I would like to know the proportion of adults, diagnosed with type 1 diabetes, who are misdiagnosed in the first instance

Katrina Plumb (pseudonym Iatrogena) made this Freedom of Information request to NHS Benchmarking Network

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Katrina Plumb (pseudonym Iatrogena)

Dear NHS Benchmarking Network,

I would like to know the proportion of adults, diagnosed with type 1 diabetes, who are misdiagnosed in the first instance. I realise this involves confidential information but simply want the number of patients, diagnosed in adulthood with Latent Autoimmune Diabetes in Adults and the number of these who are originally diagnosed as having type 2 diabetes.

In relation to this, I would like to know the relative proportions of viruses that trigger type 1 diabetes in adults. For example, how many patients diagnosed in adulthood with type 1 were known to have a virus, and which virus, e.g. HIV, rubella, etc.? The reason for this is that I have been told by Professor Polly Bingley in Bristol that there are only three possible triggers for type 1 diabetes in adulthood: puberty, pregnancy or a virus. For me, it was neither of the first two and I was not known to have a virus, so I wondered whether it might be worth instigating some research into two things:
!) which viruses, in what proportions, are known to trigger autoimmune diabetes?
2) whether the National Health Service has any plans to investigate the impact of menopause on triggering autoimmune diabetes?

I hope that makes sense and that you have a method of contacting me if you require any further information from myself.

Yours faithfully,
Iatrogena

Katrina Plumb (pseudonym Iatrogena)

Dear NHS Benchmarking Network,

I contacted you on 8th September to inquire about the proportion of adults with latent autoimmune diabetes, who are initially misdiagnosed (as type 2). I have not received a response. Would it help if I break down the question?

I would also like to know the proportions of different viruses that trigger type 1 diabetes.

Your assistance will be extremely helpful to me.

Yours faithfully,

Katrina Plumb (pseudonym Iatrogena)