Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to Midlands Partnership NHS Foundation Trust as part of a batch sent to 25 authorities

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

Midlands Partnership NHS Foundation Trust did not have the information requested.

Dear Midlands Partnership NHS Foundation Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Sandra Butcher

FOI (RRE) MPFT, Midlands Partnership NHS Foundation Trust

Dear Ms Butcher

I write to acknowledge receipt of your email in which you requested information under the FOI Act 2000.
Your request is being considered and you will receive a response within the statutory timescale of 20 working days, from the date of receipt, as defined by the Freedom of Information Act 2000.
The Act defines a number of exemptions which may prevent release of the information you have requested. There will be an assessment and if any of the exemption categories apply then the information will not be released. You will be informed if this is the case within 20 working days, together with your rights of appeal.
If the information you are requesting contains reference to a third party then they may be consulted prior to a decision being taken on whether or not to release the information to you. You will be informed within 20 working days if this is the case.
If you have any queries or concerns, please do not hesitate to contact me. May l ask that you quote the above reference number on all your correspondence.
PLEASE NOTE: As of 1st June 2018 South Staffordshire and Shropshire Healthcare NHS Foundation Trust has merged with Staffordshire and Stoke-on-Trent Partnership NHS Trust to become Midlands Partnership Foundation Trust.
Yours sincerely

Hannah Rogers
FOI Officer
Midlands Partnership Foundation Trust
Trust HQ,
St George’s Hospital
Corporation Street
Stafford
ST16 3AG
Tel: 01785 221104 Ext 712 8278
Email: [email address]

show quoted sections

FOI (RRE) MPFT, Midlands Partnership NHS Foundation Trust

3 Attachments

Dear Ms. Butcher,

Further to your recent request made under the Freedom of Information Act
2000, please see detailed below the Trust’s response:

I am writing as a volunteer researcher for the National Organisation for
Foetal Alcohol Syndrome-UK ([1]www.nofas-uk.org) to make a request for
information under the Freedom of Information Act. I am working in
cooperation with an ad hoc group of leaders from the organisation and
other experts to frame and shape this research project and to analyse the
information we receive.

 

Background

 

In February 2017, Lord Boateng asked the government “what assessment they
have made of the measures adopted in Scotand which provide guidance and
support for children and young adults affected by foetal alcohol spectrum
disorders.” Lord O’Shaughnessy replied that “Early intervention services
can help reduce some of the effects of Foetal Alcohol Spectrum Disorders
(FASD) and prevent some of the secondary disabilities that result.
Responsibility for commissioning these services lies with clinical
commissioning groups. [Hansard, Written Question HL5052, 10 February
2017.  
[2]https://www.parliament.uk/business/publi...

 

This government policy was reiterated in July 2017 when Lord
Campbell-Savours asked the government “what support they are providing for
persons whose condition has been described as foetal alcohol spectrum
disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July
2017,
[3]https://www.parliament.uk/business/publi...
In response, Lord O’Shaughnessy for the government wrote that “It is
recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a
significant impact on the early development of children, their behaviours
and their life chances. Early intervention services can help reduce some
of the effects of FASD and prevent some of the secondary disabilities that
result. Responsibility for commissioning these services lies with clinical
commissioning groups.” This was again repeated on 8 May 2018 by Steve
Brine, Parliamentary Under-secretary at the Department of Health and
Social Care. [Hansard, Written Question 139045, 8 May 2018.
[4]https://www.parliament.uk/business/publi...

 

The following conditions fall under the Foetal Alcohol Spectrum Disorder
(FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related
Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD),
Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS))
or neurodevelopmental disorders linked to prenatal alcohol exposure
(NDPAE)

 

Request for Information

 

In light of the above information I would like to ask you to provide:

 

1)Copies of any policies that the Trust has on the prevention of FASD, and
on the diagnosis and post-diagnostic care pathway for patients with an
FASD. Also your policy on the training of Trust personnel to manage
patients with FASD.

 

We do not treat patients with Foetal Alcohol Syndrome. Midlands
Partnership NHS Foundation Trust provides physical and mental health,
learning disability and adult social care services across Staffordshire,
Stoke-on-Trent and Shropshire. We provide a vast range of community
services for adults and children and specialised services such as
rheumatology and rehabilitation, which are delivered in venues ranging
from health centres, GP practices, community hospitals and people’s own
homes.

 

The Trust also provides services on a wider regional or national basis
including perinatal, eating disorder and forensic services.  We deliver
out of area sexual health services and our Inclusions service offer
psychological and drug and alcohol services, in the community and in
prisons, and has contracts across the country.  We also provide
genitourinary medicine services.

 

2)Any information you hold on services your Trust provided for FASD for
a.prevention education following the 2016 Chief Medical Officers’
guidelines that the safest course is not to drink while pregnant or
attempting to become pregnant; b.diagnosis for both children and adults;
c.post-diagnostic care in the financial years beginning 2013, 2014, 2015,
2016, 2017 and 2018.

 

Not applicable.

 

3)Information on the number of Doctors in your Trust who currently provide
diagnostic and/or post-diagnostic services for FASD? Please provide their
names and posts. Whether your Trust employs specifically trained
professionals, including but not limited to nurses, psychologists,
occupational therapists and speech and language therapists, to provide
specialised services for patients on the FASD spectrum? If so, in what
specialties, and how many? Please provide their names and posts.

 

Not applicable.

 

4)Information on training provided to personnel in your Trust on FASD, or
provided by others and accessed by your personnel.

 

Not applicable.

 

5)Information you hold on whether your Trust sends patients for FASD
diagnosis to the National FASD Clinic in Surrey
([5]https://www.fasdclinic.com/)? Did your refer any patients to the
National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and
if so, how many in each year?

 

Not applicable.

 

6)What was your budget for services for FASD in each financial year since
that starting in 2013 and including the current financial year?

 

Not applicable.

 

7)Please provide copies of any agreed plans you have to expand the budget
or services in coming years.

 

Not applicable.

 

If you are considering rejecting this request on the grounds of the costs
of responding exceeding the statutory limits then please respond to as
many of the numbered items as possible within the limit, in the order they
have been presented.

 

We would be grateful if you could take a minute to fill out our Freedom of
Information Customer Satisfaction Survey (attached) and let us know about
your experience.

Please contact me in the first instance if you have any queries or
questions regarding the Trust's response.  However, if you have any
complaints about the handling of your enquiry, please contact:

Ms Jane Landick
Company Secretary
Midlands Partnership Foundation Trust

Trust Headquarters St George's Hospital Corporation Street Stafford
ST16 3SR
Email: [6][email address]

You also have a right of appeal to the Information Commissioner at:

Information Commissioner's Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF
Telephone: 01625 545700
Website: [7]www.informationcommissioner.gov.uk

PLEASE NOTE: As of 1^st June 2018 South Staffordshire and Shropshire
Healthcare NHS Foundation Trust has merged with Staffordshire and
Stoke-on-Trent Partnership NHS Trust to become Midlands Partnership
Foundation Trust.

Yours sincerely

 

Aled Evans

 

FOI Officer

Midlands Partnership Foundation Trust

Trust HQ, St George’s Hospital

Corporation Street

Stafford
ST16 3AG

Tel: 01785 221104 Ext 7128998

Email: [8][email address]

 

[9]cid:image001.png@01D3FBF5.6CCEAE40[10]cid:image007.jpg@01D39364.EDC35310

 

References

Visible links
1. http://www.nofas-uk.org/
2. https://www.parliament.uk/business/publi...
3. https://www.parliament.uk/business/publi...
4. https://www.parliament.uk/business/publi...
5. https://www.fasdclinic.com/
6. mailto:[email address]
7. http://www.informationcommissioner.gov.uk/
8. mailto:[email address]

Dear FOI (RRE) MPFT,

Thank you for your response

Yours sincerely,

Martin Butcher