Policy and procedures regarding PDA

The request was successful.

Dear Cheshire and Wirral Partnership NHS Foundation Trust,

I am writing to you under the terms of the Freedom of Information act to ask some questions regarding your policy and procedures around Pathological Demand Avoidance (PDA). This condition is sometimes identified simply as “demand avoidance” or as “Autism Spectrum Disorder with demand avoidance”. For the purposes of this request, I am happy for you to consider all three descriptions as the same disorder. I will refer to the condition as PDA for brevity. PDA was first described in the 1990s but does not yet enjoy an entry in the ICD or DSM manuals and is only briefly referred to in NICE guidance.

1 – Does your trust have any specific policy regarding the diagnosis of PDA? If so, please enclose a copy of the relevant policy.

2 – Does your trust have any policy that would discourage or restrict clinicians from diagnosing conditions not described in the ICD, DSM, NICE guidance or other similar documents? If so, please enclose a copy of the relevant policy.

3 – Please identify the team (or teams) that fulfill the role of the “autism team” as described in section 1.1 of the NICE guidance on autism diagnosis in children and young people (CG128). Please give the name of the team and their main postal address. If you have multiple teams that fulfill this role please indicate how the case load is apportioned between the teams (for instance by geographical coverage or age ranges).

4 – Please state the total number of clinical staff in your autism team(s). Please include in this figure all clinicians that are contracted to provide a regular service as well as those directly employed by the trust.

5 – For the staff included in your answer to Q4 above please list any attendances at seminars, conferences and/or training sessions about PDA in the last five years that you have recorded. I do not need you to identify the individuals that attended; just the number of clinical staff that attended each PDA event will be sufficient.

Thank you for your assistance in providing this information.

Yours faithfully,

Tom Crellin

Dear Mr Crellin

Thank you for your Freedom of Information request to Cheshire and Wirral Partnership NHS Foundation Trust.

I calculate the deadline for response to be 8 September 2014 .

With kind regards

Jo

Jo Gardner
FOI, Claims and Legal Support Officer
Cheshire and Wirral Partnership NHS FT
Mental Health Act Team Office
Redesmere
Countess of Chester Health Park
Liverpool Road
Chester CH2 1BQ

Direct Dial: 01244 393144
Fax: 01244 393169
[email address]

The information contained in this e-mail may be subject to public disclosure under the Freedom of Information Act 2000.
Unless the information is legally exempt from disclosure, the confidentiality of this e-mail and your reply cannot be guaranteed.

show quoted sections

Joanna Gardner,

Dear Mr Crellin

 

I have now forwarded your FOI request to the service for response and they
have asked for clarification of your request as follows:

 

The nice guidance that this FOI refers to applies to children and young
people and does not apply for people over 19. Adult LD do not see people
below 18.

So can you please clarify if this request (particularly question 4 and 5)
is just for teams who work with children and young people?

 

I would be grateful if you could provide clarification as soon as
possible, so we can progress your request.  In the meantime, I will “stop
the clock” on your request until clarification is received.  I will, of
course, advise of the revised deadline for response.

 

Many thanks.

 

Jo

 

Jo Gardner

FOI, Claims and Legal Support Officer

Cheshire and Wirral Partnership NHS FT

Mental Health Act Team Office

Redesmere

Countess of Chester Health Park

Liverpool Road

Chester                               CH2 1BQ

 

Direct Dial: 01244 393144

Fax:  01244 393169

[email address]

 

 

 

The information contained in this e-mail may be subject to public
disclosure under the Freedom of Information Act 2000. 

Unless the information is legally exempt from disclosure, the
confidentiality of this e-mail and your reply cannot be guaranteed.

 

 

show quoted sections

Dear Joanna Gardner,

Thank you for your message of 8th August requesting clarification. I can confirm that, in regard to questions 3, 4, and 5, I am specifically interested in the teams that work with children and young people and therefore fulfil the role described in CG128. You do not need to include the details of teams solely concerned with autism diagnosis in adults.

Yours sincerely,

Tom Crellin

Joanna Gardner,

Hello

Many thanks for your swift response - I have passed this information on to the service so they can respond accordingly - the deadline remains the same (8 September 2014).

With kind regards.

Jo

Jo Gardner
FOI, Claims and Legal Support Officer
Cheshire and Wirral Partnership NHS FT
Mental Health Act Team Office
Redesmere
Countess of Chester Health Park
Liverpool Road
Chester CH2 1BQ

Direct Dial: 01244 393144
Fax: 01244 393169
[email address]

The information contained in this e-mail may be subject to public disclosure under the Freedom of Information Act 2000.
Unless the information is legally exempt from disclosure, the confidentiality of this e-mail and your reply cannot be guaranteed.

show quoted sections

Joanna Gardner,

4 Attachments

Dear Mr Crellin

 

Further to your recent Freedom of Information request to Cheshire and
Wirral Partnership NHS Foundation Trust, please find attached the Trust’s
formal response.   I have attached also attached the embedded document
separately.  I hope you find this information helpful.

 

I also attach a copy of the Trust’s FOI Satisfaction Questionnaire, which
you are invited to complete and return.  This enables CWP to continually
monitor its FOI process and make amendments as indicated.

 

With kind regards.

 

 

Jo

 

Jo Gardner

FOI, Claims and Legal Support Officer

Cheshire and Wirral Partnership NHS FT

Mental Health Act Team Office

Redesmere

Countess of Chester Health Park

Liverpool Road

Chester                               CH2 1BQ

 

Direct Dial: 01244 393144

Fax:  01244 393169

[email address]

 

[1]Stop think listen with hashtag 650 x 650 cropped margins

 

The information contained in this e-mail may be subject to public
disclosure under the Freedom of Information Act 2000. 

Unless the information is legally exempt from disclosure, the
confidentiality of this e-mail and your reply cannot be guaranteed.

 

show quoted sections