasets do these comprise of? could you provide a breakdown of these please, and how they are sourced.

3. Who were the systems that these records sit on created by, as in which third party software provider (for instance, Graphnet)

4. Who creates the Shared Care Records themselves, ie GPs, Hospitals, Social Care Providers (if so, please name them for your area), also what specific datasets are included, and does one created which covers your area differ, in terms of the datasets, from any other 12 Shared Cared Records being created?

5. Who, outside of the NHS has access to them? For instance; DwP, Immigration, Local Councils, GPs, the local Police, Social Care, or private health providers (if so, this last question is in two parts - firstly a confirmation or denial that this is or is not the case - then a list of the private providers you work with please).

6. Will there be secondary uses for the shared care records in terms of research and planning, and analytical work, if so where is this stated in terms of local opt out forms, and who will have access to this (ie health providers, genomics researchers, third party analytic companies, student researchers - or anyone else that would have access that is not specifically for direct patient care)

7. How do people opt out of this if they want to?

8. How have people been told they can opt out, as in, by Email, Phone, leaflet in local GP surgery. and what % of people that your ICB (or relevant body) covered have been informed directly about this restructuring or their records, and to stress, how have they been most importantly - please list any and all initiatives for this.

9. How many opt outs have their been?

10. Is awareness for the ShCRs being done at any point on a national level (an NDOO), or as stated above, purely through brochures inside local clinics - please explain any national drive there is to inform people of this new set of decisions, and what the response has been to it (ie both the methods people have responded by, and amount of people who have responded)

11. If people move from one catchment area for an ICB/ICS, would they they need to, if indeed they wanted to, opt out again if they fell under a new shared care record, and to reiterate as these are locally made records, do they differ from one another, and if so could you please explain how? (thank you)

Yours faithfully,

Max Colbert
The Citizens