Policy and procedures regarding PDA

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Dear Leicestershire Partnership NHS Trust,

I am writing to you under the terms of the Freedom of Information act to ask some questions regarding your policy and procedures around Pathological Demand Avoidance (PDA). This condition is sometimes identified simply as “demand avoidance” or as “Autism Spectrum Disorder with demand avoidance”. For the purposes of this request, I am happy for you to consider all three descriptions as the same disorder. I will refer to the condition as PDA for brevity. PDA was first described in the 1990s but does not yet enjoy an entry in the ICD or DSM manuals and is only briefly referred to in NICE guidance.

1 – Does your trust have any specific policy regarding the diagnosis of PDA? If so, please enclose a copy of the relevant policy.

2 – Does your trust have any policy that would discourage or restrict clinicians from diagnosing conditions not described in the ICD, DSM, NICE guidance or other similar documents? If so, please enclose a copy of the relevant policy.

3 – Please identify the team (or teams) that fulfill the role of the “autism team” as described in section 1.1 of the NICE guidance on autism diagnosis in children and young people (CG128). Please give the name of the team and their main postal address. If you have multiple teams that fulfill this role please indicate how the case load is apportioned between the teams (for instance by geographical coverage or age ranges).

4 – Please state the total number of clinical staff in your autism team(s). Please include in this figure all clinicians that are contracted to provide a regular service as well as those directly employed by the trust.

5 – For the staff included in your answer to Q4 above please list any attendances at seminars, conferences and/or training sessions about PDA in the last five years that you have recorded. I do not need you to identify the individuals that attended; just the number of clinical staff that attended each PDA event will be sufficient.

Thank you for your assistance in providing this information.

Yours faithfully,

Tom Crellin

Leicestershire Partnership NHS Trust

1 Attachment

Dear Tom Crellin,

Freedom of Information Act 2000 Request REF: FOI/1415/SG1681

Thank you for your request for information under the Freedom of Information Act 2000, which we received on 09 August. We are processing your request and will respond to you shortly. In the meantime, please find attached our leaflet offering guidance on our procedure for managing requests for information in compliance with the Freedom of Information Act 2000.

If you have any queries please either respond to this email or contact me at the following address quoting the above REF number.

Yours sincerely,
Mary Stait
Information Governance Compliance Manager
Leicestershire Partnership NHS Trust
First Floor North
Lakeside House
4 Smith Way
Grove Park
Leicester
LE19 1SS
Telephone: (0116) 295 7290
 
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Leicestershire Partnership NHS Trust

2 Attachments

Dear Tom Crellin,

 

Freedom of Information Act 2000 Request REF: FOI/1415/SG1652

 

Thank you for your request for information under the Freedom of
Information Act 2000, which we received 9 August 2014. Please find
attached our response to your request.

 

If you require any further assistance, please contact me quoting the above
REF number.

 

Yours sincerely

 

                          

Mrs Sam Kirkland

Records Transformation & Information Governance Manager

Leicestershire Partnership NHS Trust

Lakeside House

4 Smith Way

Grove Park

Enderby

LE19 1SX

 

 

 

[1]Tel:0116 295 0997

Fax: 0116 295 7629

 

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