We don't know whether the most recent response to this request contains information or not – if you are Louisa Hackett please sign in and let everyone know.

Number of children in the UK newly diagnosed with PANS PANDAS 2020, 2021,2022

Louisa Hackett made this Freedom of Information request to Office for National Statistics Automatic anti-spam measures are in place for this older request. Please let us know if a further response is expected or if you are having trouble responding.

We're waiting for Louisa Hackett to read a recent response and update the status.

Dear Office for National Statistics,

Please tell me the number of newly diagnosed cases of
PANS (“Pediatric Acute-onset Neuropsychiatric Syndrome”) & PANDAS (“Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections” in the UK.
For 2020, 2021 & 2022

Thank you
Yours faithfully,

Louisa Hackett

system@share.ons.gov.uk,

Workflow Notification

──────────────────────────────────────────────────────────────────────────

Thank you for your Freedom of Information request.

 

We can confirm that your request has been received and is being dealt
with. We will aim to respond to your request as soon as possible, and no
later than 20 working days from when we received your request. Should we
experience any delays with processing your request by this deadline, we
will keep you informed.

 

If you have any further questions please do not hesitate to contact us at
[1][ONS request email].

 

In the meantime, please take a look at our previously published FOI
requests via the following link:
[2]https://www.ons.gov.uk/aboutus/transpare....

 

If you find the information that you are looking for on our website,
please get back in touch with us to close your request.

 

Yours Faithfully

 

The Freedom of Information Team

Office for National Statistics

 

──────────────────────────────────────────────────────────────────────────

References

Visible links
1. mailto:[ONS request email]
2. https://www.ons.gov.uk/aboutus/transpare...

FOI Team, Office for National Statistics

Our Reference: FOI/2023/5015

 

Dear Louisa

 

Thank you for your email requesting data pertaining to PANS and PANDAS in
the UK 2020-2022

 

I am writing to confirm that the Office for National Statistics has now
completed its search for the information which you requested and the
response can be found here:

You asked:

 

Please tell me the number of newly diagnosed cases of PANS ("Pediatric
Acute-onset Neuropsychiatric Syndrome") & PANDAS ("Pediatric Autoimmune
Neuropsychiatric Disorders Associated with Streptococcal Infections" in
the UK.

 

For 2020, 2021 & 2022

 

We said:

 

​Thank you for your request.

 

We do not hold data relating to Paediatric Acute-onset Neuropsychiatric
Syndrome & PANDAS Paediatric Autoimmune Neuropsychiatric Disorders
Associated with Streptococcal Infections in children or adults in the
United Kingdom

 

For England, this data would be held by NHS Digital who can be contacted
on [1][email address]

 

For Wales, this data is published by Public Health Wales who can be
contacted on  [2][email address]

 

For Scotland, this data is published by Public Health Scotland. Please use
[3]Your FOI request - Freedom of Information (FOI) -  Public Health
Scotland to submit a request.

 

For Northern Ireland, please contact  Department of Health
(health-ni.gov.uk) who can be contacted at [4][email address]

 

 

You have the right to have this response to your Freedom of Information
request reviewed internally by an internal review process and, if you
remain unhappy with the decision, by the Information Commissioner. If you
would like to have the decision reviewed please email the Freedom of
Information Team at ‘[ONS request email]’ or write to The FoI Team, Office
for National Statistics, Segensworth Road, Titchfield PO15 5RR, and mark
your correspondence "Internal Review".

If you have any queries about this email, please contact the Freedom of
Information Team ('[ONS request email]').

Please remember to quote the reference number above in any future
communications.

 

The Freedom of Information Team

Office for National Statistics

 

For information on Coronavirus, please visit [5]ONS.gov.uk/coronavirus

 

References

Visible links
1. mailto:[email address]
2. mailto:[email address]
3. https://www.publichealthscotland.scot/co...
4. mailto:[email address]
5. http://ons.gov.uk/coronavirus

We don't know whether the most recent response to this request contains information or not – if you are Louisa Hackett please sign in and let everyone know.