National Haemophilia Database notifications
JJ Evans made this Freedom of Information request to NHS Digital This request has been closed to new correspondence. Contact us if you think it should be reopened.
Dear NHS Digital,
Under the FOI act I would like to know how many notifications have been made to the National Haemophilia Database (UKHCDO) upon deaths of their registered patients. Ideally this would be supplied on a year-by-year basis.
The 2013 Information Governance Assessment of the UKHCDO (NHD - National Haemophilia Database) explains that there is an arrangement in place whereby the ONS notify the UKHCDO when one of their registered patients dies. That report can be found here (See page 2, point 3) - http://www.ukhcdo.org/wp-content/uploads...
I previously asked the ONS for this information, you can see their response at the link below which states "The report refers to a medical research study managed by NHS Digital who notify the National Haemophilia Database of such deaths."
https://www.ons.gov.uk/aboutus/transpare...
Yours faithfully,
JJ Evans
Ref: NIC-142075-X5V0L
Dear JJ Evans,
I am writing to acknowledge that your request for information was received
by NHS Digital on 18/09/2017 and is currently being considered.
If NHS Digital is able to provide you with the information you have
requested, then under the Freedom of Information (FOI) Act you are
entitled to receive it promptly and in any event no later than the 20th
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Contact Centre Team
NHS Digital
[2]www.digital.nhs.uk
0300 303 5678
[3][email address]
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Dear HSCIC Enquiries,
You have not responded to the following FOI request placed on 15th September 2017: https://www.whatdotheyknow.com/request/4...
By law, you should normally have responded promptly and by 13th October 2017.
Please, could you provide an update in regard to the above request?
Yours sincerely,
JJ Evans
Ref: NIC-142075-X5V0L
Dear JJ Evans,
Many thanks for your recent request to NHS Digital.
We have now received a reply to this from our colleagues in the
Information Governance team.
Please see the attached file(s).
Kind Regards,
Contact Centre Team
NHS Digital
[1]www.digital.nhs.uk
0300 303 5678
[2][email address]
1 Trevelyan Square | Boar Lane | Leeds | LS1 6AE
HSCIC now operate under the new trading name of NHS Digital – clarifying
our role as the national information and technology partner for the health
and care system.
NHS Digital Customer Service Contact Centre in Leeds, has been awarded
Customer Service Excellence Standard Certification, In accordance with the
requirements of the Cabinet Offices Customer Service Excellence Standard
References
Visible links
1. http://www.digital.nhs.uk/
2. mailto:[email%20address]
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