Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to County Durham and Darlington NHS Foundation Trust as part of a batch sent to 25 authorities

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

The request was successful.

Dear County Durham and Darlington NHS Foundation Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

cddftFOI (COUNTY DURHAM AND DARLINGTON NHS FOUNDATION TRUST), County Durham and Darlington NHS Foundation Trust

1 Attachment

Our reference: 07.18.32

 

 

Dear Ms Butcher,

 

Freedom of Information Act 2000 – Acknowledgement.

 

I acknowledge your request for information received on 23 July 2018.

 

Your request is being considered and a response will be sent to you
promptly and not later than 20 working days as defined by the Freedom of
Information Act 2000.

 

If appropriate, the information may be provided in electronic medium in
normal font size.  If you require alternative formats such as large print
or paper format, please let me know.

 

If you have any queries or concerns, please contact me at the email
address above.

 

Further information is available from the Office of the Information
Commissioner at:

 

Information Commissioner's Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

SK9 5AF

 

 

 

 

Kind Regards

Linda Wilson

 

For and on behalf of Joanna Tyrrell, FOI Officer

+------------------------------------------------------------------------+
|  |
| |
|County Durham and Darlington NHS Foundation Trust |
|------------------------------------------------------------------------|
|Linda Wilson | |Trust Headquarters |
| | | |
|Corporate Records Assistant | |Darlington Memorial Hospital |
| | |Hollyhurst Road |
|  | |Darlington |
| | |County Durham |
|  | |DL3 6HX |
| | |Switchboard Tel: 01325 380 100|
|  | | |
| | |Direct Ext 43700 |
|  | | |
| | |[2][email address] |
|  | | |
| | |[3]www.cddft.nhs.uk |
|  | | |
| | | |
|[1]Description: Description: | | |
|Description: | | |
|cid:image001.png@01CFD979.6A882050 | | |
+------------------------------------------------------------------------+

 

This email and any files attached to it may be of a confidential nature,
and are only to be opened by the intended recipient. If you receive this
email by error please notify the sender immediately. This email is from
County Durham and Darlington NHS Foundation Trust and any opinions
expressed in it are those of the author and do not necessarily reflect the
opinions of the Trust. The contents of any email even if marked
confidential, may be disclosed in accordance with the Freedom of
Information Act 2000 and Data Protection Act 1998.

 

 

 

 

 

 

 

 

 

show quoted sections

cddftFOI (COUNTY DURHAM AND DARLINGTON NHS FOUNDATION TRUST), County Durham and Darlington NHS Foundation Trust

5 Attachments

Dear Ms Butcher

 

 

Please find attached the response to your request for information under
the Freedom of Information Act.

 

I have also attached a copy of our client satisfaction survey and would be
most grateful if you could please take two minutes of your time to
complete it and email it back to me.

 

 

Kind Regards

Linda Wilson

 

For and on behalf of Joanna Tyrrell, FOI Officer

+------------------------------------------------------------------------+
|  |
| |
|County Durham and Darlington NHS Foundation Trust |
|------------------------------------------------------------------------|
|Linda Wilson | |Trust Headquarters |
| | | |
|Corporate Records Assistant | |Darlington Memorial Hospital |
| | |Hollyhurst Road |
|  | |Darlington |
| | |County Durham |
|  | |DL3 6HX |
| | |Switchboard Tel: 01325 380 100|
|  | | |
| | |Direct Ext 44178 |
|  | | |
| | |[2][email address] |
|  | | |
| | |[3]www.cddft.nhs.uk |
|  | | |
| | | |
|[1]Description: Description: | | |
|Description: | | |
|cid:image001.png@01CFD979.6A882050 | | |
+------------------------------------------------------------------------+

 

This email and any files attached to it may be of a confidential nature,
and are only to be opened by the intended recipient. If you receive this
email by error please notify the sender immediately. This email is from
County Durham and Darlington NHS Foundation Trust and any opinions
expressed in it are those of the author and do not necessarily reflect the
opinions of the Trust. The contents of any email even if marked
confidential, may be disclosed in accordance with the Freedom of
Information Act 2000 and Data Protection Act 1998.

 

 

 

 

 

 

show quoted sections