Patient treatment options for inherited cardiac conditions
Dear NHS Mid and South Essex Integrated Care Board,
As a patient with an inherited cardiac condition (hypertrophic cardiomyopathy) I would like to establish what centres within the ICS would I be under the care of? I.e., what hospitals have a dedicated inherited cardiac conditions team. If they do not have a dedicated team or would not treat the condition where would patients be referred to? Specifically, would a local hospital manage drug treatment up until the stage of surgery (septal ablation or surgical myectomy)? If surgery is not offered where would the patient be referred to?
As a patient with an inherited cardiac condition (hypertrophic cardiomyopathy) I would like to establish what centres within the ICS would I be under the care of? I.e., what hospitals have a dedicated inherited cardiac conditions team.?
If they do not have a dedicated team or would not treat the condition where would patients be referred to?
Specifically, would a local hospital manage drug treatment up until the stage of surgery (septal ablation or surgical myectomy)? If surgery is not offered where would the patient be referred to?
Yours faithfully,
David Smith
FOI Request: Hospitals with dedicated Inherited Cardiac Conditions Team
Our Reference Number: 2324115
Dear Mr Smith,
I am writing to acknowledge receipt of your request under the Freedom of
Information Act 2000 to NHS Mid and South Essex Integrated Care Board on
29th June 2023. The information is currently being collated and a response
will be sent to you no later than 20 working days. The deadline is
calculated to be 27th July 2023.
If you have any queries regarding your request, please do not hesitate to
contact the FOI team on this email address.
Regards,
Jimmy Allimadi
Access to Information Administrator
Information Governance Team / Digital Technology Directorate
Email: [1][email address] | Phone: 01268 594405
Website: [2]www.midandsouthessex.ics.nhs.uk
Twitter: [3]@MSEssex_ICS | Facebook: [4]MSEICS | Instagram: [5]@MSEssex_ICS
[6]Mid and South Essex ICS logo and NHS Mid and South Essex ICB logo
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FOI Request: Hospitals with dedicated Inherited Cardiac Conditions Team
Our Reference Number: 2324115
Dear Mr Smith,
Further to your request under the Freedom Of Information Act, received on
29^th June 2023, please find NHS Mid and South Essex Integrated Care
Board’s response attached.
If you are dissatisfied with the response you have received, you have the
right to request a review of our decision or make a complaint about how
your request has been handled. Your request should be made within 40
working days of receipt of this letter, and we will reply within 20
working days of receipt. Any such request received after 40 working days
will only be considered at the discretion of the organisation.
If our decision is unchanged following a review and you remain
dissatisfied with this, you then have the right to make a formal complaint
to the Information Commissioner who can be contacted at:
Information Commissioners Office, Wycliffe House, Water Lane, Wilmslow,
Cheshire SK9 5AF.
Further information on your rights under FOI is available here:
[1]www.ico.gov.uk
To comply with The Re-use of Public Sector Information Regulations 2005,
this information is provided to you under the Open Government Licence.
Information on the OGL, together with conditions of use and exemptions,
can be found here:
[2]www.nationalarchives.gov.uk/doc/open-government-licence/
Should you require any further information, please do not hesitate to
contact the FOI team on this email address.
Regards,
Jimmy Allimadi
Access to Information Administrator
Information Governance Team / Digital Technology Directorate
Email: [3][email address] | Phone: 01268 594405
Website: [4]www.midandsouthessex.ics.nhs.uk
Twitter: [5]@MSEssex_ICS | Facebook: [6]MSEICS | Instagram: [7]@MSEssex_ICS
[8]Mid and South Essex ICS logo and NHS Mid and South Essex ICB logo
Confidentiality Notice:
This e-mail is confidential and privileged. If you are not the intended
recipient please accept our apologies. Please do not disclose copy or
distribute information in this e-mail or take any action in reliance on
its contents: to do so is strictly prohibited and may be unlawful.
Please inform us that this message has gone astray before deleting it.
Thank you for your co-operation.
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