Prescribing Data for Multiple Sclerosis
Dear Bassetlaw Clinical Commissioning Group,
The MS Society is collecting the following information from every CCG in the Country to help us understand the national picture better in relation to prescribing. To help us with our research, we are requesting the following information through the Freedom of Information Act.
1. How many people with MS in your CCG (including the source for this number):
a. Relapsing-Remitting MS
b. Primary Progressive MS
c. Secondary Progressive MS
d. Benign MS
e. Unconfirmed Type
2. The percentage of each of 1a, 1b, 1c, 1d, and 1e, who receive an annual review by a healthcare professional with expertise in MS, and it’s complications (NICE guidelines (CG 186).
3. The current waiting times targets for accessing an appointment with a Consultant Neurologist with MS expertise for:
a. New appointments
b. Follow up appointments
4. The number of Individual Funding Requests (IFRs) received for each of the below treatments
5. The number of people with MS currently being prescribed the following licensed treatments for multiple sclerosis
a. Avonex (Beta interferon – 1a)
b. Aubagio® (Teriflunomide)
c. Betaferon (Interferon beta 1b)
d. Botox (Botulinum toxin)
e. Copaxone (Glatiramer Acetate)
f. Extavia (Beta interferon – 1b)
g. Fampyra® (Fampridine)
h. Gilenya (Fingolimod)
i. Lemtrada (Alemtuzumab)
j. Plegridy (Peginterferon beta 1a)
k. Rebif® (Beta interferon – 1a)
l. Sativex (Nabiximols)
m. Tecfidera (Dimethyl fumarate)
n. Tysabri (Natalizumab)
Yours faithfully,
Liz Whilde
MS Society Regional External Relations Officer East Midlands
Dear Liz
FOI_16_25
Thank you for your recent request for information. This request was received by NHS Bassetlaw CCG on the 3rd February 2016; we will respond to you no later than 2nd March 2016 (20 working days).
Regards
Sarah
Sarah Beard
Assurance & Engagement Officer
NHS Bassetlaw CCG
Retford Hospital
North Road
DN22 7XF
01777 863308
www.bassetlawccg.nhs.uk
Dear Liz
FOI_16_25
Thank you for your recent request under the Freedom of Information Act.
Please see our responses highlighted below;
The MS Society is collecting the following information from every
CCG in the Country to help us understand the national picture
better in relation to prescribing. To help us with our research, we
are requesting the following information through the Freedom of
Information Act.
1. How many people with MS in your CCG (including the source for
this number):
a. Relapsing-Remitting MS
b. Primary Progressive MS
c. Secondary Progressive MS
d. Benign MS
e. Unconfirmed Type
2. The percentage of each of 1a, 1b, 1c, 1d, and 1e, who receive an
annual review by a healthcare professional with expertise in MS,
and it’s complications (NICE guidelines (CG 186).
The CCG does not hold this information, therefore we suggest that you
source this from the Acute provider, Doncaster and Bassetlaw Hospitals NHS
Foundation Trust
3. The current waiting times targets for accessing an appointment
with a Consultant Neurologist with MS expertise for:
a. New appointments
b. Follow up appointments
The CCG does not hold this information, therefore we suggest that you
source this from the Acute provider, Doncaster and Bassetlaw Hospitals NHS
Foundation Trust
4. The number of Individual Funding Requests (IFRs) received for
each of the below treatments
The CCG does not hold this information, therefore we suggest that you
contact Yorkshire & Humber Commissioning Support Unit (CSU)
5. The number of people with MS currently being prescribed the
following licensed treatments for multiple sclerosis
a. Avonex (Beta interferon – 1a)
b. Aubagio® (Teriflunomide)
c. Betaferon (Interferon beta 1b)
d. Botox (Botulinum toxin)
e. Copaxone (Glatiramer Acetate)
f. Extavia (Beta interferon – 1b)
g. Fampyra® (Fampridine)
h. Gilenya (Fingolimod)
i. Lemtrada (Alemtuzumab)
j. Plegridy (Peginterferon beta 1a)
k. Rebif® (Beta interferon – 1a)
l. Sativex (Nabiximols)
m. Tecfidera (Dimethyl fumarate)
n. Tysabri (Natalizumab)
The CCG does not hold this information, NHS Business Services authority
may hold this.
I trust this fulfils your requirements.
Regards
Sarah
Sarah Beard
Assurance & Engagement Officer
NHS Bassetlaw CCG
Retford Hospital
North Road
DN22 7XF
01777 863308
[1]www.bassetlawccg.nhs.uk
Dear FOIRequests (NHS BASSETLAW CCG),
Many thanks for your response
Yours sincerely,
Liz Whilde
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