Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to NHS Dartford Gravesham and Swanley Clinical Commissioning Group as part of a batch sent to 25 authorities

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

The request was successful.

Dear NHS Dartford Gravesham and Swanley Clinical Commissioning Group,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

VALENTINE, Mary (NHS SWALE CCG), NHS Dartford Gravesham and Swanley Clinical Commissioning Group

1 Attachment

Dear Ms Butcher

Further to your FOI request dated 23 July 2018 I now have pleasure in attaching formal response

With best wishes

Mary Valentine

Mary Valentine Business Co-Ordinator

Direct line: 03000 424901
Email: [email address]
Base: NHS DGS CCG (Gravesend)

NHS Swale and NHS Dartford Gravesham and Swanley Clinical Commissioning Groups

NHS DGS CCG, 2nd Floor, Gravesham Civic Centre, Windmill Street, Gravesend Kent DA12 1AU www.dartfordgraveshamswanleyccg.nhs.uk

NHS Swale CCG, Bramblefield Clinic, Grovehurst Road, Kemsley, Sittingbourne Kent ME10 2ST www.swaleccg.nhs.uk

For FOI requestrs please contact:
Mary Valentine, Business Co-Ordinator
03000 424901

Email [email address]

For Complaints please contact

Sharon Davies, Corporate Governance Officer
01634 335177
Email [email address]

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Dear VALENTINE, Mary (NHS SWALE CCG),

Hi Mary, everso sorry for the late response, thanks for rep[lying, but there's something wrong with the PDF you sent on July 31, could you resend please.

Thanks in advance

Yours sincerely,

Martin Butcher

VALENTINE, Mary (NHS SWALE CCG), NHS Dartford Gravesham and Swanley Clinical Commissioning Group

3 Attachments

Dear Ms Butcher

Thank you for your email.

I have pleasure in re-sending the response to your FOI request.

Please let me know if you have any further problems.

With best wishes

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Dear VALENTINE, Mary (NHS SWALE CCG),

Thanks for resending and thanks for the useful response.

Yours sincerely,

Martin Butcher

Dear VALENTINE, Mary (NHS SWALE CCG),

Hi there

Sorry to write again but you've sent me a response on snoring. I had written about FASD services.

thanks

Yours sincerely,

MArtin Butcher

VALENTINE, Mary (NHS SWALE CCG), NHS Dartford Gravesham and Swanley Clinical Commissioning Group

1 Attachment

Dear Ms Butcher

Please accept my apologies and find attached the correct response.

With best wishes

Mary Valentine

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Dear VALENTINE, Mary (NHS SWALE CCG),

Thanks everso for being so helpful, and so quick today to reply!

all the best

Martin