Patient treatment options for inherited cardiac conditions

The request was successful.

Dear Hywel Dda University Health Board,

As a patient with an inherited cardiac condition (hypertrophic cardiomyopathy) I would like to establish what centres within the health board would I be under the care of?

I.e., what hospitals have a dedicated inherited cardiac conditions team?
If they do not have a dedicated team or would not treat the condition where would patients be referred to?
Specifically, would a local hospital manage drug treatment up until the stage of surgery (septal ablation or surgical myectomy)?
If surgery is not offered where would the patient be referred to?

Yours faithfully,

David Smith

FOI HywelDda (Hywel Dda UHB - Freedom of Information), Hywel Dda University Health Board

Cais am Wybodaeth o dan Deddf Rhyddid Gwybodaeth 2000

Diolch am eich cais diweddar am gyflenwi gwybodaeth gan Fwrdd Iechyd Prifysgol Hywel Dda.

O dan y Ddeddf, mae'n ofynnol i'r Bwrdd Iechyd gyflenwi'r wybodaeth i chi cyn pen 20 diwrnod gwaith, felly'r dyddia dhwyrach y gallwch chi ddisgwyl derbyn ymateb yw 19 Medi 2023. Yn yr achos annhebygol na allwn ymateb o fewn y terfyn amser hwn, byddwn yn cyfathrebu â chi ymhellach.

Atodwch ddolen ar ein tudalen sy'n darparu arweiniad ar ein gweithdrefn ar gyfer rheoli ceisiadau am wybodaeth a gwmpesir o dan y Ddeddf Rhyddid Gwybodaeth 2000.

Rhyddid gwybodaeth - Bwrdd Iechyd Prifysgol Hywel Dda (gig.cymru)

Information requested under the Freedom of Information Act 2000

Thank you for your recent request for the supply of information from Hywel Dda University Health Board.

Under the Act, the Health Board is required to supply the information to you within 20 working days, therefore the latest date by which you can expect to receive a response is 19 September 2023. In the unlikely event that we are unable to respond within this deadline, we will communicate with you further.

Please find attached a link to our webpage which provides guidance on our procedure for managing requests for information that is covered under the Freedom of Information Act 2000.

Freedom of information - Hywel Dda University Health Board (nhs.wales)

Hannah Gostling
Administrative Assistant
Hywel Dda University Health Board/Bwrdd lechyd Prifysgol Hywel Dda
Withybush General Hospital/Ysbyty Cyffredinol Llwynhelyg
Springfield Building/Adeilad Springfield
Haverfordwest/Hwlffordd

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FOI HywelDda (Hywel Dda UHB - Freedom of Information), Hywel Dda University Health Board

1 Attachment

Annwyl/Dear David

 

Amgaeaf ein hymateb i'ch cais am Rhyddid Gwybodaeth.

 

Please find attached our response to your Freedom of Information request.

 

Diolch/Thank you,

 

Rebecca Davies

 

Freedom of Information Officer/Swyddog Rhyddid Gwybodaeth

 

I am currently hybrid working. Therfore, please get in touch via email and
I will respond at the earliest opportunity.

 

E-bost/ Email: [1][Hywel Dda LHB request email]

 

Bwrdd Iechyd Prifysgol Hywel Dda yw enw gweithredol Bwrdd Iechyd Lleol
Hywel Dda/

Hywel Dda University Health Board is the operational name of Hywel Dda
Local Health Board

 

 

References

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