Number of children with a palliative diagnosis

The request was partially successful.

Dear Barts Health NHS Trust,

Could you please provide me with the following information:
1) The number of children known to you who are classified as having a palliative diagnosis, or who are not expected to live in to adulthood classified by postcode.
2) The number of expected deaths in your trust, broken down by hospital, for children in 2018-2019.
3) The number of child deaths on your premises who can be classified as 'expected', that were offered the choice of a place of death, either in the community or a hospice or other.

Yours faithfully,

R. Costello

Dear R Costello

Your Request for Information: FOI-0352-19

Thank you for your recent request for information.  This will be processed in accordance with the requirements of the Freedom of Information Act and you will receive a response within the stipulated timescale.

The FOI Act defines a number of exemptions which may prevent the release of the information you have requested. We will assess the material and if any of the exemption categories apply, then the information may not be released. We will tell you if that is so. If the information you request refers to a third party then they may be consulted prior to a decision being taken on whether or not to release the information to you. We will let you know if that is the case and give you an indication of the timescale for providing the information. There may be a fee payable for the information you have requested. The fee must be paid before the information is released. We will inform you if this is the case.

Information that we may provide in response to the Freedom of Information Act request will be subject to copyright protection. You may ask if you can re-use the information, perhaps for commercial purposes. Without the necessary permission you can breach our copyright. To enquire about re-using Trust information, please write to us at the above address or e-mail [Barts Health NHS Trust request email].

If you have any queries then please contact us at [Barts Health NHS Trust request email].

If you are dissatisfied on how your request has been handled, you can complain in writing to The Information Governance Manager, Barts Health NHS Trust:  E-mail [Barts Health NHS Trust request email].

Postal address:
The Information Governance Manager,
c/o Archives and Records Centre,
Barts Health NHS Trust,
Lower Ground Floor,
9 Prescot Street,
Aldgate, London E1 8PR
  
If, after  we have addressed your  complaint, you remain dissatisfied with how we have responded, you are entitled to appeal to the Information Commissioner (Tel: 01625 545 745). Details are shown at www.ico.org.uk.
    
Yours faithfully,

Maria Björklund
Freedom of Information Co-ordinator
Barts Health NHS Trust
9 Prescot Street
London, E1 8PR

T: 020 7480 4866
Website: www.bartshealth.nhs.uk
[Barts Health NHS Trust request email]

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Dear R Costello

The Trust has received your request, however, before we can proceed we require some clarification from you.

You have asked for data on the number of children with a palliative diagnosis. However, you have not specified what diagnoses you are interested in, other than them being 'palliative', therefore, please can you confirm whether you agree to narrow the scope to the following:

• Palliative Care (PC) patients are identified as having a diagnosis of either ‘Z515’ (Palliative Care), or ‘Z518’ (Other specified medical care).

Alternatively, please provide the specific diagnoses you are interested in.

We understand 'children' to mean patients 0-17 years (inclusive).

In accordance with the FOI Act and the FOI Code of Practice, your request will be put on hold while we wait your clarification and the clock restarted once sufficient clarification has been received.

Yours sincerely

Maria Björklund
Freedom of Information Co-ordinator
Barts Health NHS Trust
9 Prescot Street
London, E1 8PR

T: 020 7480 4866
Website: www.bartshealth.nhs.uk
[email address]
   
Please note our new Freedom of Information email address – [email address]

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Dear FOI,
Further to your response on 21.05.19, I hope I can clarify some of my request. I would be grateful if you could let me know how many hospital admissions and bed nights you have recorded for ‘Z515’ (Palliative Care).

Yours sincerely,

R Costello

BARTSHEALTH, FOI (BARTS HEALTH NHS TRUST), Barts Health NHS Trust

Dear R Costello

Thank you for your prompt response. Since your request has slightly changed, please can you confirm the time period you are interested in? (i.e. 2018/19)

Can you also confirm whether you still want to know:
1. the number of unique patients AND
2. the number of admissions AND
3. the number of bed nights?

(One patient may have had more than one admission)

In accordance with the FOI Act and the FOI Code of Practice, your request will be put on hold while we wait your clarification and the clock restarted once sufficient clarification has been received.

Kind regards

Maria Björklund
Freedom of Information Co-ordinator
Barts Health NHS Trust
9 Prescot Street
London, E1 8PR

T: 020 7480 4866
Website: www.bartshealth.nhs.uk
[email address]

Please note our new Freedom of Information email address – [email address]

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Dear BARTSHEALTH, FOI (BARTS HEALTH NHS TRUST),

Thank your for your latest response. If possible would could I have the figures for the last three years e.g. 2018-2019, 2017-2018, 2016-2017

I would be interested in knowing the figures all of the following questions if possible.
1. the number of unique patients AND
2. the number of admissions AND
3. the number of bed nights?

Yours sincerely,

R Costello

BARTSHEALTH, FOI (BARTS HEALTH NHS TRUST), Barts Health NHS Trust

Dear R Costello

Thank you for clarifying your request. This will be processed in accordance with the requirements of the Freedom of Information Act and you will receive a response within the stipulated timescale.

The FOI Act defines a number of exemptions which may prevent the release of the information you have requested. We will assess the material and if any of the exemption categories apply, then the information may not be released. We will tell you if that is so. If the information you request refers to a third party then they may be consulted prior to a decision being taken on whether or not to release the information to you. We will let you know if that is the case and give you an indication of the timescale for providing the information. There may be a fee payable for the information you have requested. The fee must be paid before the information is released. We will inform you if this is the case.

Information that we may provide in response to the Freedom of Information Act request will be subject to copyright protection. You may ask if you can re-use the information, perhaps for commercial purposes. Without the necessary permission you can breach our copyright. To enquire about re-using Trust information, please write to us at the above address or e-mail [email address]

If you have any queries then please contact us at [email address]

If you are dissatisfied on how your request has been handled, you can complain in writing to The Information Governance Manager, Barts Health NHS Trust: E-mail [email address]

Postal address:
The Information Governance Manager,
c/o Archives and Records Centre,
Barts Health NHS Trust,
Lower Ground Floor,
9 Prescot Street,
Aldgate, London E1 8PR

If, after we have addressed your complaint, you remain dissatisfied with how we have responded, you are entitled to appeal to the Information Commissioner (Tel: 01625 545 745). Details are shown at www.ico.org.uk.

Yours faithfully,

Maria Björklund
Freedom of Information Co-ordinator
Barts Health NHS Trust
9 Prescot Street
London, E1 8PR

T: 020 7480 4866
Website: www.bartshealth.nhs.uk
[email address]

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1 Attachment

Dear R Costello

Please find attached the Trust's response to your request.

Yours sincerely

Maria Björklund
Freedom of Information Co-ordinator
Barts Health NHS Trust
9 Prescot Street
London, E1 8PR

T: 020 7480 4866
Website: www.bartshealth.nhs.uk
[Barts Health NHS Trust request email]
   
Please note our new Freedom of Information email address – [Barts Health NHS Trust request email]