Myelofibrosis Treatment

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Dear The Newcastle Upon Tyne Hospitals NHS Foundation Trust,

The following questions are being asked for on behalf of Novartis. The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.
A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).
b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.
A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:
• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

FREEDOM.INFORMATION (THE NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST), The Newcastle Upon Tyne Hospitals NHS Foundation Trust

 

Thank you for contacting the Newcastle upon Tyne Hospitals NHS Foundation
Trust.

 

Please accept this email as acknowledgement of your Freedom of Information
request. 

 

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FREEDOM.INFORMATION (THE NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST), The Newcastle Upon Tyne Hospitals NHS Foundation Trust

Dear Ben,

Reference: Myelofibrosis Treatment - 889794-6f2bda64
Please find this email as acknowledgement of your recent request under the Freedom of Information Act 2000. We aim to respond to your request within 20 working days.
Kind regards

Freedom of Information
Corporate Risk & Data Assurance Team
The Newcastle upon Tyne Hospitals NHS Foundation Trust

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FREEDOM.INFORMATION (THE NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST), The Newcastle Upon Tyne Hospitals NHS Foundation Trust

Good Morning Ben,

In order to respond to your recent FOI request, the team who are gathering the data require further clarification to identify and collate this information. Are you able to please provide the following:

With regards to question 4a;
Q4a. How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

We are unable to report on date of diagnosis. We could only provide information on the numbers of patients who have had inpatient admissions where myelofibrosis was recorded as a relevant diagnosis - but can't indicate when the diagnosis was made.
Could you please confirm whether you would like the numbers where the diagnosis was recorded (but unable to confirm whether this was within the past 3 years) or would you prefer to submit an alternative question

Please note we will be unable to respond to your request until this clarification has been received, this will be provided within the timescale of 20 working days from receipt.

Kind regards

Freedom of Information
Corporate Risk & Data Assurance Team
The Newcastle upon Tyne Hospitals NHS Foundation TrustQ4a. How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
We cannot do as we can't report on date of diagnosis. We could only provide information on the numbers of patients who have had inpatient admissions where myelofibrosis was recorded as a relevant diagnosis - but can't indicate when the diagnosis was made

show quoted sections

FREEDOM.INFORMATION (THE NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST), The Newcastle Upon Tyne Hospitals NHS Foundation Trust

Good Morning Ben,

In order to respond to your recent FOI request, the team who are gathering the data require further clarification to identify and collate this information. Are you able to please provide the following:

With regards to question 4a;
Q4a. How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

We are unable to report on date of diagnosis. We could only provide information on the numbers of patients who have had inpatient admissions where myelofibrosis was recorded as a relevant diagnosis - but can't indicate when the diagnosis was made.
Could you please confirm whether you would like the numbers where the diagnosis was recorded (but unable to confirm whether this was within the past 3 years) or would you prefer to submit an alternative question

Please note we will be unable to respond to your request until this clarification has been received, this will be provided within the timescale of 20 working days from receipt.

Kind regards

Freedom of Information
Corporate Risk & Data Assurance Team
The Newcastle upon Tyne Hospitals NHS Foundation TrustQ4a. How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
We cannot do as we can't report on date of diagnosis. We could only provide information on the numbers of patients who have had inpatient admissions where myelofibrosis was recorded as a relevant diagnosis - but can't indicate when the diagnosis was made

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