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Pain Management in Autistic Spectrum Disorders

Jason Thomas made this Freedom of Information request to Cwm Taf Morgannwg University Health Board

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Dear Cwm Taf University Health Board,

1. Has the Pain Management team consultant Mr. Raj Mohammed Noori Khaffaf and pain management nurse Sara, of the Cwm Taf pain management team, had any specific training in recognising pain symptoms in those with an Autistic Spectrum Disorder?

2. Are the referenced consultant and nurse aware that those with an Autistic Spectrum Disoder, often do not display physical indications of pain via facial features and body language?

3. Are the referenced consultant and nurse aware that people with Autism have sensory problems, making specific areas of the body under-sensitive, or over-sensitive?

4. Are the referenced consultant and nurse aware that people with Autism often do not display symptoms of pain in the same way that those with neuro-typical brains do?

5. Can you list the training received by the referenced consultant and nurse above in relation to Autistic Spectrum Disorders?

6. Are the above referenced consultant and nurse aware of the recent guidance issued on Complex Regional Pain Syndrome?

7. Are they aware that the guidance for CRPS states that those with a confirmed diagnosis of CRPS are to be believed, rather than dismissed?

8. How many complaints have been received in relation to the above consultant and nurse, since May 2017 - when the consultant started working for Cwm Taf Health Board?

9. What would be the procedure for an autistic patient with a confirmed NHS diagnosis of CRPS follow, if the referenced Pain Management consultant and nurse, refused to treat the individual with Autism as they did not recognise they had pain symptoms, due to Autistic people not displaying typical visual pain responses? How does the individual access alternative specialist pain management service within Cwm Taf?

10. Would an individual with a dystonic limb due to CRPS, that had been issued a corrective brace via Cwm Taf NHS services. Be refused pain management support by the referenced above pain management consultant and nurse, because the individual was able to tolerate wearing the brace due to work with the Cwm Taf physiotherapy team?

11. Do the referenced consultant and nurse, believe a person diagnosed with CRPS can only have CRPS if they are unable to wear clothing or footwear over their affected limb? Does the wearing of clothing on an affected limb, indicate that the diagnosis of CRPS is incorrect?

12. Does the above referenced consultant and nurse understand that a lack of pain management support for those with CRPS can lead to suicide attempts?

13. Do the referenced pain management consultant and nurse understand that refusal to provide pain management treatment in CRPS, can lead to amputation of a limb?

Yours faithfully,
Mr. Jason Thomas
Disability Support Services

Julie Butler (Cwm Taf UHB - Corporate Development), Cwm Taf Morgannwg University Health Board

3 Attachments

Dear Mr Thomas,

 

Freedom of Information Request:  Our Reference CTHB_13_19

 

Thank you for your request for information.  We are currently processing
your request and will be in touch shortly.

 

We aim to provide you with a full response within 20 working days from
receipt of your request as required by the Freedom of Information Act.  If
this is not possible we will of course let you know.

 

In the meantime should you have any queries, please contact me, on 01443
744916 or [1][email address].

 

Kind regards

 

 

Julie Butler

Freedom of Information Officer / Swyddog Rhyddid Gwybodaeth

Corporate Development / Datblygu Corfforaethol

[2]IG Aware Signature

[3]cid:image002.png@01D48718.B715EFA0

----------------------------------------------------------

Cwm Taf University Health Board / Bwrdd Iechyd Prifysgol Cwm Taf

Headquarters - Pencadlys | Ynysmeurig House â TÅ· Ynysmeurig | Unit 3
Navigation Park

Uned 3 Parc Navigation

Abercynon

Rhondda Cynon Taf

CF45 4SN

----------------------------------------------------------

phone / ffôn :  01443 744916

fax / ffacs    :  01443 744888

 

WHTN: 01800 24916

 

[4][email address]

 

 

 

 

A wnewch chi ystyried yr amgylchedd cyn argraffu r neges hon
Please consider the environment before printing this email

Dolen gyswllt at ymwadiad Bwrdd Iechyd Prifysgol Cwm Taf - [5]Ymwadiad
Link to Cwm Taf Health Board email disclaimer - [6]Disclaimer

Dilynwch ni ar Twitter [7]@CwmTaf / Dilynwch ni ar [8]Facebook
Follow us on Twitter [9]@CwmTaf / Follow us on [10]Facebook

*Cwm Taf Health Board is the operational name of Cwm Taf University Local
Health Board
*Bwrdd Iechyd Prifysgol Cwm Taf yw enw gweithredol Bwrdd Iechyd Lleol
Prifysgol Cwm Taf

References

Visible links
1. mailto:[email address]
4. mailto:[email address]
5. http://cwmtaf.wales/e-mail-disclaimer/
6. http://cwmtaf.wales/e-mail-disclaimer/
7. https://twitter.com/cwmtaf
8. https://www.facebook.com/cwmtaf
9. https://twitter.com/cwmtaf
10. https://www.facebook.com/cwmtaf

Julie Butler (Cwm Taf UHB - Corporate Development), Cwm Taf Morgannwg University Health Board

3 Attachments

Dear Mr Thomas,

 

Freedom of Information Request:  Our Reference CTHB_13_19

 

Thank you for your request for information.  We are currently processing
your request and will be in touch shortly.

 

We aim to provide you with a full response within 20 working days from
receipt of your request as required by the Freedom of Information Act.  If
this is not possible we will of course let you know.

 

In the meantime should you have any queries, please contact me, on 01443
744916 or [1][email address].

 

Kind regards

 

 

Julie Butler

Freedom of Information Officer / Swyddog Rhyddid Gwybodaeth

Corporate Development / Datblygu Corfforaethol

[2]IG Aware Signature

[3]cid:image002.png@01D48718.B715EFA0

----------------------------------------------------------

Cwm Taf University Health Board / Bwrdd Iechyd Prifysgol Cwm Taf

Headquarters - Pencadlys | Ynysmeurig House â TÅ· Ynysmeurig | Unit 3
Navigation Park

Uned 3 Parc Navigation

Abercynon

Rhondda Cynon Taf

CF45 4SN

----------------------------------------------------------

phone / ffôn :  01443 744916

fax / ffacs    :  01443 744888

 

WHTN: 01800 24916

 

[4][email address]

 

 

 

 

A wnewch chi ystyried yr amgylchedd cyn argraffu r neges hon
Please consider the environment before printing this email

Dolen gyswllt at ymwadiad Bwrdd Iechyd Prifysgol Cwm Taf - [5]Ymwadiad
Link to Cwm Taf Health Board email disclaimer - [6]Disclaimer

Dilynwch ni ar Twitter [7]@CwmTaf / Dilynwch ni ar [8]Facebook
Follow us on Twitter [9]@CwmTaf / Follow us on [10]Facebook

*Cwm Taf Health Board is the operational name of Cwm Taf University Local
Health Board
*Bwrdd Iechyd Prifysgol Cwm Taf yw enw gweithredol Bwrdd Iechyd Lleol
Prifysgol Cwm Taf

References

Visible links
1. mailto:[email address]
4. mailto:[email address]
5. http://cwmtaf.wales/e-mail-disclaimer/
6. http://cwmtaf.wales/e-mail-disclaimer/
7. https://twitter.com/cwmtaf
8. https://www.facebook.com/cwmtaf
9. https://twitter.com/cwmtaf
10. https://www.facebook.com/cwmtaf

Julie Butler (Cwm Taf UHB - Corporate Development), Cwm Taf Morgannwg University Health Board

4 Attachments

Dear Mr Thomas,

 

Freedom of Information Request: Our Reference CTHB_13 _19

 

Further to your request for information, please see the response from Cwm
Taf University Health Board attached.

 

Please contact the Corporate Services Department if you have any queries.

 

Kind regards

 

 

Julie Butler

Freedom of Information Officer / Swyddog Rhyddid Gwybodaeth

Corporate Development / Datblygu Corfforaethol

[1]IG Aware Signature

[2]cid:image002.png@01D47815.1F69C9E0

----------------------------------------------------------

Cwm Taf University Health Board / Bwrdd Iechyd Prifysgol Cwm Taf

Headquarters - Pencadlys | Ynysmeurig House â TÅ· Ynysmeurig | Unit 3
Navigation Park

Uned 3 Parc Navigation

Abercynon

Rhondda Cynon Taf

CF45 4SN

----------------------------------------------------------

phone / ffôn :  01443 744916

fax / ffacs    :  01443 744888

 

WHTN: 01800 24916

 

[3][email address]

 

 

A wnewch chi ystyried yr amgylchedd cyn argraffu r neges hon
Please consider the environment before printing this email

Dolen gyswllt at ymwadiad Bwrdd Iechyd Prifysgol Cwm Taf - [4]Ymwadiad
Link to Cwm Taf Health Board email disclaimer - [5]Disclaimer

Dilynwch ni ar Twitter [6]@CwmTaf / Dilynwch ni ar [7]Facebook
Follow us on Twitter [8]@CwmTaf / Follow us on [9]Facebook

*Cwm Taf Health Board is the operational name of Cwm Taf University Local
Health Board
*Bwrdd Iechyd Prifysgol Cwm Taf yw enw gweithredol Bwrdd Iechyd Lleol
Prifysgol Cwm Taf

References

Visible links
3. mailto:[email address]
4. http://cwmtaf.wales/e-mail-disclaimer/
5. http://cwmtaf.wales/e-mail-disclaimer/
6. https://twitter.com/cwmtaf
7. https://www.facebook.com/cwmtaf
8. https://twitter.com/cwmtaf
9. https://www.facebook.com/cwmtaf

We don't know whether the most recent response to this request contains information or not – if you are Jason Thomas please sign in and let everyone know.