Dear 2Gether NHS Foundation Trust,
I am writing to you under the terms of the Freedom of Information act to ask some questions regarding your policy and procedures around Pathological Demand Avoidance (PDA). This condition is sometimes identified simply as “demand avoidance” or as “Autism Spectrum Disorder with demand avoidance”. For the purposes of this request, I am happy for you to consider all three descriptions as the same disorder. I will refer to the condition as PDA for brevity. PDA was first described in the 1990s but does not yet enjoy an entry in the ICD or DSM manuals and is only briefly referred to in NICE guidance.
1 – Does your trust have any specific policy regarding the diagnosis of PDA? If so, please enclose a copy of the relevant policy.
2 – Does your trust have any policy that would discourage or restrict clinicians from diagnosing conditions not described in the ICD, DSM, NICE guidance or other similar documents? If so, please enclose a copy of the relevant policy.
3 – Please identify the team (or teams) that fulfill the role of the “autism team” as described in section 1.1 of the NICE guidance on autism diagnosis in children and young people (CG128). Please give the name of the team and their main postal address. If you have multiple teams that fulfill this role please indicate how the case load is apportioned between the teams (for instance by geographical coverage or age ranges).
4 – Please state the total number of clinical staff in your autism team(s). Please include in this figure all clinicians that are contracted to provide a regular service as well as those directly employed by the trust.
5 – For the staff included in your answer to Q4 above please list any attendances at seminars, conferences and/or training sessions about PDA in the last five years that you have recorded. I do not need you to identify the individuals that attended; just the number of clinical staff that attended each PDA event will be sufficient.
Thank you for your assistance in providing this information.
Thank you for your message, which is receiving attention. If your message
contained a Freedom of Information request, please treat this reply as an
acknowledgement of receipt. A response will be sent to you within 20
Thank you for your message, which is receiving attention. If your
message contained a Freedom of Information request, please treat this
reply as an acknowledgement of receipt. A response will be sent to you
within 20 working days.
Dear Mr Crellin
Thank you for your Freedom of Information request. Please find the Trust’s response attached.
Information Governance Officer
2gether NHS Foundation Trust
Trust HQ, Rikenel, Montpellier
Gloucester, Glos GL1 1LY
Tel: 01452 894264
E-mail: [email address]
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