Information regarding Jakavi

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Dear East Lancashire Hospitals NHS Trust,

I would like to request information for the below questions.

The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.

A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).

b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.

A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:

• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

Freedom of Information (ELHT) Mailbox, East Lancashire Hospitals NHS Trust

2 Attachments

 

Thank you for your Freedom of Information Request under the terms of the
Freedom of Information Act 2000 – Ref: 2022-001

 

Under the Act, the department is ordinarily required to provide you with a
response within 20 working days.  

 

Please be advised that due to the current unprecedented demands being
placed on the NHS, there may be a delay in answering your questions as
colleagues across the Trust are currently engaged with tackling the
Covid-19 pandemic. 

 

We will write to you in response to your request for information by 4^th
May 2022.

 

The Freedom of Information Act includes a number of exemptions to
releasing information. Some of these are qualified exemptions which
require us to consider whether it is in the public interest to disclose or
withhold the information. In these circumstances we may need more time to
consider your request, and if this is the case we will write to you by the
date above to inform you of when you can expect to receive a response. If
you have any queries regarding this request please do not hesitate to
contact me, quoting the reference number at the top of this email in all
future correspondence.

 

Details of how we will process your request are available on our website
at: [1]https://elht.nhs.uk/about-us/freedom-of-...

 

Yours sincerely

 

Freedom of Information Team

East Lancashire Hospitals NHS Trust

 

[2][email address]

 

 

 

Website: [3]www.elht.nhs.uk

Twitter: [4]www.twitter.com/ELHT_NHS

Facebook: [5]www.facebook.com/ELHT.NHS

 

Corporate Offices Building | Royal Blackburn Teaching Hospital
| Haslingden Road | Blackburn | Lancashire | BB2 3HH

The information contained in this email may be privileged.  It is intended
for the addressee only.  If you are not the intended recipient, or the
designated substitute, please notify the sender and delete this email
immediately.  The contents of this email must not be disclosed without the
sender's consent.  We cannot accept any responsibility for viruses, so
please scan all attachments.

 

 

 

 

 

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Freedom of Information (ELHT) Mailbox, East Lancashire Hospitals NHS Trust

3 Attachments

Dear Ben Holdsworth

 

Please find attached the response to your FOI request.  We would be
grateful if you would complete and return the below satisfaction survey.

Kind regards

The FOI Team

Please E-mail the electronic version to [1][email address]

 

1.            How do you rate the quality of service provided

                o Very Good
                o Good
                o Satisfactory
                o Poor

2.            How do you rate the degree to which the response answered
your request

                o Very Good
                o Good
                o Satisfactory
                o Poor

3.            How do you rate the ease of understanding of the response

                o Very Good
                o Good
                o Satisfactory
                o Poor

4.            How do you rate the overall helpfulness of replies

                o Very Good
                o Good
                o Satisfactory
                o Poor

5.           If any of the information was withheld, were you told which
exemptions had been applied to the information?

                o Yes
                o No
                o Not applicable

6.            Did you receive the information within the 20-working day
deadline?
                (if yes, please go to question 10)

                o Yes
                o No

7.       If you did not receive the information within the 20-day
deadline, were you advised about the delay and kept informed about the
progress?
                o Yes
                o No

8.            Did you look at the Publication Scheme on the Website to try
to find the information?
                o Yes
                o No

9.            If yes, how would you rate the ease of locating the
information?

                o Very Good
                o Good
                o Satisfactory
                o Poor

10.          Please give any further comments you would like to make

 

 

 

 

Thank you and regards 

 

Freedom of Information Team 

East Lancashire Hospitals NHS Trust 

[2][email address

 

 

 

 

From: Freedom of Information (ELHT) Mailbox <[email address]>
Sent: 01 April 2022 13:04
To: 'BEN HOLDSWORTH' <[FOI #849770 email]>
Cc: Freedom of Information (ELHT) Mailbox <[email address]>
Subject: **ACKNOWLEDGEMENT ** FOI Request Ref: 2022-001

 

 

Thank you for your Freedom of Information Request under the terms of the
Freedom of Information Act 2000 – Ref: 2022-001

 

Under the Act, the department is ordinarily required to provide you with a
response within 20 working days.  

 

Please be advised that due to the current unprecedented demands being
placed on the NHS, there may be a delay in answering your questions as
colleagues across the Trust are currently engaged with tackling the
Covid-19 pandemic. 

 

We will write to you in response to your request for information by 4^th
May 2022.

 

The Freedom of Information Act includes a number of exemptions to
releasing information. Some of these are qualified exemptions which
require us to consider whether it is in the public interest to disclose or
withhold the information. In these circumstances we may need more time to
consider your request, and if this is the case we will write to you by the
date above to inform you of when you can expect to receive a response. If
you have any queries regarding this request please do not hesitate to
contact me, quoting the reference number at the top of this email in all
future correspondence.

 

Details of how we will process your request are available on our website
at: [3]https://elht.nhs.uk/about-us/freedom-of-...

 

Yours sincerely

 

Freedom of Information Team

East Lancashire Hospitals NHS Trust

 

[4][email address]

 

 

 

Website: [5]www.elht.nhs.uk

Twitter: [6]www.twitter.com/ELHT_NHS

Facebook: [7]www.facebook.com/ELHT.NHS

 

Corporate Offices Building | Royal Blackburn Teaching Hospital
| Haslingden Road | Blackburn | Lancashire | BB2 3HH

The information contained in this email may be privileged.  It is intended
for the addressee only.  If you are not the intended recipient, or the
designated substitute, please notify the sender and delete this email
immediately.  The contents of this email must not be disclosed without the
sender's consent.  We cannot accept any responsibility for viruses, so
please scan all attachments.

 

 

 

 

 

show quoted sections