Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to NHS Islington Clinical Commissioning Group as part of a batch sent to 25 authorities

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

The request was successful.

Dear NHS Islington Clinical Commissioning Group,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.
Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotland which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In the light of these government statements that CCGs are responsible for commissioning services I would like to ask:

1) Please provide copies of any policies your CGG has on the commissioning of services for those with an FASD.
2) What services has your CCG commissioned to meet the ‘reasonable requirements’, as is your duty under Section 3 NHS Act 2006, of those in your area who have or may have Foetal Alcohol Spectrum Disorders as a result of antenatal exposure to alcohol, and what is your CCG doing to secure improvement in the physical and mental health of persons with Foetal Alcohol Spectrum Disorders and for the prevention, diagnosis and treatment of FASD (as is in your power under Section 3A NHS Act 2006)? Please release any information you hold concerning provision for:
a. prevention education following the Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the years 2013- 2018 from professionals including, but not limited to, paediatricians, GPs, nurses, psychologists, occupational therapists, speech and language therapists, mental health services and other disability support services to provide specialised intervention services for patients on the FASD spectrum across their lifespan?

3) Please release any information concerning how is your CCG exercising its duty (as specified under Section 14R NHS Act 2006) to securing “continuous improvement in the quality of services provided” to individuals with Foetal Alcohol Spectrum Disorders “for or in connection with the prevention, diagnosis or treatment” of FASD?
4) What is the budget for commissioned services for FASD in the current financial year? What was the budget in financial years beginning in 2013, 2014, 2015, 2016 and 2017?
5) Please release any agreed plans for service expansion for future years.
6) Has your CCG conducted, commissioned or assisted the conduct of research into any matters relating to the causation, prevention, diagnosis or treatment of Foetal Alcohol Spectrum Disorders, as is in your powers according to Section 5 NHS Act 2006 Schedule 1 (paragraph 13).
7) Does your CCG commission services from the National FASD Clinic? If so, what is the budget for this in the current financial year?
8) Please release any information concerning ways in which your CCG is fulfilling its duty (specified under Section 14Z, NHS Act 2006) to promote education and training related to FASD?
9) Do you have a lead person in your CCG on FASD? Please provide the name and role of the person responsible.
10) Please release any information concerning the steps are you taking or have you taken (according to your duty under section 14Z2 of the NHS Act, 2006), to involve individuals with FASD or their caregivers in “planning commissioning arrangements; in the development and consideration of proposals for change; in decisions affecting the operation of commissioning arrangements where implementation would have an impact on the manner in which services are delivered or the range of services available.”?
11) How many inquiries/requests/letters have you received from medical practitioners or patients/families in your area related to FASD in the years 2013-2018?

if you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the
order they have been presented.

Thank you in advance for your answers.

Yours faithfully,

Martin Butcher

FOIISLINGTONCCG (NHS ISLINGTON CCG), NHS Islington Clinical Commissioning Group

Dear Miss Butcher, 

 

Thank you for your email of 17th July 2018, making a request for
information, which will be treated under the Freedom of Information Act.

 

Your request has been given the following reference: 15776. Please quote
it in any correspondence.

 

We will send you the information you have requested, or explain why we are
unable to do so, as soon as possible and no later than 20 working days
from receipt.  At this time we do not plan to seek clarification of your
request or charge for the costs of complying with it.

 

As part of our commitment to openness and accessibility we will include
your request in our log of freedom of information requests.  This will be
published on our website.  Your personal or contact details will not be
included we may also publish any information that we send to you as part
of our publication scheme.

 

Please bear with us while we work on your request but in the meantime, if
you have any queries, please get in touch.

 

Kind regards

FOI Administrator

NHS Islington Clinical Commissioning Group | 2nd Floor |Laycock
Professional Development Centre (PDC)|

Laycock Street |London | N1 1TH

Tel: 020 3688 2900

 

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FOIISLINGTONCCG (NHS ISLINGTON CCG), NHS Islington Clinical Commissioning Group

1 Attachment

Dear Miss Butcher,

 

Thank you for your email dated 17^th July 2018, regarding Foetal Alcohol
Spectrum Disorders.

 

Please find attached our response to your FOI query, reference 15776. 

 

If you are dissatisfied with this response, please let me know and I will
ask a senior manager to review our handling of your request under the
CCG’s complaints policy.  If you remain dissatisfied after that, you
should contact the Information Commissioner, who administers the Freedom
of Information Act.  The Information Commissioner’s contact details are:

 

Information Commissioner's Office

Wycliffe House

Water Lane

Wilmslow

Cheshire SK9 5AF

Telephone: 0303 123 1113 or 01625 545745

[1]www.ico.org.uk  

 

Kind regards

FOI Administrator

 

NHS Islington Clinical Commissioning Group | 2nd Floor |Laycock
Professional Development Centre (PDC)|Laycock Street |London | N1 1TH

Tel: 020 3688 2900

 

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