Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to Royal Berkshire NHS Foundation Trust as part of a batch sent to 25 authorities

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

The request was successful.

Dear Royal Berkshire NHS Foundation Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

FOI, Royal Berkshire NHS Foundation Trust

Dear Ms Butcher,

We acknowledge your enquiry under the Freedom of Information Act. I will look into your request and respond within 20 working days from receipt of your request.

Yours sincerely,

Freedom Of Information Team
Royal Berkshire NHS Foundation Trust
Tel: 0118 322 6743/7405
Email: [Royal Berkshire NHS Foundation Trust request email]

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FOI, Royal Berkshire NHS Foundation Trust

1 Attachment

Dear Ms Butcher

 

Further to your request for information please find below response.

 

1)            Copies of any policies that the Trust has on the prevention
of FASD, and on the diagnosis and post-diagnostic care pathway for
patients with an FASD. Also your policy on the training of Trust personnel
to manage patients with FASD.

The Trust has no internal policies or guidelines on diagnosis or
post-diagnosis of FASD.  Internal training is regularly provided for
paediatric (Neonatal, Acute and Community) department.  The attached
Antenatal Care Guideline does cover prevention in section 7.4.2.

 

2)            Any information you hold on services your Trust provided for
FASD for prevention education following the 2016 Chief Medical Officers’
guidelines that the safest course is not to drink while pregnant or
attempting to become pregnant;

a.            Section 7.4.2 on page 18 of the attached Antenatal Care
Guideline covers this.

 

b.            diagnosis for both children and adults;

The condition may be considered in children we review with
neurodevelopmental concerns.  Departmental staff are all aware of the
condition.  There is no specialist service for FASD diagnosis within the
Trust.

 

c.            post-diagnostic care in the financial years beginning 2013,
2014, 2015, 2016, 2017 and 2018.

This information is not held by the Trust

 

3)            Information on the number of Doctors in your Trust who
currently provide diagnostic and/or post-diagnostic services for FASD?
Please provide their names and posts. Whether your Trust employs
specifically trained professionals, including but not limited to nurses,
psychologists, occupational therapists and speech and language therapists,
to provide specialised services for patients on the FASD spectrum? If so,
in what specialties, and how many? Please provide their names and posts.

                This care is provided by other services such as Children &
Adolescence Mental Health Services.

 

4)            Information on training provided to personnel in your Trust
on FASD, or provided by others and accessed by your personnel.

Internal training is regularly provided for paediatric (Neonatal, Acute
and Community).  This is also regularly covered at the British Association
for Community Child Health training days.

 

5)            Information you hold on whether your Trust sends patients
for FASD diagnosis to the National FASD Clinic in Surrey
([1]https://www.fasdclinic.com/)? Did your refer any patients to the
National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and
if so, how many in each year?

This data is not recorded by the Trust.

 

6)            What was your budget for services for FASD in each financial
year since that starting in 2013 and including the current financial year?

There is no specific budget for this within the Trust

 

7)            Please provide copies of any agreed plans you have to expand
the budget or services in coming years.

There are no plans to make any changes to the service we provide in this
space.

 

Yours sincerely,

 

Freedom Of Information Team

Royal Berkshire NHS Foundation Trust

Tel: 0118 322 6743/7405

Email: [2][Royal Berkshire NHS Foundation Trust request email]

 

 

 

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Dear FOI,

Thanks for your response.

Yours sincerely,

Martin Butcher