Dear Shrewsbury and Telford Hospital NHS Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

Info SaTH, The Shrewsbury and Telford Hospital NHS Trust

Thank you for contacting The Shrewsbury and Telford Hospital NHS Trust.

 

This email account is monitored from 9am until 4.30pm Monday-Friday.

 

We aim to respond to all enquiries within 48 hours Monday-Friday.

 

If your enquiry is urgent or relates to an appointment, please use the
contact details on your appointment letter to ensure it is dealt with
appropriately.

 

If your enquiry relates to recruitment, volunteering or work experience
please visit the “Working With Us” section of our website at:
[1]https://www.sath.nhs.uk/working-with-us/

 

References

Visible links
1. https://www.sath.nhs.uk/working-with-us/

Cole Sophie, The Shrewsbury and Telford Hospital NHS Trust

3 Attachments

Dear Ms Butcher,

 

Thank you for your request for information.

 

The Trust acknowledges your request and it is being processed as a new
request under the terms of the Freedom of Information Act 2000.

 

In some circumstances a fee may be payable and if that is the case, I will
let you know. A fees notice will be issued to you if necessary and you
will be required to pay before I will proceed to deal with your
request.                                                                            

                                                                  

Please find attached a briefing which explains:

 

o your rights to request a review by the Trust or to complain to the
Information Commissioner’s Office if you are not satisfied with the
response from the Trust,
o an outline of the Trust’s policy on the Reuse of Public Sector
Information

 

If you have any queries regarding this email, please contact me and quote
the reference number above in any future correspondence.

 

 

Kind regards,

Sophie Cole

 

[1]Description: Description: Description: Description: Description:
Description: Description: Description: cid:image001.png@01CF9543.36AA4670

Sophie Cole [4]Description: Description:
Description: Description: Description:
Assurance Team and Freedom of Description: Description: Description:
Information Administrator Description: Description:
cid:image001.jpg@01D051EC.FFAC2D70
 

Suite 2, Stretton House|

The Shrewsbury and Telford
Hospital NHS Trust | Royal
Shrewsbury Hospital | Mytton Oak
Road | Shrewsbury | Shropshire |
SY3 8XQ

 

Telephone 01743 261087

Email [2][email address]

FOI email [3][The Shrewsbury and Telford Hospital NHS Trust request email]

 

 

 

 

This message may contain confidential information. If you are not the
intended recipient please inform the sender that you have received the
message in error before deleting it. Please do not disclose, copy or
distribute information in this e-mail or take any action in relation to
its contents: to do so is strictly prohibited and may be unlawful.

 

 

 

 

 

 

 

 

 

show quoted sections

Cole Sophie, The Shrewsbury and Telford Hospital NHS Trust

3 Attachments

Dear Ms Butcher,

 

Thank you for your FOI request sent on 23^rd July 2018. You asked:

     

 

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK ([1]www.nofas-uk.org) to make a
request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the
organisation and other experts to frame and shape this research project and to analyse the information we receive.

 

Background

 

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide
guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that
“Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the
secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.
[Hansard, Written Question HL5052, 10 February 2017.  
[2]https://www.parliament.uk/business/publi...

 

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing
for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written
Answer, 18 July 2017,
[3]https://www.parliament.uk/business/publi... In
response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have
a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can
help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning
these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary
Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018.
[4]https://www.parliament.uk/business/publi...

 

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS),
Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial
Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

 

Request for Information

 

In light of the above information I would like to ask you to provide:

1)            Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care
pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.

2)            Any information you hold on services your Trust provided for FASD for

a.            prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink
while pregnant or attempting to become pregnant;

b.            diagnosis for both children and adults;

c.             post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.

3)            Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services
for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not
limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for
patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.

4)            Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your
personnel.

5)            Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey
([5]https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in
2018, and if so, how many in each year?

6)            What was your budget for services for FASD in each financial year since that starting in 2013 and including the
current financial year?

7)            Please provide copies of any agreed plans you have to expand the budget or services in coming years.

If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please
respond to as many of the numbered items as possible within the limit, in the order they have been presented.

 

 

Under Section 1(1)(a) of the Freedom of Information Act 2000, I can
confirm that The Shrewsbury and Telford Hospital NHS Trust does not hold
the information that falls within the definition in your request. This is
because Foetal Alcohol Spectrum Disorders are treated and looked after in
the community. We therefore recommend that you redirect you request to the
Shropshire Community Health Trust,
[6]http://www.shropscommunityhealth.nhs.uk/

 

Our Maternity Service provides a Pregnancy Information Document,
[7]https://www.sath.nhs.uk/wp-content/uploa...
which gives guidance on drinking on pages 15-17.

 

Please also find attached a briefing which explains your rights to request
a review by the Trust or to complain to the Information Commissioner’s
Office if you are not satisfied with the response from the Trust, and an
outline of the Trust’s policy on the Reuse of Public Sector Information.

 

If you have any queries regarding this email, please contact the Freedom
of Information Officer via [8][The Shrewsbury and Telford Hospital NHS Trust request email] and quote the reference
number above in any future correspondence. If you would like to give
feedback please visit [9]https://www.surveymonkey.co.uk/r/DXTP8QQ for our
short questionnaire.

 

Kind regards,

Sophie Cole

 

[10]Description: Description: Description: Description: Description:
Description: cid:image001.png@01CF9543.36AA4670

Sophie Cole [13]Description: Description:
Description: Description: Description:
Assurance Team and Freedom of Description: Description: Description:
Information Administrator cid:image001.jpg@01D051EC.FFAC2D70

 

Suite 2, Stretton House|

The Shrewsbury and Telford
Hospital NHS Trust | Royal
Shrewsbury Hospital | Mytton Oak
Road | Shrewsbury | Shropshire |
SY3 8XQ

 

Telephone 01743 261087

Email [11][email address]

FOI email [12][The Shrewsbury and Telford Hospital NHS Trust request email]

 

 

 

 

This message may contain confidential information. If you are not the
intended recipient please inform the sender that you have received the
message in error before deleting it. Please do not disclose, copy or
distribute information in this e-mail or take any action in relation to
its contents: to do so is strictly prohibited and may be unlawful.

 

 

 

 

 

 

 

 

 

 

show quoted sections

Dear Cole Sophie,

Thanks for your response.

Yours sincerely,

MArtin Butcher

Looking for an EU Authority?

You can request documents directly from EU Institutions at our sister site AskTheEU.org . Find out more .

AskTheEU.org