Prescribing T3 in exceptional circumstances

Marjorie Williams made this Freedom of Information request to North East London Commissioning Support Unit

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Response to this request is long overdue. By law, under all circumstances, North East London Commissioning Support Unit should have responded by now (details). You can complain by requesting an internal review.

Dear North East London Commissioning Support Unit,

Can you tell me what direction and/or advice has been given to CCGs on Liothyronine (T3), please, following the recognition in the NHS England (PB.30.11.2017/05) that, exceptionally, it may continue to be prescribed?

I am one of the unfortunate people with hypothyroidism who does, exceptionally, need T3 permanently (in combination with T4) to function normally. I have recently endured a difficult and distressing trial over several months to reduce my T3 to nil under the supervision of a consultant endocrinologist at the NNUH.

It has now been accepted that I do require T3 which puts me in the exceptions category. My consultant have said, unequivocally, that it would be prescribed if it could. However prescribing is embargoed. Given that the NHS England Board paper was issued in late 2017 and my CCG (North Norfolk) stated that it expected to issue guidance by the end of January 2018 it is surprising that there still appears to be a blanket ban on prescribing. If there is a delay can you tell me what has caused it, please, and when the issue may be resolved?

It is, of course, a matter of urgency for me as I have the unhappy choice of expensive private prescriptions for a drug which has increased in cost 6000% or taking my chances by sourcing T3 of unknown quality abroad.

Yours faithfully,

Marjorie Williams

CONTACTUS, England (NHS ENGLAND), North East London Commissioning Support Unit

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FOI, England (NHS ENGLAND), North East London Commissioning Support Unit

Dear Marjorie Williams,

 

Thank you for your communication dated 05 September 2018.

 

NHS England has assessed your communication as a request under the Freedom
of Information (FOI) Act 2000. As such, your request is being dealt with
under the terms of the FOI Act, and has been allocated the following
reference number: FOI-057275.

 

Your exact request was:

 

“Dear North East London Commissioning Support Unit,

 

Can you tell me what direction and/or advice has been given to CCGs on
Liothyronine (T3), please, following the recognition in the NHS England
(PB.30.11.2017/05) that, exceptionally, it may continue to be prescribed?

 

I am one of the unfortunate people with hypothyroidism who does,
exceptionally, need T3 permanently (in combination with T4) to function
normally. I have recently endured a difficult and distressing trial over
several months to reduce my T3 to nil under the supervision of a
consultant endocrinologist at the NNUH.

 

It has now been accepted that I do require T3 which puts me in the
exceptions category. My consultant have said, unequivocally, that it would
be prescribed if it could. However prescribing is embargoed. Given that
the NHS England Board paper was issued in late 2017 and my CCG (North
Norfolk) stated that it expected to issue guidance by the end of January
2018 it is surprising that there still appears to be a blanket ban on
prescribing. If there is a delay can you tell me what has caused it,
please, and when the issue may be resolved?

 

It is, of course, a matter of urgency for me as I have the unhappy choice
of expensive private prescriptions for a drug which has increased in cost
6000% or taking my chances by sourcing T3 of unknown quality abroad.”

 

NHS England does not hold information in relation to your request.

 

We have interpreted your request as relating to prescription decisions
taken by CCGs. If we have been incorrect in this interpretation, please
contact us to clarify your request.

 

It may help if we first explain that NHS England is not the same as ‘the
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[4]http://www.nhs.uk/ServiceDirectories/Pag...

 

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Yours sincerely,

 

 

Freedom of Information

Corporate Communications Team

Transformation and Corporate Operations Directorate

 

NHS England

PO Box 16738

REDDITCH

B97 9PT

 

Tel: 0300 311 22 33

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