Information regarding Jakavi

The request was successful.

Dear The Rotherham NHS Foundation Trust,

I would like to request information for the below questions.

The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.

A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).

b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.

A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:

• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

FREEDOM-OF-INFORMATION (THE ROTHERHAM NHS FOUNDATION TRUST), The Rotherham NHS Foundation Trust

Dear Ben,

 

We are writing to acknowledge receipt of your request for information
under the Freedom of Information Act 2000.  Your request has been assigned
the following reference number 6322 please could you quote this reference
number in any future correspondence relating to your request.

 

We will endeavour to respond to your request at the earliest opportunity
within the statutory 20 working day time limit subject to the following
constraints:

 

 a. The Freedom of Information Act 2000 defines a number of exemptions,
which may prevent the release of the information you have requested.
If any of the exemption categories apply, the information will not be
released to you and we will advise you accordingly, including your
rights of appeal.

 

(b) If the information you have requested contains reference to a third
party, we will consult with them prior to making a decision on whether to
release the information to you.  

 

Further information is also available from the Information Commissioner
at:

Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

SK9 5AF

Telephone: 0303 123 1113

Website: [1]www.ico.org.uk

 

If we can be of any further assistance in the meantime, please do not
hesitate to contact us.

Yours sincerely,

 

The Freedom of Information Office

The Rotherham NHS Foundation Trust

 

 

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FREEDOM-OF-INFORMATION (THE ROTHERHAM NHS FOUNDATION TRUST), The Rotherham NHS Foundation Trust

1 Attachment

 

 

Dear Ben,

 

Thank you for your request for information received on the 1^st April 2022
under The Freedom of Information Act 2000 (the FOI Act).

 

The Rotherham NHS Foundation Trust does hold the information that you have
requested and has decided to release the information – please see the
attached document.

 

Please note – dependent on your version of word, the document may be read
only and you will need to click on view and select ‘edit document’ to
allow access to embedded documents.

 

We hope the information provided satisfies your request.

 

If you consider that your request for information has not been properly
handled or if you are otherwise dissatisfied with the outcome of your
request, you can try to resolve this informally with the person who dealt
with your request.

 

If you remain dissatisfied, you may seek an internal review within The
Rotherham NHS Foundation Trust of the issue or the decision. A senior
member of the Trust’s staff, who has not previously been involved in
collating the response to your request, will undertake that review.
Requests for an internal review must be submitted within two months of the
date of receipt of this response and should be addressed to:  The Freedom
of Information Office [1][The Rotherham NHS Foundation Trust request email]

 

If you are dissatisfied with the outcome of any internal review conducted
by the Trust, you may complain to the Information Commissioner for a
decision on whether your request for information has been dealt with in
accordance with the FOI Act. The Information Commissioner can be contacted
at:

 

Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

SK9 5AF

 

Telephone: 0303 123 1113

Website: [2]www.ico.org.uk

 

Copyright Notice:

 

We would like to take this opportunity to remind you that information
disclosed under the Freedom of Information Act is still protected by
copyright laws. The disclosure does not give you ‘the applicant’ the right
to breach the copyright of the copyright holder.

 

Any information provided is the property of The Rotherham NHS Foundation
Trust and subject to Intellectual Property and Database Rights.   Any
commercial application or use of this information will be subject to the
provisions of the Re-use of Public Sector Information Regulations 2005.
This means that if you wish to re-use the information provided for
commercial purposes for any reason you must ask us for permission to do
so.

 

The information provided to you from The Rotherham NHS Foundation Trust
should not be used to construct a database for direct marketing purposes
and unsolicited emails infringing the copyright in the material provided
or otherwise processed in contravention of the rights of the named
individuals under the Data Protection Act unless you have our explicit
permission separate to this FOI request.

 

To do so you will need to apply to:

The Rotherham NHS Foundation Trust

Moorgate Road

Rotherham

South Yorkshire

S60 2UD

 

Or via e-mail at:  [3][The Rotherham NHS Foundation Trust request email]

Yours sincerely,

   

The Freedom of Information Office

The Rotherham NHS Foundation Trust

 

 

From: FREEDOM-OF-INFORMATION (THE ROTHERHAM NHS FOUNDATION TRUST)
<[The Rotherham NHS Foundation Trust request email]>
Sent: 01 April 2022 11:50
To: BEN HOLDSWORTH <[FOI #849904 email]>
Cc: FREEDOM-OF-INFORMATION (THE ROTHERHAM NHS FOUNDATION TRUST)
<[The Rotherham NHS Foundation Trust request email]>
Subject: 6322 FOI - Myelofibrosis

 

Dear Ben,

 

We are writing to acknowledge receipt of your request for information
under the Freedom of Information Act 2000.  Your request has been assigned
the following reference number 6322 please could you quote this reference
number in any future correspondence relating to your request.

 

We will endeavour to respond to your request at the earliest opportunity
within the statutory 20 working day time limit subject to the following
constraints:

 

 a. The Freedom of Information Act 2000 defines a number of exemptions,
which may prevent the release of the information you have requested.
If any of the exemption categories apply, the information will not be
released to you and we will advise you accordingly, including your
rights of appeal.

 

(b) If the information you have requested contains reference to a third
party, we will consult with them prior to making a decision on whether to
release the information to you.  

 

Further information is also available from the Information Commissioner
at:

Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

SK9 5AF

Telephone: 0303 123 1113

Website: [4]www.ico.org.uk

 

If we can be of any further assistance in the meantime, please do not
hesitate to contact us.

Yours sincerely,

 

The Freedom of Information Office

The Rotherham NHS Foundation Trust

 

 

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