Opting out of secondary processing of uploaded data by the HHR

The request was successful.

Dear Southern Health NHS Foundation Trust,

Thank you for all your previous responses.

I would like to make a further request about your involvement with the Hampshire Health Record under the FOI Act.

For the purposes of the Act, please take the date of your receipt of this request as 15th April 2016.

I had made a request for information to NHS South, Central & West CSU (the data controller for the HHR), via NHS England. However, NHS England & the CSU claimed to not hold this information, an assertion that I have obviously challenged (as they must hold it).
https://www.whatdotheyknow.com/request/o...

I have little confidence in NHS England's capacity to respond lawfully, or in a timely fashion, to FOI requests, and since the HHR data controller (the CSU) will not provide me with this information it seems prudent to obtain the information that I seek from the individual organisations that are uploading information to the HHR database. For sure you know what you have permitted to happen to the data that you upload.

My request is simple and straightforward.

I note with interest that Hampshire Hospitals NHS FT, an organisation (like yours) uploading to the HHR, has not permitted information derived from its records to be used for secondary purposes (that is, for purposes other that direct medical care) by the HHR (or HHR analytics).
https://www.whatdotheyknow.com/request/3...
"It may also be helpful to know that HHFT only uploads data for the purposes of the health record; the Trust has opted out of making our data available for secondary uses such as the analytics database which is used for research."

I would like to know whether your organisation has taken that approach as well.

• Could you kindly tell me whether your organisation has opted out of making your uploaded data available for secondary uses such as the analytics database, just like HHNHSFT.

If not, and you do allow the HHR to process information that you have ectracted and uploaded for both primary (direct medical care) and secondary purposes, then please could you provide me with the following:

• The process by which patients may express to you their wish for information that you hold about them to be uploaded to the HHR for primary purposes *only*, or indeed whether such a wish cannot be respected and it is "all or nothing" with your organisation

I would be grateful if you would be kind enough to send me the requested information promptly and in any event not later than the twentieth working day following the date of receipt of my request.

I would be grateful if you would kindly acknowledge receipt of this request as recommended by the ICO ("It would be good practice to acknowledge receipt of requests and to refer to the 20 working day time limit, so that applicants know their request is being dealt with").

Thank you very much once again.

Yours sincerely,

Dr Neil Bhatia

Southern Health Freedom of Information, Southern Health NHS Foundation Trust

2 Attachments

Dear Dr Bhatia,

 

Thank you for your email and request for information.

 

Please find attached our letter of acknowledgement and confirmation that
this request is being handled under the Freedom of Information Act 2000.

 

Should you have any queries then please do not hesitate to contact me.

 

Thank you and kind regards,

 

Barney Langrish

Freedom of Information Officer

Southern Health NHS Foundation Trust
6 Sterne Road
Tatchbury Mount

Tel: 023 8087 4662

Email: [1][email address]

Web:
[2]www.southernhealth.nhs.uk                                                                                          

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Southern Health Freedom of Information, Southern Health NHS Foundation Trust

2 Attachments

Dear Dr Bhatia, 

I am pleased to say that we are in a position to respond to your request
concerning opting out of secondary processing of uploaded data by the HHR.
Please find a copy of our response attached for your attention. This
request has been handled under the Freedom of Information Act 2000.

 

We are always looking to improve our processes and would appreciate it if
you could please complete the attached feedback survey and send it to us
with any comments you may have.

 

I am obliged to inform you that all material supplied to you including,
layout, presentation, text, logos, icons, photos is copyright © Southern
Health NHS Foundation Trust, unless otherwise stated.  

You can use/re-use any information supplied or on our website free of
charge, unless indicated, in any format. This can include for your own
use, non-commercial research purposes and study, news reporting, and
copying. In all instances re-use is subject to the following conditions:
you must acknowledge and respect the source of our copyright in all cases,
you must reproduce the information accurately, you may not use the
information in a misleading way, and you may not use the information for
the purpose of advertising or promoting a product or service.

 

If you have any complaints in respect of your information request, please
ensure you send these within 60 days of the date of this response to
either this email address or by post to the address below.  We regret that
we will not respond to any complaints outside of the 60 day period.

 

Head of Legal and Insurance Services

Southern Health NHS Foundation Trust

5-6 Sterne Road

Tatchbury Mount

Calmore

Southampton

SO40 2RZ

 

If your complaint is not resolved to your complete satisfaction, you have
the right to apply to the Information Commissioner for a decision.  The
Information Commissioner’s Office can be contacted by way of letter
addressed to: 

 

Wycliffe House

Water Lane

Wilmslow

Cheshire

SK9 5AF

 

If you have any queries about this response, please contact me. It would
be useful if you would quote the reference above in any future
communications.

 

With best wishes,

Liz

 

Liz Béga, on behalf of the FOI Officer

Southern Health NHS Foundation Trust
6 Sterne Road
Tatchbury Mount

Tel: 023 8087 4662

Email: [1][email address]

Web:
[2]www.southernhealth.nhs.uk                                                                                          

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Dr Neil Bhatia left an annotation ()

More information about NHS data sharing, including:

• care.data
• The Summary Care Record,
• The Hampshire Health Record
• The Berkshire Health Record (Connected Care)
• The Manchester Care Record
• The Stockport Health and Care Record
• The Salford Integrated Record
• The West Cheshire Care Record
• The North Staffs and Stoke-on-Trent Shared Record
• The Dorset Care Record
• Secondary uses of your information
• Local data streaming initiatives
• The HSCIC
• Google DeepMind & the Royal Free NHSFT

can be found at:

www.nhsdatasharing.info

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