Dear Bournemouth and Poole Teaching Primary Care Trust (PCT),

With regard to the following document:

http://www.dh.gov.uk/prod_consum_dh/grou...

according to page iv (page 15 of the electronic document), your organisation (or organisations you commission) took part in this research. Please could you provide the following responses to my enquiries?

1) Were staff who were involved in caring for service users aware that they and their patients were participating in this research?

2) If the answer to question 1 is 'Yes', were patients made aware that they were participating in this research?

3) Were patients asked for their consent (I am aware that NIGB and Cambridgeshire ethics committee decided that patients' consent was not required) or given an opportunity to opt out?

4) If patients were not asked for their consent, would the following have prevented their automatic enrolment in the research:
a) PDS flag set to 'sensitive';
b) CRS flag set to 'dissent to sharing across organisational boundaries';
c) I assume all patients were asked for explicit consent for information to pass between separate organisations involved in their care, so therefore could you confirm those not consenting would not have been included in the research?

5) What other measures could patients adopt to prevent you or your providers automatically enrolling them in research in the future without their knowledge or consent, or passing their (anonymised or otherwise) information on?

6) If patients were not asked for their consent at the time, would a request under the Data Protection Act yield an accurate answer as to whether they were included in this research or not?

Yours faithfully,

Mr Rawlins

FOI Requests (NHS Bournemouth and Poole), Bournemouth and Poole Teaching Primary Care Trust (PCT)

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The Freedom of Information Team

NHS Bournemouth and Poole/NHS Dorset

Canford House

Discovery Court Business Centre

551-553 Wallisdown Road

POOLE BH12 5AG

[1][NHS Bournemouth and Poole request email]

 

References

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FOI Requests (NHS Bournemouth and Poole), Bournemouth and Poole Teaching Primary Care Trust (PCT)

1 Attachment

NHS BOURNEMOUTH AND POOLE, NHS DORSET

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The Freedom of Information Team

NHS Bournemouth and Poole/NHS Dorset

Canford House

Discovery Court Business Centre

551-553 Wallisdown Road

POOLE BH12 5AG

[1][NHS Bournemouth and Poole request email]

 

References

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