metastatic Cholangiocarcinoma (CCA) and Acute myeloid leukaemia (AML)
Dear Northern Health and Social Care Trust (Northern Ireland),
Please can I request answers relating to the below questions. A national collation of this information will be made available to any trust requesting it in reply.
1. How many patients in the last 12 months has the trust treated for metastatic Cholangiocarcinoma (CCA) or Acute myeloid leukaemia (AML)?
a. For each of AML and CCA, how many have IDH-1 mutation?
b. How many CCA are intrahepatic vs extrahepatic?
i. How many of each of these present at 2nd line? How many of these at 2nd line have IDH-1 mutation?
c. For AML, how many patients were not fit for intensive chemotherapy? How many of these AML patients have IDH-1 mutation?
2. How many patients have been treated with pemigatinib (CCA), venetoclax plus azacitadine dual therapy or azacitadine monotherapy (AML )?
a. What is the average treatment duration for CCA patients treated with pemigatinib and AML patients treated with azacitadine dual therapy and azacitadine monotherapy? What is the preferred azacitadine product?
3. What is the real-world dosing for venetoclax (in combination with a CYP3A4)?
a. What is the antifungal of choice for patients treated with venetoclax?
b. What is the antifungal average treatment duration when used in combination with venetoclax ?
c) what proportion of patients are treated with an antifungal in combination with venetoclax? In what proportion of patients is the antifungal treatment stopped? In what proportion of these pts is the venetoclax dosage altered following cessation of the antifungal?
4. Do you routinely test CCA and AML patients for IDH-1 mutation?
a. If so when does the testing take place. E.g. at diagnosis or following 1st line progression? Is this done using NGS panel? Is this done using PCR testing?
B. What is the average turnaround time for these tests?
5. Who is responsible for the routine management of patients with CCA and AML?
a. Clinical oncologist / medical oncologist / specialist nurse etc?
6. How many admissions have occurred in the last 12 months for patients with CCA and AML?
a. What is their average length of stay?
b. How many of these patients were readmissions or readmitted during this time? If readmitted, can you state the main reason?
Thank you for taking the time to supply this information.
Yours faithfully,
Oliver Caswell
Thank you for your email which has been received by the Information
Governance Department and will be responded to in due course.
CONFIDENTIAL
Our ref: FOI/46
By Email:
Dear Oliver Caswell
FREEDOM OF INFORMATION ACT 2000 – INFORMATION REQUEST
Thank you for your request for information received by us today,
requesting information about FOI/46.
Your request is being dealt with under freedom of information requirements
and will be answered within 20 working days.
In the interim should you have any queries about your request, please do
not hesitate to contact us – our contact information is outlined below in
the footnote.
IF ISSUED BY EMAIL –
Should you wish to reply to this email, please be careful not to amend the
information in the ‘subject’ field. This will ensure that the information
is added directly to your case. However, please be aware that this is an
automated process; the information will not be read by a member of our
staff until your case is allocated to a request handler.
Yours sincerely,
INFORMATION GOVERNANCE DEPARTMENT
Your request for information
I am writing to apologise for the delay in responding to your request for
information.
Please be assured that the Trust are endeavouring to respond to your
request as soon as possible.
Yours sincerely
INFORMATION GOVERNANCE DEPARTMENT
CONFIDENTIAL
Our ref: FOI/46
24/10/2022
Dear Oliver Caswell
FREEDOM OF INFORMATION ACT 2000 – INFORMATION REQUEST
Thank you for your request for information of 6th September
2022 requesting information about Metastatic Cholangiocarcinoma (CCA) and
Acute myeloid leukaemia (AML)
Trust decisions in relation to the release of information that the Trust
holds are governed by the Freedom of Information Act (FOIA) 2000, the Data
Protection Act (DPA)/GDPR 2018 and other pieces of associated legislation.
If you are dissatisfied with the Trust’s response, you may request an
Internal Review… in writing or by email to the Data Protection Officer,
Mrs Nicola Lyons, at the address below.
[1][email address]
I trust that the information provided is helpful to you. However, if I
can be of any further assistance, please do not hesitate to contact me.
IF ISSUED BY EMAIL –
Should you wish to reply to this email, please be careful not to amend the
information in the ‘subject’ field. This will ensure that the information
is added directly to your case. However, please be aware that this is an
automated process; the information will not be read by a member of our
staff until your case is allocated to a request handler.
Yours sincerely,
Marjorie Moore
Enc. Att
[NOTE REFERENCE TO
INFORMATION REQUESTED
AND
RESPCTIVE RESPONSES]
EG:
[reproduce question 1]
[provide response]
[reproduce question 2]
[provide response]
References
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CONFIDENTIAL
Our ref: FOI/281
18/01/2023
[INSERT ADDRESS/EMAIL] By Email:
Dear Oliver Caswell
FREEDOM OF INFORMATION ACT 2000 – INFORMATION REQUEST
Thank you for your request for information received by us today,
requesting information about FOI/281.
Your request is being dealt with under freedom of information requirements
and will be answered within 20 working days.
In the interim should you have any queries about your request, please do
not hesitate to contact us – our contact information is outlined below in
the footnote.
Yours sincerely,
INFORMATION GOVERNANCE DEPARTMENT
Should you wish to reply to this email, please be careful not to amend the
information in the ‘subject’ field. This will ensure that the information
is added directly to your case. However, please be aware that this is an
automated process; the information will not be read by a member of our
staff until your case is allocated to a request handler.
Your request for information
I am writing to apologise for the delay in responding to your request for
information.
Please be assured that the Trust are endeavouring to respond to your
request as soon as possible.
Yours sincerely
INFORMATION GOVERNANCE DEPARTMENT
Dear Mr Caswell,
Further to your request, please find attached the Trust’s response.
Trust decisions in relation to the release of information that the Trust
holds are governed by the Freedom of Information Act (FOIA) 2000, the Data
Protection Act (DPA)/GDPR 2018 and other pieces of associated legislation.
If you are dissatisfied with the Trust’s response, you may request an
Internal Review… in writing or by email to the Data Protection Officer,
Mrs Nicola Lyons, at the addresses below.
[1][email address]
Or
Mrs Nicola Lyons
Data Protection Officer
Information Governance Department
Route Complex
8e Coleraine Road
Ballymoney
Co Antrim
BT53 6BP
I trust that the information provided is helpful to you. However, if I
can be of any further assistance, please do not hesitate to contact me.
Yours sincerely,
Jenny Ferris
Information Governance Officer
Attach.
References
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1. mailto:[email address]
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