Services for Foetal Alcohol Spectrum Disorders

Sandra Butcher made this Freedom of Information request to Essex Partnership University NHS Foundation Trust as part of a batch sent to 24 authorities

This request has been closed to new correspondence from the public body. Contact us if you think it ought be re-opened.

The request was partially successful.

Dear Essex Partnership University NHS Foundation Trust,

I am writing as a volunteer researcher for the National Organisation for Foetal Alcohol Syndrome-UK (www.nofas-uk.org) to make a request for information under the Freedom of Information Act. I am working in cooperation with an ad hoc group of leaders from the organisation and other experts to frame and shape this research project and to analyse the information we receive.

Background

In February 2017, Lord Boateng asked the government “what assessment they have made of the measures adopted in Scotand which provide guidance and support for children and young adults affected by foetal alcohol spectrum disorders.” Lord O’Shaughnessy replied that “Early intervention services can help reduce some of the effects of Foetal Alcohol Spectrum Disorders (FASD) and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups. [Hansard, Written Question HL5052, 10 February 2017. https://www.parliament.uk/business/publi...

This government policy was reiterated in July 2017 when Lord Campbell-Savours asked the government “what support they are providing for persons whose condition has been described as foetal alcohol spectrum disorder.” [Hansard, Written Question HL500 and Written Answer, 18 July 2017, https://www.parliament.uk/business/publi... In response, Lord O’Shaughnessy for the government wrote that “It is recognised that Foetal Alcohol Spectrum Disorders (FASD) can have a significant impact on the early development of children, their behaviours and their life chances. Early intervention services can help reduce some of the effects of FASD and prevent some of the secondary disabilities that result. Responsibility for commissioning these services lies with clinical commissioning groups.” This was again repeated on 8 May 2018 by Steve Brine, Parliamentary Under-secretary at the Department of Health and Social Care. [Hansard, Written Question 139045, 8 May 2018. https://www.parliament.uk/business/publi...

The following conditions fall under the Foetal Alcohol Spectrum Disorder (FASD) umbrella: Foetal Alcohol Syndrome (FAS), Alcohol-Related Neurodevelopmental Disorder (ARND), Alcohol-Related Birth Defects (ARBD), Foetal Alcohol Effects (FAE) and partial Foetal Alcohol Syndrome (pFAS)) or neurodevelopmental disorders linked to prenatal alcohol exposure (NDPAE)

Request for Information

In light of the above information I would like to ask you to provide:
1) Copies of any policies that the Trust has on the prevention of FASD, and on the diagnosis and post-diagnostic care pathway for patients with an FASD. Also your policy on the training of Trust personnel to manage patients with FASD.
2) Any information you hold on services your Trust provided for FASD for
a. prevention education following the 2016 Chief Medical Officers’ guidelines that the safest course is not to drink while pregnant or attempting to become pregnant;
b. diagnosis for both children and adults;
c. post-diagnostic care in the financial years beginning 2013, 2014, 2015, 2016, 2017 and 2018.
3) Information on the number of Doctors in your Trust who currently provide diagnostic and/or post-diagnostic services for FASD? Please provide their names and posts. Whether your Trust employs specifically trained professionals, including but not limited to nurses, psychologists, occupational therapists and speech and language therapists, to provide specialised services for patients on the FASD spectrum? If so, in what specialties, and how many? Please provide their names and posts.
4) Information on training provided to personnel in your Trust on FASD, or provided by others and accessed by your personnel.
5) Information you hold on whether your Trust sends patients for FASD diagnosis to the National FASD Clinic in Surrey (https://www.fasdclinic.com/)? Did your refer any patients to the National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and if so, how many in each year?
6) What was your budget for services for FASD in each financial year since that starting in 2013 and including the current financial year?
7) Please provide copies of any agreed plans you have to expand the budget or services in coming years.
If you are considering rejecting this request on the grounds of the costs of responding exceeding the statutory limits then please respond to as many of the numbered items as possible within the limit, in the order they have been presented.

Yours faithfully,

Martin Butcher

Foi (ESSEX PARTNERSHIP UNIVERSITY NHS FOUNDATION TRUST), Essex Partnership University NHS Foundation Trust

Dear Martin Butcher,

 

RE: Freedom of Information Act Request (REF: EPUT.FOI.18.662)

 

The Essex Partnership University NHS Foundation Trust Freedom of
Information Service received your request for information under the
Freedom of Information Act on 23 July 2018.

 

You requested information, as outlined below.

 

1)            Copies of any policies that the Trust has on the prevention
of FASD, and on the diagnosis and post-diagnostic care pathway for
patients with an FASD. Also your policy on the training of Trust personnel
to manage patients with FASD.

2)            Any information you hold on services your Trust provided for
FASD for

a.            prevention education following the 2016 Chief Medical
Officers’ guidelines that the safest course is not to drink while pregnant
or attempting to become pregnant;

b.            diagnosis for both children and adults;

c.             post-diagnostic care in the financial years beginning 2013,
2014, 2015, 2016, 2017 and 2018.

3)            Information on the number of Doctors in your Trust who
currently provide diagnostic and/or post-diagnostic services for FASD?
Please provide their names and posts. Whether your Trust employs
specifically trained professionals, including but not limited to nurses,
psychologists, occupational therapists and speech and language therapists,
to provide specialised services for patients on the FASD spectrum? If so,
in what specialties, and how many? Please provide their names and posts.

4)            Information on training provided to personnel in your Trust
on FASD, or provided by others and accessed by your personnel.

5)            Information you hold on whether your Trust sends patients
for FASD diagnosis to the National FASD Clinic in Surrey
([1]https://www.fasdclinic.com/)? Did your refer any patients to the
National FASD Clinic in 2013, 2014, 2015, 2016 and 2017, and in 2018, and
if so, how many in each year?

6)            What was your budget for services for FASD in each financial
year since that starting in 2013 and including the current financial year?

7)            Please provide copies of any agreed plans you have to expand
the budget or services in coming years.

If you are considering rejecting this request on the grounds of the costs
of responding exceeding the statutory limits then please respond to as
many of the numbered items as possible within the limit, in the order they
have been presented.

 

The Act allows 20 working days for us to respond to your request so you
can expect a response by 20^th August 2018.  We will of course make every
effort to respond sooner if possible. A fee may be charged to cover
postage and photocopying costs.

 

You should also be aware that the Act does allow, in certain cases, for
the 20 working day time period to be extended. We will notify you as soon
as possible if there is a need to extend the time limit for responding to
your request.

 

The Trust has a statutory duty to provide advice and assistance to
applicants. If you have any questions now, or during the processing of
your request, please write or telephone me.

 

Kind regards

 

Legal Services

Freedom of Information / Subject Access Requests 

Essex Partnership University NHS Foundation Trust

The Lodge | Lodge Approach | Runwell | Wickford | Essex | SS11 7XX

Telephone: 7753 or 7724

E-mail: [2][email address] (Freedom of Information)

E-mail: [3][email address] (Subject Access Request)

 

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Foi (ESSEX PARTNERSHIP UNIVERSITY NHS FOUNDATION TRUST), Essex Partnership University NHS Foundation Trust

2 Attachments

Dear Mr Butcher,

 

RE: Freedom of Information Act Request (REF: EPUT.FOI.18.662)

 

With regards to your recent request for information, made under the
Freedom of Information Act, please find attached a response from EPUT.

 

If you are dissatisfied with the response you have received, you have the
right to request a review of our decision or make a complaint about how
your request has been handled.  Your request should be made within 2
months of receipt of this letter and we will reply within 20 working days
of receipt.  Any such request received after 2 months will only be
considered at the discretion of the organisation.

 

If our decision is unchanged following a review and you remain
dissatisfied with this, you then have the right to make a formal complaint
to the Information Commissioner who can be contacted at: Information
Commissioners Office, Wycliffe House, Water Lane, Wilmslow, Cheshire SK9
5AF.

 

Kind regards

 

Legal Services

Freedom of Information / Subject Access Requests 

Essex Partnership University NHS Foundation Trust

The Lodge | Lodge Approach | Runwell | Wickford | Essex | SS11 7XX

E-mail: [1][email address] (Freedom of Information)

E-mail: [2][email address] (Subject Access Request)

 

 

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