Information regarding Jakavi

Oxleas NHS Foundation Trust did not have the information requested.

Dear Oxleas NHS Foundation Trust,

I would like to request information for the below questions.

The purpose of these questions is to understand the variability of treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you refer these patients to?

Q2.

A) Please provide the total number of patients treated in the last 6 months (or the latest 6 months data you have available) for myelofibrosis (ICD10 code D47.4).

b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with Ruxolitinib?

Q4.

A) How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years?

b) Of these patients, how many were treated in the past 6 months (or the latest 6 months data you have available) with:

• Hydroxyurea
• Fedratinib
• Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward to your response.

Yours faithfully,

Ben Holdsworth

FOI (OXLEAS NHS FOUNDATION TRUST), Oxleas NHS Foundation Trust

Dear Ben,

 

FREEDOM OF INFORMATION ACT 2000 – SECTION 8 REQUEST 

 

Thank you for your request for information dated 01/04/2022. Your request
has been managed under the terms of the Freedom of Information Act 2000.  

 

Please note that Oxleas NHS Foundation Trust do not run acute hospitals or
provide Oncology Services and the information you have requested is not
held by the Trust 

 

Oxleas are a community NHS Trust and mental health service provider - for
more information on services provided by the Trust please visit our
website at [1]http://oxleas.nhs.uk/services/. 

 

Following this response, your request for information will be closed. 

 

If you have any queries or concerns or are dissatisfied with the service
you have received in relation to your request, please do not hesitate to
contact us. If you wish to make request a review of the decision, you
should write to the: Information Governance Manager, Julie Lucas via email
at [2][email address] in the first instance. If you remain
unsatisfied with the outcome of your review and wish to make a formal
complaint please address this to the Head of Complaints, Oxleas NHS
Foundation Trust, Pinewood House, Pinewood Place, Dartford DA2 7WG -
Email: [3][email address]     

 

In addition if you are not satisfied with the outcome of your complaint or
review, you may apply directly to the Information Commissioner’s Office
(ICO) for a decision. Generally, the ICO cannot make a decision unless you
have exhausted the complaints procedure provided by the Trust. The ICO can
be contacted at: Information Commissioner's Office, Wycliffe House, Water
Lane, Wilmslow, Cheshire, SK9 5AF (Telephone: 0303 123 1113 or 01625 545
745 - [4]www.ico.org.uk). 

 

Kind regards,     

 

 

Paul Bransgrove 

Information Governance Officer 

E: [5][Oxleas NHS Foundation Trust request email]   

Oxleas NHS Foundation Trust | Bracken House | Bracton Lane | Leyton Cross
Road | Dartford | Kent | DA2 7AF 

 

══════════════════════════════════════════════════════════════════════════

From: BEN HOLDSWORTH <[FOI #849853 email]>
Sent: 01 April 2022 10:10
To: FOI (OXLEAS NHS FOUNDATION TRUST) <[email address]>
Subject: Freedom of Information request - Information regarding Jakavi
 
Dear Oxleas NHS Foundation Trust,

I would like to request information for the below questions.

The purpose of these questions is to understand the variability of
treatment within your trust and in context to the rest of the country.

Q1. Does your trust treat myelofibrosis? If not, which other trust do you
refer these patients to?

Q2.

A) Please provide the total number of patients treated in the last 6
months (or the latest 6 months data you have available) for myelofibrosis
(ICD10 code D47.4).

b) How many of these patients were above age 65?

Q3. How many myelofibrosis patients were treated in the past 6 months with
Ruxolitinib?

Q4.

A) How many myelofibrosis (ICD10 code D47.4) patients has your trust
diagnosed in the past 3 years?

b) Of these patients, how many were treated in the past 6 months (or the
latest 6 months data you have available) with:

•       Hydroxyurea

•       Fedratinib

•       Received No Treatment

Q5. Does your trust participate in any clinical trials for the treatment
of myelofibrosis?  If so, can you please provide the name of each trial
along with the number of patients taking part.

Thank you for taking the time to answer these questions and I look forward
to your response.

Yours faithfully,

Ben Holdsworth

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