Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to Great Ormond Street Hospital for Children NHS Foundation Trust as part of a batch sent to 25 authorities

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

Response to this request is long overdue. By law, under all circumstances, Great Ormond Street Hospital for Children NHS Foundation Trust should have responded by now (details). You can complain by requesting an internal review.

Dear Great Ormond Street Hospital for Children NHS Foundation Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Martin Butcher

FOITeam, Great Ormond Street Hospital for Children NHS Foundation Trust

Thank you for contacting the Freedom of Information team at Great Ormond
Street Hospital for Children NHS Foundation Trust.
Your request will be managed in accordance with the Freedom of Information
Act 2000.  We will aim to respond to your query within 20 working days
from the date in which we have received your request.
You will be sent a reference number for your information request which
should be quoted during in further correspondence regarding your enquiry.
If you have any questions then please do not hesitate to contact us.
Many thanks,
The FOI Team
Great Ormond Street Hospital.
[email address]

FOITeam, Great Ormond Street Hospital for Children NHS Foundation Trust

Date: 23 July 2018
Our reference: FOIRQ4686

Dear Sir/Madam,

Thank you for your request to Great Ormond Street Hospital NHS Foundation Trust on 23/07/2018, which we received on 23/07/2018.

Your request for information is being processed as a freedom of information request and you should expect to receive a response by 16/08/2018.

Should it be necessary to apply a fee for providing the information requested we will issue a fees notification before releasing any information.

If we anticipate any delays in responding to your request we will notify you in writing, stating the reasons for this and the date by which we expect to respond.

Your email will be used by Great Ormond Street Hospital for Children NHS Foundation Trust for the purpose of processing your request.

The information you provide will be recorded for reference and may also be used to monitor and review our Freedom of Information systems, processes and policy.

Should you require any further information in the interim please do not hesitate to contact us quoting the reference above.

Yours sincerely,

Freedom of Information Team
Great Ormond Street Hospital NHS Foundation Trust
[Great Ormond Street Hospital for Children NHS Foundation Trust request email]

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Dear Great Ormond Street Hospital for Children NHS Foundation Trust,

Please pass this on to the person who conducts Freedom of Information reviews.

I am writing to request an internal review of Great Ormond Street Hospital for Children NHS Foundation Trust's handling of my FOI request 'Services for Foetal Alcohol Spectrum Disorders'.

A reposnse is long overdue and we would be grateful for a reply.

A full history of my FOI request and all correspondence is available on the Internet at this address: https://www.whatdotheyknow.com/request/s...

Yours faithfully,

Sandra Butcher

FOITeam, Great Ormond Street Hospital for Children NHS Foundation Trust

Dear Ms Butcher

 

Further to your email requesting an internal review, we have not received
confirmation of your FOI reference number.

 

As soon as you have confirmed the FOI Reference number, we can transfer
your request to the internal review process.

 

Yours sincerely,

 

Freedom of Information Team

Great Ormond Street Hospital NHS Foundation Trust

[Great Ormond Street Hospital for Children NHS Foundation Trust request email]

 

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Dear FOITeam,

Sorry. Your reference is FOIRQ4686

Yours sincerely,

Sandra Butcher

FOITeam, Great Ormond Street Hospital for Children NHS Foundation Trust

Dear Ms Butcher

 

Thank you for your email confirming that FOI reference number FOIRQ4686 is
the relevant reference number. I shall now transfer your request to the
relevant team dealing with the internal review on your behalf.

 

Yours sincerely,

 

Freedom of Information Team

Great Ormond Street Hospital NHS Foundation Trust

[Great Ormond Street Hospital for Children NHS Foundation Trust request email]

 

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