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Services for Foetal Alcohol Spectrum Disorders

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Dear University Hospitals Bristol NHS Foundation Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background
In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

Freedom Of Info, University Hospitals Bristol NHS Foundation Trust

Dear Sandra,
I am writing to you on behalf of the University Hospitals Bristol NHS
Foundation Trust. We are undertaking a review of our Freedom of
Information requests, and we have identified that you submitted a request
to us last year, on 23 July 2018, which we do not believe we ever provided
a response to.
Please accept our sincere apologies for the delay in replying to you.
Given the time delay since you first submitted this request, I am writing
to confirm whether you still require this information. If you still need a
response from us, please get in touch. Once we have confirmation from you
that you would like this to be actioned, we will ensure a response is
provided as quickly as possible.

Again, please accept my apologies for our failure to get back to you
previously.
 
 
Kind Regards
 
Konstantinia Tzimouli
FOI & Information Governance Administrator
Trust Headquarters – Marlborough Street
University Hospitals Bristol NHS Foundation Trust
Email: [1][email address]
Internal: x21578 External: 0117 342 1578
 
My working pattern is Tuesday, Wednesday, Friday
P Think before you print - please consider the environment before
printing this e-mail.
 
 
_____________________________________________
From: Sandra Butcher <[FOI #500556 email]>
Sent: 23 July 2018 13:15
To: Freedom Of Info <[email address]>
Subject: Freedom of Information request - Services for Foetal Alcohol
Spectrum Disorders
 
 
Women's and Children's (no policy on DMS FYI)
 
Dear University Hospitals Bristol NHS Foundation Trust,
 
I am writing as a volunteer researcher for the National Organisation for
Foetal Alcohol Syndrome-UK ([2]www.nofas-uk.org) to make a request for
information under the Freedom of Information Act. I am working in
cooperation with an ad hoc group of leaders from the organisation and
other experts to frame and shape this research project and to analyse the
information we receive.
 
Background
In February 2017, Lord Boateng asked the government “what assessment they
have made of the measures adopted in Scotand which provide guidance and
support for children and young adults affected by foetal alcohol spectrum
disorders.” Lord O’Shaughnessy replied that “Early intervention services
can help reduce some of the effects of Foetal Alcohol Spectrum Disorders
(FASD) and prevent some of the secondary disabilities that result.
Responsibility for commissioning these services lies with clinical
commissioning groups. [Hansard, Written Question HL5052, 10 February
2017.  
[3]https://www.parliament.uk/business/publi...
 
This government policy was reiterated in July 2017 when Lord
Campbell-Savours asked the government “what support they are providing for
persons whose condition has been described as foetal alcohol spectrum
disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July
2017,
[4]https://www.parliament.uk/business/publi...
In response, Lord O’Shaughnessy for the government wrote that “It is
recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a
significant impact on the early development of children, their behaviours
and their life chances. Early intervention services can help reduce some
of the effects of FASD and prevent some of the secondary disabilities that
result. Responsibility for commissioning these services lies with clinical
commissioning groups.” This was again repeated on 8 May 2018 by Steve
Brine, Parliamentary Under-secretary at the Department of Health and
Social Care. [Hansard, Written Question 139045, 8 May 2018.
[5]https://www.parliament.uk/business/publi...
 
The following conditions fall under the Foetal Alcohol Spectrum Disorder
(FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related
Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD),
Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS))
or neurodevelopmental disorders linked to prenatal alcohol exposure
(NDPAE)
 
Request for Information
 
In light of the above information I would like to ask you to provide:
1)      Copies of any policies that the Trust has on the prevention of
FASD, and on the diagnosis and post-diagnostic care pathway for patients
with an FASD. Also your policy on the training of Trust personnel to
manage patients with FASD.
2)      Any information you hold on services your Trust provided for FASD
for
a.      prevention education following the 2016 Chief Medical Officers’
guidelines that the safest course is not to drink while pregnant or
attempting to become pregnant;
b.      diagnosis for both children and adults;
c.      post-diagnostic care in the financial years beginning 2013, 2014,
2015, 2016, 2017 and 2018.
3)      Information on the number of Doctors in your Trust who currently
provide diagnostic and/or post-diagnostic services for FASD? Please
provide their names and posts. Whether your Trust employs specifically
trained professionals, including but not limited to nurses, psychologists,
occupational therapists and speech and language therapists, to provide
specialised services for patients on the FASD spectrum? If so, in what
specialties, and how many? Please provide their names and posts.
4)      Information on training provided to personnel in your Trust on
FASD, or provided by others and accessed by your personnel.
5)      Information you hold on whether your Trust sends patients for FASD
diagnosis to the National FASD Clinic in Surrey
([6]https://www.fasdclinic.com/)? Did your refer any patients to the
National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and
if so, how many in each year?
6)      What was your budget for services for FASD in each financial year
since that starting in 2013 and including the current financial year?
7)      Please provide copies of any agreed plans you have to expand the
budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs
of responding exceeding the statutory limits then please respond to as
many of the numbered items as possible within the limit, in the order they
have been presented.
 
Yours faithfully,
 
Sandra Butcher
 
-------------------------------------------------------------------
 
Please use this email address for all replies to this request:
[7][FOI #500556 email]
 
Is [8][University Hospitals Bristol NHS Foundation Trust request email] the wrong address for Freedom of
Information requests to University Hospitals Bristol NHS Foundation Trust?
If so, please contact us using this form:
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the internet. Our privacy and copyright policies:
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For more detailed guidance on safely disclosing information, read the
latest advice from the ICO:
[11]https://www.whatdotheyknow.com/help/ico-...
 
Please note that in some cases publication of requests and responses will
be delayed.
 
If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.
 
 
-------------------------------------------------------------------
 
 

References

Visible links
1. mailto:[email address]
2. http://www.nofas-uk.org/
3. https://www.parliament.uk/business/publi...
4. https://www.parliament.uk/business/publi...
5. https://www.parliament.uk/business/publi...
6. https://www.fasdclinic.com/
7. mailto:[FOI #500556 email]
8. mailto:[University Hospitals Bristol NHS Foundation Trust request email]
9. https://www.whatdotheyknow.com/change_re...
10. https://www.whatdotheyknow.com/help/offi...
11. https://www.whatdotheyknow.com/help/ico-...

Dear Freedom Of Info,

Hi there

We would be grateful if you could reply, we don't have a record of a response.

Yours sincerely,

Sandra Butcher

Freedom Of Info, University Hospitals Bristol NHS Foundation Trust



Thank you for your email and request for information under the Freedom of
Information Act.

Your request has been acknowledged. Normal Freedom of Information
timescales apply from receipt of your request (20 working days) into this
FOI mailbox.

We look forward to dealing with your request. Please
contact [email address] with any queries.

With kind regards

FOI Team

University Hospitals Bristol NHS Foundation Trust

Tzimouli, Konstantinia, University Hospitals Bristol NHS Foundation Trust

1 Attachment

Dear Sir/Madam

 

Thank you for your request for information under the Freedom of
Information Act 2000.  Please accept our apology for the time it has taken
to respond to your request.

Please find attached the response to your questions.

 

 

Kind Regards,

 

FOI & Information Governance Administrator

Trust Headquarters – Marlborough Street

University Hospitals Bristol NHS Foundation Trust

 

My working pattern is Tuesday, Wednesday, Friday

P Think before you print - please consider the environment before
printing this e-mail.

 

 

 

_____________________________________________
From: Sandra Butcher <[1][FOI #500556 email]>
Sent: 23 July 2018 13:15
To: Freedom Of Info <[2][email address]>
Subject: Freedom of Information request - Services for Foetal Alcohol
Spectrum Disorders

 

 

Dear University Hospitals Bristol NHS Foundation Trust,

 

I am writing as a volunteer researcher for the National Organisation for
Foetal Alcohol Syndrome-UK ([3]www.nofas-uk.org) to make a request for
information under the Freedom of Information Act. I am working in
cooperation with an ad hoc group of leaders from the organisation and
other experts to frame and shape this research project and to analyse the
information we receive.

 

Background

In February 2017, Lord Boateng asked the government “what assessment they
have made of the measures adopted in Scotand which provide guidance and
support for children and young adults affected by foetal alcohol spectrum
disorders.” Lord O’Shaughnessy replied that “Early intervention services
can help reduce some of the effects of Foetal Alcohol Spectrum Disorders
(FASD) and prevent some of the secondary disabilities that result.
Responsibility for commissioning these services lies with clinical
commissioning groups. [Hansard, Written Question HL5052, 10 February
2017.  
[4]https://www.parliament.uk/business/publi...

 

This government policy was reiterated in July 2017 when Lord
Campbell-Savours asked the government “what support they are providing for
persons whose condition has been described as foetal alcohol spectrum
disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July
2017,
[5]https://www.parliament.uk/business/publi...
In response, Lord O’Shaughnessy for the government wrote that “It is
recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a
significant impact on the early development of children, their behaviours
and their life chances. Early intervention services can help reduce some
of the effects of FASD and prevent some of the secondary disabilities that
result. Responsibility for commissioning these services lies with clinical
commissioning groups.” This was again repeated on 8 May 2018 by Steve
Brine, Parliamentary Under-secretary at the Department of Health and
Social Care. [Hansard, Written Question 139045, 8 May 2018.
[6]https://www.parliament.uk/business/publi...

 

The following conditions fall under the Foetal Alcohol Spectrum Disorder
(FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related
Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD),
Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS))
or neurodevelopmental disorders linked to prenatal alcohol exposure
(NDPAE)

 

Request for Information

 

In light of the above information I would like to ask you to provide:

1)            Copies of any policies that the Trust has on the prevention
of FASD, and on the diagnosis and post-diagnostic care pathway for
patients with an FASD. Also your policy on the training of Trust personnel
to manage patients with FASD.

2)            Any information you hold on services your Trust provided for
FASD for

a.            prevention education following the 2016 Chief Medical
Officers’ guidelines that the safest course is not to drink while pregnant
or attempting to become pregnant;

b.            diagnosis for both children and adults;

c.             post-diagnostic care in the financial years beginning 2013,
2014, 2015, 2016, 2017 and 2018.

3)            Information on the number of Doctors in your Trust who
currently provide diagnostic and/or post-diagnostic services for FASD?
Please provide their names and posts. Whether your Trust employs
specifically trained professionals, including but not limited to nurses,
psychologists, occupational therapists and speech and language therapists,
to provide specialised services for patients on the FASD spectrum? If so,
in what specialties, and how many? Please provide their names and posts.

4)            Information on training provided to personnel in your Trust
on FASD, or provided by others and accessed by your personnel.

5)            Information you hold on whether your Trust sends patients
for FASD diagnosis to the National FASD Clinic in Surrey
([7]https://www.fasdclinic.com/)? Did your refer any patients to the
National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and
if so, how many in each year?

6)            What was your budget for services for FASD in each financial
year since that starting in 2013 and including the current financial year?

7)            Please provide copies of any agreed plans you have to expand
the budget or services in coming years.

If you are considering rejecting this request on the grounds of the costs
of responding exceeding the statutory limits then please respond to as
many of the numbered items as possible within the limit, in the order they
have been presented.

 

Yours faithfully,

 

Sandra Butcher

 

-------------------------------------------------------------------

 

Please use this email address for all replies to this request:

[8][FOI #500556 email]

 

Is [9][University Hospitals Bristol NHS Foundation Trust request email] the wrong address for Freedom of
Information requests to University Hospitals Bristol NHS Foundation Trust?
If so, please contact us using this form:

[10]https://www.whatdotheyknow.com/change_re...

 

Disclaimer: This message and any reply that you make will be published on
the internet. Our privacy and copyright policies:

[11]https://www.whatdotheyknow.com/help/offi...

 

For more detailed guidance on safely disclosing information, read the
latest advice from the ICO:

[12]https://www.whatdotheyknow.com/help/ico-...

 

Please note that in some cases publication of requests and responses will
be delayed.

 

If you find this service useful as an FOI officer, please ask your web
manager to link to us from your organisation's FOI page.

 

 

-------------------------------------------------------------------

 

References

Visible links
1. mailto:[FOI #500556 email]
2. mailto:[email address]
3. http://www.nofas-uk.org/
4. https://www.parliament.uk/business/publi...
5. https://www.parliament.uk/business/publi...
6. https://www.parliament.uk/business/publi...
7. https://www.fasdclinic.com/
8. mailto:[FOI #500556 email]
9. mailto:[University Hospitals Bristol NHS Foundation Trust request email]
10. https://www.whatdotheyknow.com/change_re...
11. https://www.whatdotheyknow.com/help/offi...
12. https://www.whatdotheyknow.com/help/ico-...

We don't know whether the most recent response to this request contains information or not – if you are Sandra Butcher please sign in and let everyone know.