Opting out of secondary processing of uploaded data by the HHR

The request was successful.

Dear University Hospital Southampton NHS Foundation Trust,

Thank you for all your previous responses.

I would like to make a further request about your involvement with the Hampshire Health Record under the FOI Act.

For the purposes of the Act, please take the date of your receipt of this request as 15th April 2016.

I had made a request for information to NHS South, Central & West CSU (the data controller for the HHR), via NHS England. However, NHS England & the CSU claimed to not hold this information, an assertion that I have obviously challenged (as they must hold it).
https://www.whatdotheyknow.com/request/o...

I have little confidence in NHS England's capacity to respond lawfully, or in a timely fashion, to FOI requests, and since the HHR data controller (the CSU) will not provide me with this information it seems prudent to obtain the information that I seek from the individual organisations that are uploading information to the HHR database. For sure you know what you have permitted to happen to the data that you upload.

My request is simple and straightforward.

I note with interest that Hampshire Hospitals NHS FT, an organisation (like yours) uploading to the HHR, has not permitted information derived from its records to be used for secondary purposes (that is, for purposes other that direct medical care) by the HHR (or HHR analytics).
https://www.whatdotheyknow.com/request/3...
"It may also be helpful to know that HHFT only uploads data for the purposes of the health record; the Trust has opted out of making our data available for secondary uses such as the analytics database which is used for research."

I would like to know whether your organisation has taken that approach as well.

• Could you kindly tell me whether your organisation has opted out of making your uploaded data available for secondary uses such as the analytics database, just like HHNHSFT.

If not, and you do allow the HHR to process information that you have ectracted and uploaded for both primary (direct medical care) and secondary purposes, then please could you provide me with the following:

• The process by which patients may express to you their wish for information that you hold about them to be uploaded to the HHR for primary purposes *only*, or indeed whether such a wish cannot be respected and it is "all or nothing" with your organisation

I would be grateful if you would be kind enough to send me the requested information promptly and in any event not later than the twentieth working day following the date of receipt of my request.

I would be grateful if you would kindly acknowledge receipt of this request as recommended by the ICO ("It would be good practice to acknowledge receipt of requests and to refer to the 20 working day time limit, so that applicants know their request is being dealt with").

Thank you very much once again.

Yours sincerely,

Dr Neil Bhatia

FreedomOfInformation,

Dear Dr Bhatia,

 

I am writing to acknowledge receipt of your e-mail dated 15^th April 2016,
requesting information under the Freedom of Information Act 2000 regarding
opting out of secondary processing of uploaded data by the HHR.

 

We will endeavour to respond to your request within the twenty working day
timescale requirement set by the FOI Act (by 16^th May 2016). We will tell
you whether the Trust holds the information you have requested, and we
will contact you as soon as possible if for some reason we are delayed in
our response or if we require further information from you in order to
complete your request.

 

 

Yours,

 

Freedom of Information Officer

University Hospital Southampton NHS Foundation Trust

 

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Dear FreedomOfInformation,

Just a polite reminder that your response to my (straightforward) FOI request is now overdue.

Yours sincerely,

Dr Neil Bhatia

FreedomOfInformation,

2 Attachments

Dear Dr Bhatia,

 

Please find attached the Trust's response to your recent Freedom of
Information request.  I am sorry that this response has been delayed and
we have exceeded the 20 day timeframe set by the FOIA.

 

 

Yours

 

Freedom of Information Officer

University Hospital Southampton NHS Foundation Trust

 

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Dr Neil Bhatia left an annotation ()

More information about NHS data sharing, including:

• care.data
• The Summary Care Record,
• The Hampshire Health Record
• The Berkshire Health Record (Connected Care)
• The Manchester Care Record
• The Stockport Health and Care Record
• The Salford Integrated Record
• The West Cheshire Care Record
• The North Staffs and Stoke-on-Trent Shared Record
• The Dorset Care Record
• Secondary uses of your information
• Local data streaming initiatives
• The HSCIC
• Google DeepMind & the Royal Free NHSFT

can be found at:

www.nhsdatasharing.info

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