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Myelofibrosis Treatment

BEN HOLDSWORTH made this Freedom of Information request to Orkney NHS Board as part of a batch sent to 136 authorities This request has been closed to new correspondence. Contact us if you think it should be reopened.

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BEN HOLDSWORTH
Delivered

Dear Orkney NHS Board,

The following questions are being asked for on behalf of Novartis. The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.
A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).
b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.
A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:
• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

Link to this Report
ORK FOIrequests, Orkney NHS Board

FOI Request – Acknowledgement of Receipt
I hereby acknowledge receipt of the request below:

Reference number allocated to this request:
202223-221
(Please quote this reference number in any future correspondence relating to this request.)
The official date of your request is:
23/08/2022
A response should be sent to your request no later than:
20/09/2022

Note: NHS Orkney is a small remote and rural health board within Scotland. All responses to Freedom of Information requests are collated in accordance with the terms of the Freedom of Information (Scotland) Act 2002.

The Freedom of Information (Scotland) Act 2002 states that a public authority must inform the applicant in writing whether it holds the requested information and if so, communicate that information to the applicant, promptly, but not later than 20 working days after receipt of the request.

For further details please refer to The Scottish Information Commissioner’s website.

Sent by:
Freedom of Information Office
NHS Orkney
The Balfour,
Foreland Road,
Kirkwall,
KW15 1NZ

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Link to this Report
ORK FOIrequests, Orkney NHS Board

1 Attachment

Dear Mr. Holdsworth,

Please find attached the response from NHS Orkney to your FOI request.

Kind regards, Jenna

Jenna Johnston
Freedom of Information (FOI) Officer
The Balfour, Foreland Road, Kirkwall, KW15 1NZ
Tel: 01856 888220
FOI Requests e-mail: [email address]
Subject Access Requests e-mail: [email address]

Please note days of work: Monday and Thursday

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