NHD Information
JJ Evans made this Freedom of Information request to Manchester University NHS Foundation Trust This request has been closed to new correspondence. Contact us if you think it should be reopened.
Dear Manchester University NHS Foundation Trust,
Under FOI, I am requesting the below information which is contained within the National Haemophilia Database.
It should be made clear that as data controller of this information (as defined by GDPR legislation which became enforceable as of 25th May 2018) you are the relevant authority.
It will be unacceptable in this circumstance to claim that this request should go to the UKHCDO. The UKHCDO is not a public authority and therefore unwilling and not obliged to accept Freedom of Information requests.
I have it in writing from Centre Director Prof Charles Hay that you are a data controller and that you host this data on NHS Servers.
In any case, as a data controller, you are obliged to comply with this request, you are the appropriate authority and the information is not obtainable from any other source.
Any attempt to exempt this request on grounds similar to those mentioned above will immediately be subject to Internal Review followed by escalation to the ICO and beyond if necessary.
Lastly I would remind you that the Freedom of Information act covers any recorded information that is held by a public authority in England, Wales and Northern Ireland, and by UK-wide public authorities based in Scotland.
The information requested from the NHD is as follows:
• TOTAL NUMBER OF HEPATITIS C INFECTIONS RECORDED IN USERS OF FACTOR VIII & IX CONCENTRATE PRODUCTS OF HUMAN PLASMA ORIGIN SINCE 1973 TO PRESENT DAY.
• TOTAL NUMBER OF HIV INFECTIONS RECORDED IN USERS OF FACTOR VIII & IX CONCENTRATE PRODUCTS OF HUMAN PLASMA ORIGIN SINCE 1973 TO PRESENT DAY .
• TOTAL NUMBER OF DEATHS RECORDED AS A RESULT OF HEPATITIS C AND/OR HEPATITIS C ATTRIBUTABLE CONDITIONS IN USERS OF FACTOR VIII & IX CONCENTRATE PRODUCTS OF HUMAN PLASMA ORIGIN SINCE 1973 TO PRESENT DAY . INCLUDING A FIGURE OF HOW MANY OF THESE PEOPLE WERE ALSO INFECTED WITH HIV.
• TOTAL NUMBER OF DEATHS RECORDED AS A RESULT OF HIV/AIDS AND/OR HIV/AIDS ATTRIBUTABLE CONDITIONS IN USERS OF FACTOR VIII & IX CONCENTRATE PRODUCTS OF HUMAN PLASMA ORIGIN SINCE 1973 TO PRESENT DAY.
• IT WOULD BE APPRECIATED IF THE INFORMATION PROVIDED IS AS COMPLETE AS POSSIBLE AND PROVIDED IN AN “ANNUAL BREAKDOWN” FORMAT FOR THE ENTIRE UK BASED ON THE INFORMATION YOU HOLD.
Yours faithfully,
JJ Evans
Dear J Evans,
We are writing to acknowledge receipt of your request for information
under the Freedom of Information Act 2000.
Your request has been assigned the following reference number FOI 447-18
and we would be grateful if you could quote this reference number in any
future correspondence relating to your request.
We will endeavor to respond to your request at the earliest opportunity
and within the statutory 20 working day time limit, subject to the
following constraints:-
The Freedom of Information Act 2000 defines a number of exemptions, which
may prevent the release of the information you have requested. If any of
the exemption categories apply, the information will not be released to
you and we will advise you accordingly, including your rights of appeal.
Further information is also available from the Information Commissioner
at:-
Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
SK9 5AF
Telephone: 0303 123 1113
Website: [1]www.ico.org.uk
If you require any further information regarding your request please do
not hesitate to contact us.
Yours sincerely,
FOI Team
Informatics
Manchester University NHS Foundation Trust Headquarters
Cobbett House
Oxford Road
Manchester M13 9WL
T: 0161 701 0375
E: [2][MFT request email]
cid:image003.png@01D33B54.1A16CD70
[3]www.mft.nhs.uk
Dear Mr Evans,
Please find attached the response to your recent FOI request.
We apologise for the delay in our response and any inconvenience this may
have caused.
Kind regards,
FOI Team
FOI Team
Informatics
Manchester University NHS Foundation Trust Headquarters
Cobbett House
Oxford Road
Manchester M13 9WL
T: 0161 701 0375
E: [1][MFT request email]
cid:image003.png@01D33B54.1A16CD70
[2]www.mft.nhs.uk
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References
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2. http://www.mft.nhs.uk/
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