Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to Mid Essex Hospital Services NHS Trust as part of a batch sent to 25 authorities

This request has been closed to new correspondence. Contact us if you think it should be reopened.

The request was partially successful.

Dear Mid Essex Hospital Services NHS Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

MEHT FOI (RQ8) Mid Essex Hospital, Mid Essex Hospital Services NHS Trust

 Dear Requester

Thank you for your email and request for information.

Your request has been acknowledged. 
 
Normal Freedom of Information timescales apply from receipt of your
request (20 working days) into this MEHT FOI mailbox.

We look forward to dealing with your request.

Please contact [1][Mid Essex Hospital Services NHS Trust request email] with any queries.

With kind regards
Rebecca Pascoe and Liz Stewart
Public Information Manager

Information in this message may contain confidential and privileged
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References

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1. mailto:[Mid Essex Hospital Services NHS Trust request email]

MEHT FOI (RQ8) Mid Essex Hospital, Mid Essex Hospital Services NHS Trust

Good afternoon

Thank you for your request for information under the Freedom of Information Act.

Please accept our sincere apologies for the delay you have incurred in receiving this response.

Please find our response attached / beneath.

Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD. – Trust’s clinical guidelines 06055 Drugs and Alcohol Misuse in Pregnancy
http://www.meht.nhs.uk/about-us-/policie...

2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults; - The amount of alcohol units consumed per week for the woman and her partner is asked at the initial pregnancy booking interview by the booking Midwife, any excessive amount reported generates a vulnerable women’s alert to the Trust’s Safeguarding team. Information is given in line with NHS Public Health England
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018. – We do not provide a follow up service

3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts. Personal details are withheld by reason of Section 40 of the Act. We do not provide a follow up service

4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel. No specific training provided

5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year? This data is unavailable

6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year? There is no separate budget

7) Please provide copies of any agreed plans you have to expand the budget or services in coming years. Not applicable

If you are not satisfied with this response you may request an independent internal review by a senior member of the Trust staff who has had no involvement in dealing with your request. We aim to deal with FOI appeals within 20 days of receipt. Emails should be clearly marked ‘Internal Review ' and sent to [email address] Should you remain dissatisfied after this internal review, you will have a right of complaint to the Information Commissioner. Further information is available at: Information Commissioner's Office Wycliffe House Water Lane Wilmslow Cheshire SK95AF Telephone: 01625 545 700 - www.informationcommissioner.gov.uk

If you have any other queries please do not hesitate to contact me again.

Rebecca
Rebecca Pascoe-Youell

Public Information Manager
Corporate Department

Freedom of Information Requests to be emailed to: [email address]
South Wing - Level 3, Room 5, B346
01245 51(4536) [email address]

Normal working days - Wednesday and Thursday
(Liz Stewart – Monday, Tuesday and Friday)

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