Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to University Hospitals Coventry and Warwickshire NHS Trust as part of a batch sent to 25 authorities

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

The request was successful.

Dear University Hospitals Coventry and Warwickshire NHS Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

Freedom Of Information (RKB), University Hospitals Coventry and Warwickshire NHS Trust

Dear Sandra

I acknowledge receipt of your Freedom of Information request received on 23rd July 2018. We are currently considering your request and anticipate getting back to you within 20 working days.

Kind regards

Heidi Ludford
FOI and Access to Health Records Officer
University Hospitals Coventry & Warwickshire NHS Trust
CSB Room 20018
Clifford Bridge Road
Walsgrave
Coventry
CV2 2DX

Internal 29140
Direct Line 024 76969140
Email [email address]

DISCLAIMER: This email and any attachments are confidential and may be privileged or otherwise protected from disclosure. If you are not the intended recipient you must not copy this message or any attachment or disclose the contents to any other person, nor take any action in reliance of its contents: to do so is strictly prohibited and may be unlawful. If you have received this message in error please accept our apologies and contact us at the address below or by email at [email address]
Any files attached to this email will have been checked by us with virus detection software before transmission. You should carry out your own virus checks before opening any attachment. UHCW (University Hospitals Coventry and Warwickshire NHS Trust) accepts no liability for any loss or damage which may be caused by software viruses.
Any views or opinions expressed are those of the author and do not represent the views of the Trust unless explicitly stated.
The information contained in this email may be subject to public disclosure under the Freedom of Information Act 2000. Unless the information is legally exempt from disclosure, the confidentiality of this email and your reply cannot be guaranteed.
Address: UHCW NHS Trust, Executive suite, 3rd Floor Rotunda, University Hospital, Clifford Bridge Road, Coventry, CV2 2DX

show quoted sections

Freedom Of Information (RKB), University Hospitals Coventry and Warwickshire NHS Trust

2 Attachments

Dear Sandra

 

Please find attached our response to FOI 4796.

 

Kind regards

 

Andrea

 

Andrea Phillips

FOI and Access to Health Records Manager 

University Hospitals Coventry & Warwickshire NHS Trust

CSB Room 20018

Clifford Bridge Road

Walsgrave

Coventry

CV2 2DX

 

Internal   28813

Direct Line  024 76968813

Mobile         07827 311 554

Email  [1][email address]

 

DISCLAIMER: This email and any attachments are confidential and may be
privileged or otherwise protected from disclosure.

If you are not the intended recipient you must not copy this message or
any attachment or disclose the contents to any other

person, nor take any action in reliance of its contents: to do so is
strictly prohibited and may be unlawful. If you have received

this message in error please accept our apologies and contact us at the
address below or by email at [2][email address]

Any files attached to this email will have been checked by us with virus
detection software before transmission. You should

carry out your own virus checks before opening any attachment. UHCW
(University Hospitals Coventry and Warwickshire NHS Trust)

accepts no liability for any loss or damage which may be caused by
software viruses.

Any views or opinions expressed are those of the author and do not
represent the views of the Trust unless explicitly stated.

The information contained in this email may be subject to public
disclosure under the Freedom of Information Act 2000. Unless

the information is legally exempt from disclosure, the confidentiality of
this email and your reply cannot be guaranteed.

Address: UHCW NHS Trust, Executive suite, 3rd Floor Rotunda, University
Hospital, Clifford Bridge Road, Coventry, CV2 2DX

References

Visible links
1. mailto:[email address]
2. mailto:[email address]

Dear Freedom Of Information (RKB),

Thanks for your response.

Yours sincerely,

Martin Butcher