Dear NHS England,

I have recently been diagnosed with multiple myeloma (MM) and am doing some research into the disease. Please could you provide me with the following information using the most recently available figures (preferably 2017).

1. What is the cost to the NHS per patient of initial induction treatment for newly diagnosed MM patients who are deemed fit enough for autologous stem cell transplantation?
a) Using VTD
b) Using VLD
c) Using VCD
d) Using PAD

2. What is the cost per patient for ASCT?

3. What mortality rates are associated with the four treatment options above?

4. What are the median survival times of patients with the four treatment options above?

Yours faithfully,

Jane Finbow

CONTACTUS, England (NHS ENGLAND), NHS England

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FOI, England (NHS ENGLAND), NHS England

Dear Ms Finbow ,  

 

Thank you for your communication dated 15 June 2018.

 

NHS England has assessed your communication as a request under the Freedom
of Information (FOI) Act 2000. As such, please be assured that your
request is being dealt with under the terms of the FOI Act and will be
answered within twenty working days.

 

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communications are progressed correctly. Their postal address, telephone
number and email details are as follows:- PO Box 16738, Redditch, B97 9PT;
0300 3 11 22 33, [2][NHS England request email].

 

Yours sincerely,

 

Freedom of Information

Corporate Communications Team

Transformation and Corporate Operations Directorate

 

NHS England

PO Box 16738

REDDITCH

B97 9PT

 

Tel: 0300 311 22 33

Email: [3][NHS England request email]

 

‘Health and High quality care for all, now and for future generations’

 

 

 

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FOI, England (NHS ENGLAND), NHS England

Dear Ms Finbow

 

Re:      Freedom of Information request (Our Ref: FOI-056640)

 

Thank you for your Freedom of Information (FOI) request 15 June 2018.

 

Your exact request was:-

 

“Multiple myeloma statistics; please could you provide me with the
following information using the most recently available figures
(preferably 2017).

 

1. What is the cost to the NHS per patient of initial induction treatment
for newly diagnosed MM patients who are deemed fit enough for autologous
stem cell transplantation?

a) Using VTD

b) Using VLD

c) Using VCD

d) Using PAD

 

2. What is the cost per patient for ASCT?

 

3. What mortality rates are associated with the four treatment options
above?

 

4. What are the median survival times of patients with the four treatment
options above?”

NHS England holds some information relevant to your request. Our answers
have been numbered for your convenience-please note that there is a single
answer covering both questions 3) and 4).

 

1)    NHS England does not hold this information. The financial data we
hold does not differentiate between the cost of providing these treatments
to patients with multiple myeloma and the cost of providing treatment to
those with other conditions.

 

2)    NHS England holds some information relevant to your request. I can
advise that there is no set national tariff for autologous stem cell
transplant in England.  There are historically agreed local prices set
across the country.  These prices are not directly comparable, as the
make-up of the tariff has different agreed components in each area, for
example, in some areas a drug may be excluded from tariff but included in
another area.  Tariffs for adult autographs range from approx. £20,000 to
£40,000 with a mean of approx. £29,500.  Work is ongoing to develop a
standardised national tariff.

 

3)    and 4) NHS England holds some information relevant to your request. 
NHS England does not record mortality rates or median survival times for
each of the individual treatment options mentioned. However, the British
Society of Bone and Marrow Transplantation (BSBMT) provide an annual
report on long term survival after transplant to NHS England that includes
Multiple Myeloma.  The latest report provided in 2017  is an analysis of
registry data for UK transplants performed 2009-2014 inclusive and a
detailed analysis of transplant activity and outcomes in 2015.  From the
information available, the overall survival rate table below is for first
autologous transplants for multiple myeloma carried out between
2009-2014. 

 

 

Age Total Patients Total Survival Survival Survival
Transplanted Alive rate 1yr rate 2yr rate 5yr*
Adults >60 3017 2249 94% 87% 63%
Adults <60 2642 2000 95% 87% 67%

 

*% only includes patients 5 years post-transplant

 

The report notes an increase in the 5 year survival from previous reports
which may reflect the improvement in therapies for relapse post autograft.

In terms of mortality the main cause of death is disease relapse. The  3
main causes of non- relapse death post-transplant 2009-2014 is recorded in
the table below:

 

Total non-relapse deaths Infection Cardiac Respiratory
254 110 (43%) 32 (13%) 49 (19%)

 

In summary, autologous stem cell transplantation remains the commonest
indication and a standard of care in multiple myeloma for patients fit
enough for intensive therapy. The number of cases is largely stable and
safety and survival remain very good.

 

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licence. Please see the NHS England Terms and conditions on the following
link [1]http://www.england.nhs.uk/terms-and-cond...

 

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Please do not reply to this email. This message has been sent from a
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Information (FOI) requests, enquiries or complaints we ask these are sent
directly to NHS England’s customer contact centre. This is to ensure all
communications are progressed correctly. Their postal address, telephone
number and email details are as follows:- PO Box 16738, Redditch, B97 9PT;
0300 3 11 22 33, [5][NHS England request email].

 

 

Yours sincerely,

 

Freedom of Information

Corporate Communications Team

Transformation and Corporate Operations Directorate

 

NHS England

PO Box 16738

REDDITCH

B97 9PT

 

Tel: 0300 311 22 33

Email: [NHS England request email]

 

 

 

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