Referrals of cancer patients for genetic screening

The request was partially successful.

Dear Oxford University Hospitals NHS Trust,

I would be most grateful if you could provide information about cancer services provided by your Trust, as follows:-

1. The total number of patients treated/diagnosed with breast cancer during the years 2009, 2010, 2011, 2012 and 2013.
2. The number of patients under the age of 50 treated/diagnosed with breast cancer during the years 2009, 2010, 2011, 2012 and 2013.
3. The total number of patients referred for genetic screening related to breast cancer during the years 2009, 2010, 2011, 2012 and 2013.
4. The number of patients under the age of 50 referred for genetic screening related to breast cancer during the years 2009, 2010, 2011, 2012 and 2013.
5. The total number of non-patient referrals (eg relatives of patients) for genetic screening related to breast cancer during the years 2009, 2010, 2011, 2012 and 2013.

6. The total number of patients treated/diagnosed with uterine or ovarian cancer during the years 2009, 2010, 2011, 2012 and 2013.
7. The number of patients under the age of 50 treated/diagnosed with uterine or ovarian cancer during the years 2009, 2010, 2011, 2012 and 2013.
8. The total number of patients referred for genetic screening related to uterine or ovarian cancer during the years 2009, 2010, 2011, 2012 and 2013.
9. The number of patients under the age of 50 referred for genetic screening related to uterine or ovarian cancer during the years 2009, 2010, 2011, 2012 and 2013.
10. The total number of non-patient referrals (eg relatives of patients) for genetic screening related to uterine or ovarian cancer during the years 2009, 2010, 2011, 2012 and 2013.

11. The total number of patients treated/diagnosed with colorectal cancer during the years 2009, 2010, 2011, 2012 and 2013.
12. The number of patients under the age of 50 treated/diagnosed with colorectal cancer during the years 2009, 2010, 2011, 2012 and 2013.
13. The total number of patients referred for genetic screening related to colorectal cancer during the years 2009, 2010, 2011, 2012 and 2013.
14. The number of patients under the age of 50 referred for genetic screening related to colorectal cancer during the years 2009, 2010, 2011, 2012 and 2013.
15. The total number of non-patient referrals (eg relatives of patients) for genetic screening related to colorectal cancer during the years 2009, 2010, 2011, 2012 and 2013.

I hope you are able to help with this request and please do not hesitate to contact me if you require any further information or clarification.

Yours faithfully,

Marianne Langley

FOIA (RTH) OUH,

Our reference:  FOI:2721
 
Dear Ms. Langley
 

Thank you for your request of 12th November in which you asked for information about cancer and genetic screening.

Your request is being considered and Oxford University Hospitals Trust will respond within 20 working days in compliance with the Freedom of Information Act 2000. This means that the trust will send a response to you by 10th December

There may be a fee payable for this information. You will be informed if this is the case and you can decide if you wish to proceed with your request.

If appropriate, the information requested can be made available in alternative formats, including other languages, Braille, large print, and
CD’s. If you require any of these formats then please let me know.

Please contact me if you have any have further enquiries about your request. I would be grateful if you could quote the reference number given at the top of this email. 

Yours sincerely,
Dr Tom Mansfield
Freedom of Information Officer
Information Governance Team
Rm 3A40 Level 3 Academic Block | John Radcliffe Hospital | Headley Way | Oxford| OX3 9DU

Please note this email address is not suitable to receive confidential Information. For any person-identifiable, sensitive or confidential email please use [email address]
Recipients should be aware that all emails received or sent by this Trust are subject to the Freedom of Information Act 2000 and therefore information within them may be disclosed to a third party. Please note that under our obligations to the Data Protection Act 1998, we will not disclose any personal information without your consent.

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FOIA (RTH) OUH,

Our reference:  FOI:2721

 

Dear Ms. Langley

 

 

Thank you for your request of 12th November in which you asked for
information about cancer and genetic screening.

 

Your request is being considered and Oxford University Hospitals Trust
will respond within 20 working days in compliance with the Freedom of
Information Act 2000. This means that the trust will send a response to
you by 10th December

 

There may be a fee payable for this information. You will be informed if
this is the case and you can decide if you wish to proceed with your
request.

 

If appropriate, the information requested can be made available in
alternative formats, including other languages, Braille, large print, and
CD’s. If you require any of these formats then please let me know.

 

Please contact me if you have any have further enquiries about your
request. I would be grateful if you could quote the reference number given
at the top of this email. 

 

Yours sincerely,

Dr Tom Mansfield

Freedom of Information Officer

Information Governance Team

Rm 3A40 Level 3 Academic Block | John Radcliffe Hospital | Headley Way |
Oxford| OX3 9DU

 

Please note this email address is not suitable to receive confidential
Information. For any person-identifiable, sensitive or confidential email
please use [1][email address] Recipients should be aware that all
emails received or sent by this Trust are subject to the Freedom of
Information Act 2000 and therefore information within them may be
disclosed to a third party. Please note that under our obligations to the
Data Protection Act 1998, we will not disclose any personal information
without your consent.

 

Dear Ms. Langley,

I am writing to respond to your request sent 12^th November. OUH can
confirm that it holds the data that you requested.

 

1.            The total number of patients treated/diagnosed with breast
cancer during the years 2009, 2010, 2011, 2012 and 2013. OUH Response -  
The total number of patients treated/diagnosed with breast cancer:

2009 - 787

2010 - 832

2011 - 853

2012 - 917

2013 – 932

 

2.            The number of patients under the age of 50 treated/diagnosed
with breast cancer during the years 2009, 2010, 2011, 2012 and 2013. OUH
Response - The number of patients under the age of 50 treated/diagnosed
with breast cancer.

2009 - 200

2010 - 187

2011 - 210

2012 - 204

2013 – 205

 

3.            The total number of patients referred for genetic screening
related to breast cancer during the years 2009, 2010, 2011, 2012 and 2013.
OUH Response – See Table 1 below

4.            The number of patients under the age of 50 referred for
genetic screening related to breast cancer during the years 2009, 2010,
2011, 2012 and 2013. OUH Response – See Table 1 below

5.            The total number of non-patient referrals (eg relatives of
patients) for genetic screening related to breast cancer during the years
2009, 2010, 2011, 2012 and 2013. OUH Response – See Table 1 below

 

6.            The total number of patients treated/diagnosed with uterine
or ovarian cancer during the years 2009, 2010, 2011, 2012 and 2013. OUH
Response - The total number of patients treated/diagnosed with uterine or
ovarian cancer

2009 - 278

2010 - 294

2011 - 324

2012 - 368

2013 – 373

 

7.            The number of patients under the age of 50 treated/diagnosed
with uterine or ovarian cancer during the years 2009, 2010, 2011, 2012 and
2013. OUH Response - The number of patients under the age of 50
treated/diagnosed with uterine or ovarian cancer.

2009 - 73

2010 - 79

2011 - 90

2012 - 98

2013 – 104

 

8.            The total number of patients referred for genetic screening
related to uterine or ovarian cancer during the years 2009, 2010, 2011,
2012 and 2013. OUH Response – See Table 1 below

9.            The number of patients under the age of 50 referred for
genetic screening related to uterine or ovarian cancer during the years
2009, 2010, 2011, 2012 and 2013. OUH Response – See Table 1 below

10.          The total number of non-patient referrals (eg relatives of
patients) for genetic screening related to uterine or ovarian cancer
during the years 2009, 2010, 2011, 2012 and 2013. OUH Response – See Table
1 below

 

11.          The total number of patients treated/diagnosed with
colorectal cancer during the years 2009, 2010, 2011, 2012 and 2013. OUH
Response - The total number of patients treated/diagnosed with colorectal
cancer.

2009 - 685

2010 - 803

2011 - 815

2012 - 818

2013 – 782

 

12.          The number of patients under the age of 50 treated/diagnosed
with colorectal cancer during the years 2009, 2010, 2011, 2012 and 2013.
OUH Response - The number of patients under the age of 50
treated/diagnosed with colorectal cancer.  

2009 - 69

2010 - 57

2011 - 76

2012 - 70

2013  -60

 

13.          The total number of patients referred for genetic screening
related to colorectal cancer during the years 2009, 2010, 2011, 2012 and
2013. OUH Response – See Table 2 below

14.          The number of patients under the age of 50 referred for
genetic screening related to colorectal cancer during the years 2009,
2010, 2011, 2012 and 2013. OUH Response – See Table 2 below

15.          The total number of non-patient referrals (eg relatives of
patients) for genetic screening related to colorectal cancer during the
years 2009, 2010, 2011, 2012 and 2013. OUH Response – See Table 2 below

 

Table 1

Question No. Question 2009 2010 2011 2012 2013
Total No. patients
referred for genetic
screening related to
breast / ovarian not
3 & 8 cancer not available available 173 288 442
Total No. patients
under age 50yrs
referred for genetic
screening related to
breast / ovarian not
4 & 9 cancer not available available 75 116 431
5 & 10 Total No. family tests 132 160 151 148 201

 

Table 2

Question Question 2009 2010 2011 2012 2013
No.
13 Total No. patients referred for genetic 155 175 269 275 351
screening related to colorectal cancer
Total No. patients under age 50yrs
14 referred for genetic screening related 81 74 89 123 140
to colorectal cancer
15 Total No. family tests 67 85 126 140 112

Please note we offer a national service for colorectal cancer genes and
therefore this data does not represent patients seen in Oxford. It is not
possible to distinguish between referrals to this level.

 

Notes about the data:

1)      The data considers actual referrals for genetic testing, it does
not include individuals referred to the Clinical Genetics service, but
whom do not have a BRCA test activated (not meeting familial criteria/not
wanting testing etc).

2)      We cannot differentiate between q.3-5 and 8-10, the data will be
combined breast/ovarian referrals for BRCA1/2 testing (we do not record
this level of clinical information in a searchable manner). Having spoken
to Clinical Genetics they would also be unable to do this

3)      We cannot confirm that all individuals tested had a personal
diagnosis of the stated cancer - they will all have a family history of
these cancers and the vast majority will have had  relevant tumour also
(N.B indirect testing in unaffected individuals is becoming more common
and may have influenced 2013 data). Again Clinical Genetics cannot
differentiate either and their data would likely be more biased by
referral of unaffected family members for counselling.

4)      The data is looking at the number of patients who were discharged
between 01-01-2009 to 31-12-2013.

5)      As a note, when we tried to split the patients who were under the
age of 50, some of the patients had  turned 50 during the year. We have
counted their initial admission  i.e. when they were under 50 in our
analysis. There were around 40 such occurrences for these 5 years.

Please note that on 1 November 2011 the Oxford Radcliffe Hospitals NHS
Trust (ORH) merged with the Nuffield Orthopaedic Hospital NHS Trust (NOC)
to form the Oxford University Hospitals NHS Trust (OUH). Our response
reflects these changes. Therefore, we consider that Oxford University
Hospitals Trust has released to you all of the information that it holds
in relation to your request.

Internal review

If you are dissatisfied with the service or response to your request you
can ask for an internal review by writing to:

 

Megan Turmezei, Assistant Director, Special Projects, John Radcliffe
Hospital, Headley Way, Headington, Oxford OX3 9DU.

If you remain dissatisfied with the handling of your request or complaint,
you have a right to appeal to the Information Commissioner at:

The Information Commissioner's Office,

Wycliffe House, Water Lane,
Wilmslow,

Cheshire,

SK9 5AF.

Telephone: 0303 123 1113 Website: [2]www.ico.gov.uk

Provision of this information does not constitute permission for its
commercial re-use in terms of the Re-Use of Public Sector Information
Regulations 2005.  You are free to use the information for your own use,
including for non-commercial research purposes.  The information may also
be used for the purposes of news reporting.  However, any other type of
re-use will require permission from the Oxford University Hospitals NHS
Trust.

Yours sincerely,

 

Dr Tom Mansfield

Freedom of Information Officer

Information Governance Team

John Radcliffe Hospital | Headley Way | Oxford| OX3 9DU

Tel: 01865 226911 

 

Recipients should be aware that all emails received or sent by this Trust
are subject to the Freedom of Information Act 2000 and therefore
information within them may be disclosed to a third party. Please note
that under our obligations to the Data Protection Act 1998, we will not
disclose any personal information without your consent

 

 

 

 

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