Dear North Bristol NHS Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

Freedom of Information, North Bristol NHS Trust

Dear Sandra,

Thank you for your request for information under the terms in the Freedom of Information Act 2000. Your request has been forwarded to the appropriate department for consideration and will be responded to within 20 working days.

Reference number: 4984-07-18

Kind Regards
Sandra

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Sandra Carter
Workforce Information Assistant, Business Intelligence Team, IM&T
Tues, Wed, Thurs 7am – 1pm
Annual Leave Notice:
Christopher Hancock Building, Southmead Hospital
North Bristol NHS Trust, Bristol, BS10 5NB
T: 0117 4142364
E: [email address]

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Freedom of Information, North Bristol NHS Trust

Dear Sandra,

Thank you for your request for information of 23rd July 2018. In compliance with the Freedom of Information Act 2000, our response is below.

1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
Midwives screen women for alcohol intake at booking appointment. Any concerns are referred to the specialist drug and alcohol service in Bristol. No specific policy relating to FSAD

2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
All women are advised re drinking alcohol in pregnancy in line with national guidelines
b. diagnosis for both children and adults;
We may detect a baby after birth who has features in keeping with fetal alcohol syndrome and whom we would then have further conversations with the mother about potential risks posed from the pregnancy. Such children (rare) would be referred to community services.
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
All patients would be diagnosed at Bristol Children’s Hospital and care provided by another Trust as we do not provide any paediatric services other than 2 year follow up of babies that have been on our Neonatal Unit

3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
None

4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
No training specific to FSAD. Mandatory safeguarding training provided to all staff covers substance misuse and the care of any adults with cognitive deficit/impairment/learning disabilities related to capacity

5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
None As per answer to Q.2c

6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
None

7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
As per response to Q6 – no budget.

Many apologies for the delay in replying to this FOI.

Your request has been fully discharged, but I should be pleased to offer any further assistance that you may require.

We should advise that you have the right to complain about this response by reference to the complaints procedure of the North Bristol NHS Trust, in which case you should write to:

Advice & Complaints Team (ACT)
Beaufort House,
Beaufort Way,
Southmead Hospital,
Southmead,
Bristol BS10 5NB

Email: [email address]

If you remain dissatisfied with the decision of North Bristol NHS Trust following your complaint, you may write to the Information Commissioner, whose address is:

Information Commissioner's Office
Wycliffe House
Water Lane
Wilmslow
Cheshire SK9 5AF

The Trust asks that you note, that the information you have been supplied may be subject to the Copyright, Designs & Patents Act 1988. You may re-use the information provided for personal use, (not including logos), free of charge in any format or medium. However, you must re-use it accurately and not in a misleading context. You must acknowledge the information as North Bristol NHS Trust copyright and give the title of the document/publication. Where we have identified any third party copyright material you will need to obtain permission from the copyright holders concerned.

Regards
Sandra

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Sandra

Sandra Carter
Workforce Information Assistant, Business Intelligence Team, IM&T
Tues, Wed, Thurs 7am – 1pm
Annual Leave Notice: 04th – 11th September
Christopher Hancock Building, Southmead Hospital
North Bristol NHS Trust, Bristol, BS10 5NB
T: 0117 4142364
E: [email address]

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