We don't know whether the most recent response to this request contains information or not – if you are Catherine Mackinlay please sign in and let everyone know.

PANS/PANDAS Diagnosis and Treatment

We're waiting for Catherine Mackinlay to read recent responses and update the status.

Catherine Mackinlay

Dear Great Ormond Street Hospital for Children NHS Foundation Trust,

In relation to the above diagnoses (PANS/PANDAS) which is currently listed in the proposed ICD-11 (shortly due for implementation), can the trust please outline its approach to diagnosing this condition and outline its proposed treatment protocols.

If the Trust has subsequently treated children for this diagnosis or similar diagnoses (such as immune dysregulation or immune mediated behaviours) can the Trust please outline how many children it has treated.

If the Trust has not diagnoses or treated children for this condition can the Trust please outline why it is presently not diagnosing this condition, the reason why and how it intends to comply with the implementation of the ICD-11 by 2022.

Yours faithfully,

Yvonne Ferns.

FOITeam, Great Ormond Street Hospital for Children NHS Foundation Trust

Thank you for contacting the Freedom of Information team at Great Ormond
Street Hospital for Children NHS Foundation Trust.
Your request will be managed in accordance with the Freedom of Information
Act 2000.  We will aim to respond to your query within 20 working days
from the date in which we have received your request.
You will be sent a reference number for your information request which
should be quoted during in further correspondence regarding your enquiry.
If you have any questions then please do not hesitate to contact us.
Many thanks,
The FOI Team
Great Ormond Street Hospital.
[email address]

FOITeam, Great Ormond Street Hospital for Children NHS Foundation Trust

Date: 29/07/2019                                       

Our reference:  FOIRQ5356

 

Dear Sir/Madam,

 

Thank you for your request to Great Ormond Street Hospital NHS Foundation
Trust on 29/07/2019, which we received on 29/07/2019

 

Your request for information is being processed as a freedom of
information request and you should expect to receive a response
by 23/08/2019

 

Should it be necessary to apply a fee for providing the information
requested we will issue a fees notification before releasing any
information.

 

If we anticipate any delays in responding to your request we will notify
you in writing, stating the reasons for this and the date by which we
expect to respond.

 

Your email will be used by Great Ormond Street Hospital for Children NHS
Foundation Trust for the purpose of processing your request.

 

The information you provide will be recorded for reference and may also be
used to monitor and review our Freedom of Information systems, processes
and policy.

 

Should you require any further information in the interim please do not
hesitate to contact us quoting the reference above.

 

 

Yours sincerely,

 

Freedom of Information Team

Great Ormond Street Hospital NHS Foundation Trust

[1][Great Ormond Street Hospital for Children NHS Foundation Trust request email]

--------------------------------------------------------------

 

show quoted sections

FOITeam, Great Ormond Street Hospital for Children NHS Foundation Trust

1 Attachment

Dear Madam,

 

Thank you for your request for information.

 

Please find attached the response to your request for information.

 

We hope that you find this information helpful.  Should you need to make
any further contact regarding your request, please quote the reference
number stated on the response.

 

Yours Sincerely,

 

 

Freedom of Information Team

Great Ormond Street Hospital NHS Foundation Trust

[1][Great Ormond Street Hospital for Children NHS Foundation Trust request email]

 

 

 

show quoted sections

References

Visible links
1. mailto:[Great Ormond Street Hospital for Children NHS Foundation Trust request email]

We don't know whether the most recent response to this request contains information or not – if you are Catherine Mackinlay please sign in and let everyone know.