Myelofibrosis Treatment
Dear Surrey and Sussex Healthcare NHS Trust,
The following questions are being asked for on behalf of Novartis. The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.
Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?
Q2.
A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).
b) How many of these patients were above age 65?
Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?
Q4.
A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:
• Hydroxyurea
• Fedratinib
• Received No Treatment
Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.
Thank you for taking the time to answer these questions and I look forward to your response.
Yours faithfully,
Ben Holdsworth
Dear Ben,
Thank you for your request for information which is now being handled
under the terms of the Freedom of Information Act 2000.
Your request is receiving attention and we will provide a response within
20 working days, that is, by 21 September 2022.
Please contact me if you have any queries in the interim, quoting our
reference (FOI 7152) and I will be happy to help.
Kind regards,
Jeanette
Jeanette Randall
Freedom of information officer and communications support
Communications and marketing
Surrey and Sussex Healthcare NHS Trust
East Surrey Hospital, Redhill, RH1 5RH
[1][Surrey and Sussex Healthcare NHS Trust request email]
[2]www.surreyandsussex.nhs.uk
Please note: I work remotely on Mondays and Fridays and Wednesday is my
non-working day
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Dear Ben,
Please see attached our response to your Freedom of Information request.
Kind regards,
Jeanette
Jeanette Randall
Freedom of information officer and communications support
Communications and marketing
Surrey and Sussex Healthcare NHS Trust
East Surrey Hospital, Redhill, RH1 5RH
[1][Surrey and Sussex Healthcare NHS Trust request email]
[2]www.surreyandsussex.nhs.uk
Please note: I work remotely on Mondays and Fridays and Wednesday is my
non-working day
One Team l Compassion l Dignity and Respect l Safety and Quality
[3]cid:image004.png@01D71C18.3931D940
Follow us on social media: [4]Twitter ¦ [5]Facebook ¦ [6]LinkedIn ¦
[7]YouTube
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