inherited cardiac conditions Services for Northampton
Dear NHS Northamptonshire Integrated Care Board,
Further to the advise from
https://www.bhf.org.uk/informationsuppor...
What if I don’t live in an area where specialist ICC services are available?
Ideally, you should be referred to a regional ICC service. These exist in all UK nations. This is particularly important where there is a family history of sudden death from an ICC. If you are at risk of an ICC, or have an ICC, you should at the very least be under the care of a cardiologist. It’s not enough to be under the care of just your GP
Please can you give me details of the inherited cardiac conditions Services for Northampton, the commissioning documents showing what service should be provided and details of the regional ICC service patients are referred to.
Yours faithfully,
Linda saunders
Good afternoon Linda Saunders
Thank you for your email.
To assist you promptly I can advise that neither Kettering or Northampton
General Hospital have a specialist team. Both sites have consultants with
specialist interest in ICC and who have arrangements with other sites in
Oxford and Leicester.
Please see further information in the attached and at the following links
[1]Clinical Genetics (northamptongeneral.nhs.uk) [2]Adult Congenital
Heart Disease (ACHD) - Cardiothoracic Services (ouh.nhs.uk) [3]NHS
England » Cardiology: Inherited Cardiac Conditions (All Ages)
I hope this provides you with the information sought. Please clarify if
that is not the case and we can progress a request for any missing
information.
Kind regards
Philip Humphreys
On behalf of NHS Northamptonshire ICB
FOI team Arden & GEM CSU
Engagement, Communications and Marketing
NHS Arden and Greater East Midlands Commissioning Support Unit
St. John’s House, East Street, Leicester, LE1 6NB
T: 01246 514965
E: [4][NHS Northamptonshire Integrated Care Board request email]
W: [5]www.ardengemcsu.nhs.uk
[6]Description: cid:image004.jpg@01D03175.7654D4B0
Dear NHS Northamptonshire Integrated Care Board,
Please pass this on to the person who conducts Freedom of Information reviews.
I am writing to request an internal review of NHS Northamptonshire Integrated Care Board's handling of my FOI request 'inherited cardiac conditions Services for Northampton'.
The response was not for my request
I asked:
"Please can you give me details of the inherited cardiac conditions Services for Northampton,
the commissioning documents showing what service should be provided
and details of the regional ICC service patients are referred to."
You replied to a request about hypertrophic cardiomyopathy
https://www.bhf.org.uk/informationsuppor...
mentions all inherited cardiac conditions
The commissioning document requested should show the different pathways and NHS commissioned care in place for Northampton for the different ICCs e.g.
FH Familiar Hyperlipidemia and Familiar Hypercholorestromia
hypertrophic cardiomyopathy
etc..
A full history of my FOI request and all correspondence is available on the Internet at this address: https://www.whatdotheyknow.com/request/i...
Yours faithfully,
Linda saunders
Good morning Linda Saunders
Thank you for your email.
To assist you promptly NHS Northamptonshire ICB provided a response to a
substantially similar request, also submitted via the whatdotheyknow
website, to an inherited cardiac condition. The ICB asked for
clarification if the previous response did not provide the information
sought.
Thank you for clarifying that the previous response has not satisfied the
request. We will progress a request for information for the following
Further to the advise from
[1]https://www.bhf.org.uk/informationsuppor...
What if I don’t live in an area where specialist ICC services are
available?
Ideally, you should be referred to a regional ICC service. These exist in
all UK nations. This is particularly important where there is a family
history of sudden death from an ICC. If you are at risk of an ICC, or have
an ICC, you should at the very least be under the care of a cardiologist.
It’s not enough to be under the care of just your GP
Please can you give me details of the inherited cardiac conditions
Services for Northampton, the commissioning documents showing what service
should be provided and details of the regional ICC service patients are
referred to.
and respond on or before 11 Sept. Our reference number is 71393.
Kind regards
Philip Humphreys
On behalf of Northamptonshire ICB
Good morning Linda Saunders
Further to the below please see the ICB’s response attached.
Kind regards
Philip Humphreys
On behalf of Northamptonshire ICB
From: FOI.NORTHANTS (NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING
SUPPORT UNIT) <[NHS Northamptonshire Integrated Care Board request email]>
Sent: 14 August 2023 09:50
To: [FOI #1012978 email]
Cc: FOI.NORTHANTS (NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING
SUPPORT UNIT) <[NHS Northamptonshire Integrated Care Board request email]>
Subject: RE: Internal review of Freedom of Information request - inherited
cardiac conditions Services for Northampton
Good morning Linda Saunders
Thank you for your email.
To assist you promptly NHS Northamptonshire ICB provided a response to a
substantially similar request, also submitted via the whatdotheyknow
website, to an inherited cardiac condition. The ICB asked for
clarification if the previous response did not provide the information
sought.
Thank you for clarifying that the previous response has not satisfied the
request. We will progress a request for information for the following
Further to the advise from
[1]https://www.bhf.org.uk/informationsuppor...
What if I don’t live in an area where specialist ICC services are
available?
Ideally, you should be referred to a regional ICC service. These exist in
all UK nations. This is particularly important where there is a family
history of sudden death from an ICC. If you are at risk of an ICC, or have
an ICC, you should at the very least be under the care of a cardiologist.
It’s not enough to be under the care of just your GP
Please can you give me details of the inherited cardiac conditions
Services for Northampton, the commissioning documents showing what service
should be provided and details of the regional ICC service patients are
referred to.
and respond on or before 11 Sept. Our reference number is 71393.
Kind regards
Philip Humphreys
On behalf of Northamptonshire ICB
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