Information regarding Jakavi

The request was refused by Somerset NHS Foundation Trust.

Dear Somerset NHS Foundation Trust,

I would like to request information for the below questions.

The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.

A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).

b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.

A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:

• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

FOI, Somerset NHS Foundation Trust

2 Attachments

Dear Mr Holdsworth

 

The FOI Act clearly states that  If we suspect that the request has come
from a Pseudonym we are entitled to request proof of the person’s
identity, as provision of a Pseudonym invalidates a request, therefore
please can you provide a photo copy of your driver’s licence or other
official document that validates your identity.

 

Our request for identification is in  compliance with the Information
Commissioner guidance “Recognising a request made under the Freedom of
Information Act (section 8) Version 1.2”.  We would like to  draw your
attention to paragraphs 14, 15, 16, 20, 21 22 and 35 of this guidance. 
[1]https://ico.org.uk/for-organisations/gui...
and “What makes a valid request?”

 

Therefore we are requesting this from you as it appears that your request
has other characteristics that might suggest you are working on behalf of
a company/ corporate body. 

 

If you are making the request on behalf of a company/corporate body as an
employee, then you should declare its name in your request and this will
enable us to consider the request’s validity.

 

Somerset NHS Foundation Trust needs to be assured that time spent on
requests within a 60 working day period does not exceed the appropriate
limit for each applicant, be that a person, group or company.   In this
way we promote fair use of the Act and best use of our resources.

 

The ICO states:

 

The Act recognises that freedom of information requests are not the only
demand on the resources of a public authority. They should not be allowed
to cause a drain on your time, energy and finances to the extent that they
negatively affect your normal public functions.

 

The Trust cannot assess fair processing without your response to this
email and there is no right of appeal with the ICO, if the real name is
not used. (See ICO guidance).

 

Your request will therefore be paused until we receive the information
requested. We will continue to process your request when you have supplied
this. If we do not hear from you within two months we will close your
request.

 

 

Jo

 

Jo Routley

Information Governance Assistant

Tel: 01823 344191 | Email: [2][email address]

[3]https://somersetft.nhs.uk/| Twitter: [4]@SomersetFT | Facebook:
[5]/somersetft

Information Governance Team,  Unit J, Crown Close, Crown Industrial
Estate, Priorswood, Taunton,TA2 8RX
   
 

 

 

 

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