PACE trial raw data

Robin Ellis made this Freedom of Information request to Queen Mary University of London

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Robin Ellis
Delivered

Dear Queen Mary, University of London,

To QMUL has spent her 250,000 pounds on fighting the release of the real data from the PACE trial, that has been used for a number of publications, my understanding that this is only the fees on the appeal for the release of data relating to the small almost illegible graph in appendix 2 of the follow up trial- the one that shows the GET/CBT to be ineffective.

i.e. the data that the PACE, authors are taking so much extreme pains to hide from imminent scientists who wish to re-analyse the data. If the scientists had nothing to hide, there is little doubt that for that sake of 100 pounds or less an external hard drive, with the data on it would have been provided to the scientists and others requesting this unidentified data.

This leads me to my question, what is the date on which the QMUL - data policy will allow the trial authors to burn/destroy this raw data.

Yours faithfully,

Robin

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QM FOI Enquiries, Queen Mary University of London

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FOI 2016/F216
 
Dear Robin Ellis
 
Thank you for your email of 22nd July.
 
The PACE trial data will be retained until 2031, as explained on the
consent forms.
 
As an aside, the appeal at the First-Tier Tribunal (Information Rights)
concerned this request
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Commissioner to intervene. Please see [2]www.ico.org.uk for details.

Yours sincerely
 
Paul Smallcombe
Records & Information Compliance Manager
 

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