Dear Bridgewater Community Healthcare NHS Foundation Trust,

I would like to request information for the below questions.

The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.

A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).

b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.

A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:

• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

FOI (BRIDGEWATER COMMUNITY HEALTHCARE NHS FOUNDATION TRUST),

Thank you for your request.

Further clarification may be required to ensure your request is dealt with appropriately if this is the case we will make further contact with you. In some circumstances a fee may be payable and if that is the case, we will let you know. A fees notice will be issued to you, and you will be required to pay before we will proceed to deal with your request.

If you have any queries, please do not hesitate to contact me quoting the reference number above.

Yours sincerely,

FOI Co-ordinator
Information Governance Team
Europa Boulevard, Westbrook, Warrington, Cheshire, WA5 7TY
[email address]

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FOI (BRIDGEWATER COMMUNITY HEALTHCARE NHS FOUNDATION TRUST),

Dear Mr Holdsworth

We are a community trust providing care in clinics and patient homes. Your request is not applicable to us and should be directed to the hospital trusts.

If you are not satisfied with the information you have been provided with you have 40 working days to complain or request an internal review, please return email or write to the above address.

If you are not satisfied with our review under the Freedom of Information Act, you may apply directly to the Information Commissioner for a decision. Generally, the Information Commissioner’s Office cannot make a decision unless you have exhausted our complaints procedure.

The Information Commissioner can be contacted at: The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF

If you need any further assistance, please do not hesitate to contact me quoting the above reference number.

Please note that your request will be published on our website. This is because information disclosed in accordance with the FOI Act is disclosed to the public at large. We will, of course, remove your personal information (e.g. your name and contact details) from the website to protect your personal information from general disclosure.

Yours sincerely,
Freedom of Information Co-ordinator

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