Prescribing data for multiple sclerosis

NHS Hull Clinical Commissioning Group did not have the information requested.

Dear NHS Hull Clinical Commissioning Group,

The MS Society is collecting the following information from every CCG in the country to help us understand the national picture better in relation to prescribing. To help us with our research, we are requesting the following information through the Freedom of Information Act.

1. How many people with MS in your CCG (including the source for this number) have been diagnosed with:
a. Relapsing-Remitting MS
b. Primary Progressive MS
c. Secondary Progressive MS
d. Benign MS
e. Unconfirmed Type

2. The percentage of each of 1a, 1b, 1c, 1d, and 1e, who receive an annual review by a healthcare professional with expertise in MS and its complications (NICE guidelines (CG 186).

3. The current waiting time targets for accessing an appointment with a Consultant Neurologist with MS expertise for:
a. New appointments
b. Follow up appointments

4. The number of Individual Funding Requests (IFRs) received for each of the below treatments

5. The number of people with MS currently being prescribed the following licensed treatments for multiple sclerosis
a. Avonex (Beta interferon – 1a)
b. Aubagio® (Teriflunomide)
c. Betaferon (Interferon beta 1b)
d. Botox (Botulinum toxin)
e. Copaxone (Glatiramer Acetate)
f. Extavia (Beta interferon – 1b)
g. Fampyra® (Fampridine)
h. Gilenya (Fingolimod)
i. Lemtrada (Alemtuzumab)
j. Plegridy (Peginterferon beta 1a)
k. Rebif® (Beta interferon – 1a)
l. Sativex (Nabiximols)
m. Tecfidera (Dimethyl fumarate)
n. Tysabri (Natalizumab)

Yours faithfully,

Ruth Stockdale

FOI (NHS HULL CCG), NHS Hull Clinical Commissioning Group

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Thank you for your request for information which was received by the NHS
Hull Clinical Commissioning Group Freedom of Information team on 4
February 2016.

 

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correspondence from us within 20 working days.

 

Freedom of Information Team

NHS Hull Clinical Commissioning Group

C/O Health House

Grange Park Lane

Willerby

HU10 6DT

 

Tel:  01482 672171

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