Integrated Care Pilots

Cornwall Partnership NHS Foundation Trust did not have the information requested.

Dear Cornwall Partnership NHS Foundation Trust,

With regard to the following document:

http://www.dh.gov.uk/prod_consum_dh/grou...

according to page iv (page 15 of the electronic document), your
organisation (or organisations you commission) took part in this
research. Please could you provide the following responses to my
enquiries?

1) Were staff who were involved in caring for service users aware
that they and their patients were participating in this research?

2) If the answer to question 1 is 'Yes', were patients made aware
that they were participating in this research?

3) Were patients asked for their consent (I am aware that NIGB and
Cambridgeshire ethics committee decided that patients' consent was
not required) or given an opportunity to opt out?

4) If patients were not asked for their consent, would the
following have prevented their automatic enrolment in the research:
a) PDS flag set to 'sensitive';
b) CRS flag set to 'dissent to sharing across organisational
boundaries';
c) I assume all patients were asked for explicit consent for
information to pass between separate organisations involved in
their care, so therefore could you confirm those not consenting
would not have been included in the research?

5) What other measures could patients adopt to prevent you or your
providers automatically enrolling them in research in the future
without their knowledge or consent, or passing their (anonymised or
otherwise) information on?

6) If patients were not asked for their consent at the time, would
a request under the Data Protection Act yield an accurate answer as
to whether they were included in this research or not?

Yours faithfully,

Mr Rawlins

Cornwall Partnership NHS Foundation Trust

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show quoted sections

Dear Cornwall Partnership NHS Foundation Trust,

With regard to the following document:

http://www.dh.gov.uk/prod_consum_dh/grou...

according to page iv (page 15 of the electronic document), your
organisation (or organisations you commission) took part in this
research. Please could you provide the following responses to my
enquiries?

1) Were staff who were involved in caring for service users aware
that they and their patients were participating in this research?

2) If the answer to question 1 is 'Yes', were patients made aware
that they were participating in this research?

3) Were patients asked for their consent (I am aware that NIGB and
Cambridgeshire ethics committee decided that patients' consent was
not required) or given an opportunity to opt out?

4) If patients were not asked for their consent, would the
following have prevented their automatic enrolment in the research:
a) PDS flag set to 'sensitive';
b) CRS flag set to 'dissent to sharing across organisational
boundaries';
c) I assume all patients were asked for explicit consent for
information to pass between separate organisations involved in
their care, so therefore could you confirm those not consenting
would not have been included in the research?

5) What other measures could patients adopt to prevent you or your
providers automatically enrolling them in research in the future
without their knowledge or consent, or passing their (anonymised or
otherwise) information on?

6) If patients were not asked for their consent at the time, would
a request under the Data Protection Act yield an accurate answer as
to whether they were included in this research or not?

Yours faithfully,

Mr Rawlins

-------------------------------------------------------------------

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-------------------------------------------------------------------

Cornwall Partnership NHS Foundation Trust

Dear Mr Rawlins
 
With regard to your request for information  unfortunately we are unable
to access the document from the Department of Health website. The reason
given is that it cannot be found as it may have been removed, had its name
changed, or be temporarily unavailable. Please therefore would you be able
to supply me with an electronic copy of this report so that we may provide
the information requested.
 
The prescribed time limit of 20 days in which to reply to a request made
under Freedom of Information has been stalled until you respond to this
email.
 
Kind regards
 
 
 
Freedom of Information Team
Cornwall Partnership NHS Foundation Trust
Trust Headquarters
Porthpean Road
St Austell
PL26 6AD
Tel: 01726 291267
Website:www.cornwallfoundationtrust.nhs.uk
 
Passionate about our services
 

>>> Mr Rawlins <[FOI #112891 email]> 07/04/2012
02:54 >>>
     Dear Cornwall Partnership NHS Foundation Trust,
    
     With regard to the following document:
    
     [1]http://www.dh.gov.uk/prod_consum_dh/grou...
    
     according to page iv (page 15 of the electronic document), your
     organisation (or organisations you commission) took part in this
     research. Please could you provide the following responses to my
     enquiries?
    
     1) Were staff who were involved in caring for service users aware
     that they and their patients were participating in this research?
    
     2) If the answer to question 1 is 'Yes', were patients made aware
     that they were participating in this research?
    
     3) Were patients asked for their consent (I am aware that NIGB and
     Cambridgeshire ethics committee decided that patients' consent was
     not required) or given an opportunity to opt out?
    
     4) If patients were not asked for their consent, would the
     following have prevented their automatic enrolment in the research:
     a) PDS flag set to 'sensitive';
     b) CRS flag set to 'dissent to sharing across organisational
     boundaries';
     c) I assume all patients were asked for explicit consent for
     information to pass between separate organisations involved in
     their care, so therefore could you confirm those not consenting
     would not have been included in the research?
    
     5) What other measures could patients adopt to prevent you or your
     providers automatically enrolling them in research in the future
     without their knowledge or consent, or passing their (anonymised or
     otherwise) information on?
    
     6) If patients were not asked for their consent at the time, would
     a request under the Data Protection Act yield an accurate answer as
     to whether they were included in this research or not?
    
     Yours faithfully,
    
     Mr Rawlins
    
     -------------------------------------------------------------------
    
     Please use this email address for all replies to this request:
     [FOI #112891 email]
    
     Is [Cornwall Partnership NHS Foundation Trust request email] the wrong address for Freedom of
     Information requests to Cornwall Partnership NHS Foundation Trust?
     If so, please contact us using this form:
     [2]http://www.whatdotheyknow.com/help/contact
    
     Disclaimer: This message and any reply that you make will be
     published on the internet. Our privacy and copyright policies:
     [3]http://www.whatdotheyknow.com/help/offic...
    
     If you find this service useful as an FOI officer, please ask your
     web manager to link to us from your organisation's FOI page.
    
    
    

show quoted sections

References

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1. http://www.dh.gov.uk/prod_consum_dh/grou...
2. http://www.whatdotheyknow.com/help/contact
3. http://www.whatdotheyknow.com/help/offic...

Dear Cornwall Partnership NHS Foundation Trust,

The DoH seem to have altered the address the document is located at. Try this link:

http://www.dh.gov.uk/prod_consum_dh/grou...

Yours faithfully,

Mr Rawlins

Cornwall Partnership NHS Foundation Trust

1 Attachment

Dear Mr Rawlins,
 
Please see the attached letter from Lisa Kelvin.
 
Kind regards,
 
Freedom of Information Team
Cornwall Partnership NHS Foundation Trust
Trust Headquarters
Porthpean Road
St Austell
PL26 6AD
Tel: 01726 291267
Website:www.cornwallfoundationtrust.nhs.uk
 
Passionate about our services
 

show quoted sections

Cornwall Partnership NHS Foundation Trust

2 Attachments

Please see the attached letter from Lisa Kelvin.
 
 
Freedom of Information Team
Cornwall Partnership NHS Foundation Trust
Trust Headquarters
Porthpean Road
St Austell
PL26 6AD
Tel: 01726 291267
Website:www.cornwallfoundationtrust.nhs.uk
 
Passionate about our services
 

show quoted sections