Information regarding Jakavi
Dear Coventry and Warwickshire Partnership NHS Trust,
I would like to request information for the below questions.
The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.
Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?
Q2.
A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).
b) How many of these patients were above age 65?
Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?
Q4.
A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?
b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:
• Hydroxyurea
• Fedratinib
• Received No Treatment
Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.
Thank you for taking the time to answer these questions and I look forward to your response.
Yours faithfully,
Ben Holdsworth
The NHS is facing unprecedented challenges during the coronavirus
(COVID-19) pandemic. Understandably, our resources are being diverted
away from the usual compliance and information rights work to support
colleagues who are working tremendously hard to provide care for our
patients, and to those in need of our services.
Whilst we recognise that statutory timescales cannot be extended, at this
time, the care of our patients and the safety of our staff takes
precedent, therefore it is likely that responses to some requests for
information will be delayed.
We apologise for this position in advance, and will endeavour to provide
you with as much information as we can, as soon as we are able.
Information Governance Team
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Dear requestor,
Thank you for your email of 31st March 2022 requesting information from Coventry & Warwickshire Partnership Trust (the Trust).
Coventry and Warwickshire Partnership Trust (CWPT) provides mental health, learning disability, autism and community services across Coventry, Warwickshire and Solihull. The Trust does not provide acute services. Consequently, the Trust is unable to provide the information requested, and is informing you of this as required under Section 1(1) (a) of the Act.
You may wish to contact one of the hospitals listed below;
University Hospitals of Coventry and Warwickshire
FOI and Access to Health Records Department
University Hospitals Coventry and Warwickshire NHS Trust
CSB Room 20018
Clifford Bridge Road
Coventry
CV2 2DX
Tel No: 024 7696 4000
www.uhcw.infreemation.info/forms/foi/
George Eliot Hospital
Freedom of Information Request
George Eliot Hospital NHS Trust
Lewes House
Nuneaton
CV10 7DJ
E-mail: [email address]
http://www.geh.nhs.uk/about-us/data-cent...
Warwick Hospital
Information Governance Department
Warwick Hospital
Lakin Road
Warwick
CV34 5BW
Email: [email address]
www.swft.nhs.uk/privacy-policy
If you are dissatisfied with the outcome or handling of your request you should write to us via email [email address]
In the event you are dissatisfied with the outcome of the internal review you can contact the Information Commissioners Office (ICO) at https://ico.org.uk/global/contact-us/
Kind Regards
Kirsty Bolochowecki
Information Governance Officer
Coventry and Warwickshire Partnership NHS Trust
Trust HQ, Wayside House, Wilsons Lane, Coventry, CV6 6NY
Base: Please note that I currently work from home.
Tel: Please note that I do not have access to a works phone therefore please email or call me via MS Teams
Email: [email address] / [email address]
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